Re: Cirrhosis Information

[Guest guest]

dear mary,<br>it is possible to survive with

liver cihrosis and lead normal life .<br>it all depends

the cause of the ailment.<br>is it because of heavy

drinking or due to hepatisis B OR C.<br>pl let me know

details of ur mother case.<br>i am not Dr. of

medicine,but due to long association of mine (my self is

suffering from hep C-liver cihrosis and bloodvomitting due

to portal hypertention.......)with this " my

friends " viruses(tthis frase has been coined by my wife)i can give soe

practical points which may help u in overcomming this

deadly disease.<br>i am available on narim_in@...

or narijpatel@....<br>pl do write to me

<br>narim

[Guest guest]

Hi , sorry to hear about your Mom. You will

find this group a little slow just now, but a great

source of information.<br><br>I started this group

because I have Cryptogenic Cirrhosis and because there

are no transplants performed in the state I am in--

there are no support groups.<br><br>If you ask a

question of the group you may find some neat answers or

you may find more questions. Either way I am glad you

are here,<br><br>Just yell if you need us!<br>

[Guest guest]

I lost my wife a year ago. It was, in fact, Memorial Day weekend when she went

to the hospital for the last time. We spent Monday (Memorial Day) together at

the hospital, watching a baseball game (which she loved) and then watching a

movie (laughing and saying the lines in unison). She was there to have the

fluid drawn off her abdomen and expected to come home on Tuesday afternoon. She

told me to go home and feed the cats (we have two) and I did. I talked to her

on the phone after I got home. The last things we said were at 11 pm on Monday

evening. I said, " I love you. " She said, " I love you...so very much. " I said,

" I'll meet you for lunch tomorrow. " She said, " I'll hold you to it! Be here by

noon, but bring your own lunch. "

Somewhere in the night, she feel into a coma. She never came out of it. She

passed from this world to the next on June 3rd, 2005, at 4:50 pm. I held her in

my arms and stroked her cheek, as I had done so often in life. She was the

absolute love of my life.

You are six months down the road. I have made twelve months. She is still very

much a part of my life. I do not know if there is a way to " ease the pain, " as

you wrote. In fact, I have begun to believe that the pain we go through when we

lose someone we love is a part of our instruction for life. Six months ago, I

was barely surviving. Today, I am more able to deal with reality. Kjersten was

a wonderful person: smart, witty, in-your-face funny, an accomplished musician

and graphic artist...my best friend, partner, lover, wife for all eternity....

You may e-mail me privately at dhtaylor4@... and I

will share my experiences with you. I live in Vero Beach, Florida...about half

way between the Kennedy Space Center and Palm Beach.

Take care....and take care of yourself...that's important...be gentle with

yourself.

Dennis

Cirrhosis Information

I'm new here to this group. I lost my wife to Cirrhosis six months ago

which led me to read a ton of information concerning this disease.

Below is a website that I found very useful in describing the disease

and stages along with what doctors should do. It seems to be geared

toward medical students but it's still useful for us who are not

doctors. I hope it provides you with useful information.

http://www.emedicine.com/med/topic3183.htm<http://www.emedicine.com/med/topic318\

3.htm>

(you may have to cut and paste the link into a new browswer)

Also, on a separate issue, if you have lost someone to cirrhosis and

have any guidance on how to ease through the pain or have words of

wisdon please let me know.

Thanks,

MaC

[Guest guest]

Thanks for sharing Dennis. You have my condolences. My wife was 29

when she first complained of abdominal pain. She had lost a lot of

weight the months leading up to this. The doctors discovered elevated

liver enzymes and did many tests. Her disease progessed. Her main

complication early on were platelet problems. This prevented the

doctors from doing a byopsy. Anyway, two years later Friday, 11 Nov

05, she complained of severe fatigue and asked me to come home from

work early to help watch our 3 year old daughter. She had seemed

healthy the weeks prior and also had a scheduled appointment to treat

her ascites. At her doctor appt 2 weeks earlier never suggested liver

failure.

On 12 Nov, she woke up in the middle of the night confused, unable to

find the bathroom. She was cold and clammy so I called 911. One week

later 20 Nov 05, she succombed to her encephalopathy (among other

things) and fell into a coma and passed away at 1050pm.

I am amazed at how brave and strong my wife was. She knew, in the

hospital, she was dying, but still kept her chin up and was always

smiling and making us laugh. I think she was more comfortable with

her situation than I was. It's been six months and I still cry and

sometimes find it hard to let go. This is probably the toughest thing

I've had to face ontop of being a single dad. If it weren't for my

faith, I'd be lost.

MaC

>

> I lost my wife a year ago. It was, in fact, Memorial Day weekend

when she went to the hospital for the last time. We spent Monday

(Memorial Day) together at the hospital, watching a baseball game

(which she loved) and then watching a movie (laughing and saying the

lines in unison). She was there to have the fluid drawn off her

abdomen and expected to come home on Tuesday afternoon. She told me

to go home and feed the cats (we have two) and I did. I talked to her

on the phone after I got home. The last things we said were at 11 pm

on Monday evening. I said, " I love you. " She said, " I love you...so

very much. " I said, " I'll meet you for lunch tomorrow. " She said,

" I'll hold you to it! Be here by noon, but bring your own lunch. "

>

> Somewhere in the night, she feel into a coma. She never came out of

it. She passed from this world to the next on June 3rd, 2005, at 4:50

pm. I held her in my arms and stroked her cheek, as I had done so

often in life. She was the absolute love of my life.

>

> You are six months down the road. I have made twelve months. She

is still very much a part of my life. I do not know if there is a way

to " ease the pain, " as you wrote. In fact, I have begun to believe

that the pain we go through when we lose someone we love is a part of

our instruction for life. Six months ago, I was barely surviving.

Today, I am more able to deal with reality. Kjersten was a wonderful

person: smart, witty, in-your-face funny, an accomplished musician

and graphic artist...my best friend, partner, lover, wife for all

eternity....

>

> You may e-mail me privately at dhtaylor4@...

and I will share my experiences with you. I live in Vero Beach,

Florida...about half way between the Kennedy Space Center and Palm Beach.

>

> Take care....and take care of yourself...that's important...be

gentle with yourself.

>

> Dennis

>

>

>

>

> Cirrhosis Information

>

>

> I'm new here to this group. I lost my wife to Cirrhosis six months ago

> which led me to read a ton of information concerning this disease.

> Below is a website that I found very useful in describing the disease

> and stages along with what doctors should do. It seems to be geared

> toward medical students but it's still useful for us who are not

> doctors. I hope it provides you with useful information.

>

>

http://www.emedicine.com/med/topic3183.htm<http://www.emedicine.com/med/topic318\

3.htm>

> (you may have to cut and paste the link into a new browswer)

>

> Also, on a separate issue, if you have lost someone to cirrhosis and

> have any guidance on how to ease through the pain or have words of

> wisdon please let me know.

>

> Thanks,

> MaC

>

>

>

>

>

>

>