Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 My right AFO just started to break, I went to the place where I had them done and they told me I need a new one. Ok, that is just fine with me,,cant live without them but they needed a perscription which I thought MDA clinic can sent me one. Well, MDA needed to evaluate me again, the cost will be 480 dollars in order to give me the perscription. Oh yes, the one AFO will cost me another 427 dollars because of my insurance deductible. After feeling sorry for myself for few days I finally called my family doctor who gave me the perscription and now I'm waiting for my new AFO to be done which will take about 10 days. Thank you for listening. I did think that these AFO will last few more years. If I could afford them I should have make a second pair. Thank you Spy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 Hi Spy, You did the right thing just going through your family Dr. Once on record for AFOs the MDA shouldn't be such a pain. All they do is look at you and say yep you need a new AFO. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 Hi Lainie, How are you doing? Are you in Fl yet? I'm sending this email to see how you still like your C.C. braces. I did meet with last month for my casting, which I should get in May. When I'm there I will go to the CMT clinic at Wayne un. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 If I could just walk..I women's care what my AFO looked like! Talk about ugly I ended up with medal..so cumbersome,have and tangle into one another...Hope I'll be able to walk though but it don't look very promising...haven't money for PT...Gees my AFOs they are hard to put on..they are atched to my ugly shoes. Should be Glad to have shoes I guess... haven had any for so long..only slippers for years. Medicare wonder's pay for custom made shoes so they are way to big...had no choice. My shoe size a one and a half and one leg shorter then the other..Lord have mercy...I'm such a mess!! Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Bob, these sound like great AFOs. I wish we were near you. In a message dated 6/15/2008 9:44:48 A.M. Pacific Daylight Time, robert30@... writes: They are also made out of kevlar and graphite so they are lighter and stronger. They are also thinner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 I was casted Monday at my neuro's office for new AFOs for both feet. I've got drop foot in both feet, more in the left, and muscle weekness. Hoping it'll help me walk better, but I don't know how yet. Anyway, have to wait a month or more to get them. Meanwhile, I'm shuffling my very HEAVY feet to avoid tripping with my toes. The only good thing about it was my insurance covered the cost---yeah! Suzanne in TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Bob, how are you? I had my moldings done. i will get AFOs next week. and i know you know which color i picked. send me your email...please. Betania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 , I am confused!!! so you think is better not to use them? Betania @...: MommyToJase@...: Wed, 9 Jul 2008 21:01:14 -0400Subject: Re: AFO My son Spencer says the same thing about wishing he had never tried AFOs. Someone should have explained to us that they are addicting. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 Betania, I think you get to a point where you MUST use them for your own safety! I've been wearing AFOs since 2003 and they have kept me up and walking. If I'm not going out, I do not wear them at home and usually go barefoot. I give myself a break from them that way. My advice is to not " over " wear them, but use them to protect yourself. They should give you extra stability when you need it the most. K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 , Thank you for your answer. I will get mine next week. I live in New York and now that the weather is hot I like to do a lot of different activities including camping and gardening. Lately, my feet get wayyyyy too tired. By the end of the day, I can hardly walk straight and my balance gets real bad. I am looking forward to wear them. Betania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 I couldn't agree more can't wait to get the things off....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 this is great advice! In a message dated 7/11/2008 9:31:22 A.M. Pacific Daylight Time, tigerboy@... writes: My advice is to not " over " wear them, but use them to protect yourself. They should give you extra stability when you need it the most. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Betania, I am sorry I confused you. I think its important to do what you need to do in regards to AFOs. The problem with my boys was that the orthotist didn't understand CMT and he made a very ridged brace. He had their feet immobile making the AFOs do all the work. Their muscles needed to do some work. We have two great orthotists now that have been trying to correct the problem. AFOs are addicting but they are also a very needed. With out an AFO Adam would be in a wheel chair. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 , Thank you for your answer. This is very confusing................I need them but, my family oppose the fact I decided to get them. But I am the one that knows if I need them or not and I do. At least, when I am outside in the back yard. Or go to action parks and places that require a long walk. Betania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 What exactly are AFOs? And how do you know it's time you need them? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 AFOS are Ankle Foot Orthotics. They help in walking and with holding a foot drop in place. If you are falling, tripping, getting easily fatigued when walking, have weak or atrophied peroneal and foot or ankle muscles, then you might be needing one of the many kinds of AFOs. You can search our Message Archives on this. An orthopedist and a certified orthotist can evaluate you and make recommendations based on their assessment. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Betania, I don't understand. Unless there are financial issues, why should your family oppose you getting AFOs? You're right that you know what you need. I need mine to feel secure (to not turn on the ankle) when doing yard work and such, but worn for any lengthe of time they make my ankle hurt like he**. If yours are allowing long walks then you're doing great. Mine don't help me walk longer, but we're still fine tuning them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 In my sons case he tripped a lot. I mean a lot!! In a message dated 7/16/2008 9:20:03 A.M. Pacific Daylight Time, cmcubbage@... writes: >And how do you know it's time you need them?< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2010 Report Share Posted March 25, 2010 Hi Nina, I meant to respond to this earlier. These are custom made for you by a certified orthotist right? While I don't have experience with AFOs, I suggest you go right back to your orthotist and bit** about them. You are right, AFOs should last much longer. If these are 'off the shelf' (as in without any actual fit for your needs), then get to an orthotist for a complete exam and discussion of your needs. Gretchen Quote Link to comment Share on other sites More sharing options...
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