Re: I'm just really glad there's a group like this

[Guest guest]

Hey and welcome to the group. I wish you didn't need to be here

(meaning you didn't have this) but this is a great place for those who do, full

of understanding people. Sometimes it's hard to find help from doctors when

most don't even know of this condition. However, in my situation, it took me 3

doctors before I found one that would even listen and not immediately write me

off as being " crazy " . Once I found him, I've stuck with him. He'd never heard

of this... I was his first case (or at least first to admit my problems). He

had no clue what to do but has worked with me in different ways. If anything,

he allows me to discuss this with him without fear of criticism which goes a

long way. I'm hoping this will educate him as well so that if anyone else comes

to him in the future, he will be more prepared for them.

In my opinion, it can't hurt to tell your doctor. The more doctors we can get to

realize that there are people like us out there suffering and in need of help,

the better. Perhaps you will luck out. Best of luck.

Darlene

>

> So, I actually don't remember when I first got this problem, but it was some

time when I was very young. My brother used to smack his lips so loud at the

dinner table. I used to say " stop smacking " and it used to get on my parents'

nerves to the point where I would get into trouble for even mentioning the word

" smacking " . This caused me to go into full avoidance mode whenever I was around

somebody like my brother.

>

> I'm now 30, and while I consider my social life pretty reasonable, I still get

so irritated and panicky whenever I hear somebody smacking their gum or eating

to the point that I don't know what to do. I lose my train of thought and I

become weak in the knees. I finally told one of my friends about this problem

earlier last year when she kept smacking her lips after taking a sip of her

drink in my car. Because I couldn't just leave the car (I was driving!), I

finally fessed up and told her. I was surprised at how understanding she was and

that she didn't lash out at me for saying something incredibly silly.

>

> Well, while that made me feel better that somebody else knows that this is

such a problem with me, I still am frustrated. My supervisor that sits next to

me at work has been sucking air through his teeth and smacking for the last 2

weeks. He has some sort of tooth infection. This has been the biggest challenge

of my life, having to deal with him because I can't just ditch my work, and i

can't put on earphones with the kind of work I do. This lead me to do some

research online on whether this is a known condition, and I can't even tell all

of you how thrilled I was when I discovered that I am not alone.

>

> Now, I'm wondering whether I should tell my doctor and show him the

information I've found online and whether anyone has had any success stories

with their doctors.

>

> Anyhow, I just thought I'd share.

>

> --

>

[Guest guest]

Hi, .

You describe it exactly right. When I'm subjected to trigger sounds, I completely lose my train of thought. I can't think in a straight line, I'm so distracted. Especially like in church or school, I just have to give up paying attention and learning, I just can't hear them anymore b/c I'm so totally fixated on that sound. the other day, I was in Target trying to make some shopping decisions about some products and I was SO distracted by this noise that I had to leave the aisle and try again later cuz I just couldn't think.

I think it's really ironic that you're parents were irritated (4s-ing, if that's a verb) about the word 'smacking' but you couldn't be irritated about the actual smacking. You are very lucky you have a friend who understands, to be blunt and realistic for you, that is the rare exception in our world.

Tammy

To: Soundsensitivity Sent: Thu, January 14, 2010 9:05:35 PMSubject: I'm just really glad there's a group like this

So, I actually don't remember when I first got this problem, but it was some time when I was very young. My brother used to smack his lips so loud at the dinner table. I used to say "stop smacking" and it used to get on my parents' nerves to the point where I would get into trouble for even mentioning the word "smacking". This caused me to go into full avoidance mode whenever I was around somebody like my brother.I'm now 30, and while I consider my social life pretty reasonable, I still get so irritated and panicky whenever I hear somebody smacking their gum or eating to the point that I don't know what to do. I lose my train of thought and I become weak in the knees. I finally told one of my friends about this problem earlier last year when she kept smacking her lips after taking a sip of her drink in my car. Because I couldn't just leave the car (I was driving!), I finally fessed up and told her. I was surprised at how understanding she was

and that she didn't lash out at me for saying something incredibly silly. Well, while that made me feel better that somebody else knows that this is such a problem with me, I still am frustrated. My supervisor that sits next to me at work has been sucking air through his teeth and smacking for the last 2 weeks. He has some sort of tooth infection. This has been the biggest challenge of my life, having to deal with him because I can't just ditch my work, and i can't put on earphones with the kind of work I do. This lead me to do some research online on whether this is a known condition, and I can't even tell all of you how thrilled I was when I discovered that I am not alone.Now, I'm wondering whether I should tell my doctor and show him the information I've found online and whether anyone has had any success stories with their doctors.Anyhow, I just thought I'd

share.--