Re: education

July 23, 2007

i guess what i envision is a group, or many organized groups who work in

regions in a coordinated fashion to gather materials (like a particularly

compelling medical article, or whatever, along with other handouts and info on

sites

where they can obtain more info) and mail them to individual docs (targeted

beforehand, but probably neurologists and neurosurgeons and, perhaps, radiology

groups).

the reason i ask, is that i work at an imaging center - a world-renowned

center with a world-renowned neuroradiologist - and we routinely turn out

reports

that say patients do not have chiari when their tonsils are herniated anywhere

between 4-8mm. this appalls me. i know it's happening all over, and it

seems that if, at a grassroots level, there were some attempt to provide a

packet

of professionally prepared info for these doctors, that maybe we might

encourage them to explore the diagnostic criteria a bit closer.

i just wondered if anyone had ever tried that before...

In a message dated 7/19/2007 11:39:28 AM Central Standard Time,

sallists@... writes:

Hi..

I guess a lot would depend on the definition of " actively " . <g>

One of our missions is to help with this " education " ...that is part of the

purpose of or CCI Website, which I hope you have all visited and bookmarked!

;-}

>>Our web page will also act as a connection point for reliable information,

>>supplied by acknowledged Chiari experts and patients themselves, which is

>>intended to help the ACM patients lead the best lives possible, as well to

>>provide an easily referenced source of information for the medical

>>community at large, to help broaden their knowledge and awareness of these

>>problems. <<

diane

ACM-1, 9mm

decompressed 10/23/06

scoliosis, obstructive sleep apnea

epilepsy

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