Help!

[Guest guest]

I am very happy to have found this group & would appreciate any input. History: diagonosed in 92 & feel that I have handled this dz pretty well. I did take meds @ first, but then explored natural alternatives. I have followed Dr. Swanks recomendations, became a vegetarian. I juice, sprout, excersize... I am very health oriented & am proud of the work I have done, BUT I am currently experiencing my worse ( & only for 4 yrs) exacerbation. I long & work towards improvemwnt, but one month turns into the next & lately I seem to be digressing. I am not giving up though, just would like some input.

I am currrently using Jethro Kloss's recomendation - an orange cleanse, but I am not sure if this will be strong enough. I thought about trying the Master Cleanse. I am lost & frustrated. I am considering trying Schulze's incurables program. Can anyone offer info about this? I would REALLY appreciate any help!

You could have another problem, like candida, leaky gut, or mercury poisoning. And, of course, I would have to urge you to check into whether or not you should actually be vegetarian. Dr. Mercola's site has all kinds of articles on why that's a big mistake and may take several years to become obvious in one's health. Also, are you on dairy, eggs, legumes and or gluten? Here are a couple of links that could help you.

Carol

PS - that first site is actually on Dr. Mercola's site and the search is within his articles, or rather the articles on his site.

Google Search: vegetarianism

Best Bet Diet support site, click on "Contact Us" to join great List: http://www.ms-diet.org/ The best article I've seen on Leaky Gut: t h e d o c t o r w i t h i n -- Journey to the Center of Your Colon My site: MS Diet Recipes Supplements Philosophy by Carol

[Guest guest]

Hi Betsy! Thank you so much for your reply. I am comforted to hear that you are familiar w/ my path. I know that I am on the right track, but am confused as what to do next. My mother considered me healed a few years ago - my MS was dormant except for some bladder weakness & fatigue... but I know that I am missing something because this exacerbation is strong - so the MS is still there, just waiting... I would appreciate a Schultz website GREATLY. Thanks, Dara

[Guest guest]

I'll try to get back to you with a good Dr. Schulze web site if you wish.

Betsy,

I'd like to see that too.

Carol

[Guest guest]

flshowgirl wrote:

>I am very happy to have found this group & would appreciate any

>input. History: diagonosed in 92 & feel that I have handled this dz

>pretty well. I did take meds @ first, but then explored natural

>alternatives. I have followed Dr. Swanks recomendations, became a

>vegetarian. I juice, sprout, excersize... I am very health oriented

> & am proud of the work I have done, BUT I am currently experiencing

>my worse ( & only for 4 yrs) exacerbation. I long & work towards

>improvemwnt, but one month turns into the next & lately I seem to be

>digressing. I am not giving up though, just would like some input.

>I am currrently using Jethro Kloss's recomendation - an orange

>cleanse, but I am not sure if this will be strong enough. I thought

>about trying the Master Cleanse. I am lost & frustrated. I am

>considering trying Schulze's incurables program. Can anyone

>offer info about this? I would REALLY appreciate any help!

Dear flshowgirl:

I am sorry to hear that you have been struggling so much with your most

recent exaserbation. I can definately hear the frustration in your e-mail

when you try so hard to do all the right things and it still seems that you

are getting worse. I have never heard of Schulze's program, but

maybe you can describe it so that I know if it is similar or not to any of

the protocols that I try.

Have you tried colonics or switching to a 100% raw diet? Do you have a

spiritual or meditation practice? Any new protocol you try is still going to

take several months to show significant results. Stay positive! I am sure

you will find the right thing for you, and you will improve.

Regards;

>

_________________________________________________________________

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[Guest guest]

Hi Betsy, I am trying to figure out the best way to try tinctured herbs. This seems to be a logical progression because most of what Schulze prescribes I already do, but I have to be missing something or I wouldn't be going through this. How did you get started? And could you PLEASE tell me what seems to work for you? I am lost, echiacea, nerve hebs, brain herbs, bladder herbs... The incurables program is tempting because I think that I could do it well, but maybe other herbs would be better suited for my dz? I am going to write to the owner of H. O. P. E., her name is Dara also Is this where you get your herbs? Do you use a press? I am serious about this & would appreciate any info. Thank you for all of your help.

Dara,

I noticed that he advises a specific diet. What does that involve.......what are the avoids?

Carol

[Guest guest]

Hi Betsy, I am trying to figure out the best way to try tinctured herbs. This seems to be a logical progression because most of what Schulze prescribes I already do, but I have to be missing something or I wouldn't be going through this. How did you get started? And could you PLEASE tell me what seems to work for you? I am lost, echiacea, nerve hebs, brain herbs, bladder herbs... The incurables program is tempting because I think that I could do it well, but maybe other herbs would be better suited for my dz? I am going to write to the owner of H. O. P. E., her name is Dara also Is this where you get your herbs? Do you use a press? I am serious about this & would appreciate any info. Thank you for all of your help.

[Guest guest]

Once again this year I am advocating for appropriate ESY services for my son

with autism.

Last year, as always, they started out by insisting that he did not need ESY.

Then they proposed a situation not a program that all other parents declined as

ESY is ALWAYS presented to parents in a " take it or leave it " manner. I was

even told this, " We told you what it ws. You either want it or you don't "

In brief, last year they offered to send my high-functioning child with autism

(eight years old) 25 miles further away to a self-contained room with non-age

appropriate students (19 and 20 year old MR males).

My son also has life threatening health issues. None of the workers had ever

used an epipen or actually performed CPR on a real person. In the event of a

crises, It could actually take up to 30 minutes for an ambulance to arrive.

Then he would be transported to a tiny care facility and then probably care

flight would be called, but by then of course, my son would all ready be dead.

Long story short, I continued to advocate for my son, and the district paid for

placement in a private setting. My son flourished in the private school.

In October of '08, I urged the new principal to begin now to develop appropriate

ESY services for my son so that we did not wind up in dis agreement again. They

did nothing.

They came to the original ARD in the spring with the same statement that my son

did not need ESY. I requested retesting to assess the progress of his goals and

skills. While the testing showed some progress in some areas, there are

critical areas in which little or no progress has been made. Then they said

that he did qualify for ESY.

They said they had decided to put him in with the third grade students who

failed the TAKS. The teacher would divide her time between my son and the other

kids. My son would have no aide. There was no explanation as to how and in

what manner my child would be taught.

I disagreed. My son has lost two percentage points in social skills since we

had him tested last year.

He is about to be ten years old. The only area in which he is now one grade

level below his peers is in spelling (photographic memory).

In all the other areas, he is two to three years behind.

In two critical areas regarding reading skills, he tested at BELOW the

kindergarten level.

Then the district said they would add a general education teacher as his aid and

she would work with our son one on one for the whole lengvth of ESY, which by

the way is the same every year no matter what: four hours a day, four days a

week, four weeks during the summer. No child is ever deemed to need more.

I disagreed. There was no speech or OT. The district assumed we should provide

for that. Recent testing showed discrepancies in these areas to be " clinically

significant. "

Their program did not address his need for social skills intervention, another

area of deficit that is clinically significant.

Then they said that they would pay for an additional two weeks in the YMCA

enrichment program designed for NT kids. This would allow him interaction with

NT kids, but of what benefit is unclear. They made no offer to provide an aid

for this. Then they would provide an aide but at our expense. Then they said

they would send the special education teacher up to the Y to integrate IEP goals

for only two days of the two weeks.

They have been pressuring me to sign. I have not signed and after much

consideration, I have determined their program does not meet the unique needs of

my son. His issues with auditory processing disorder were not address. The

five W's have not been clearly outlined.

I wrote the principal and told her that I could not sign because at this time I

disagree, and that would be what I would have to sign that I disagree. Now,

once again, time is running out.

I need parental input. I know many of you have been through similar

circumstances. If the district had shown an interest in meeting with me early

in the year and developing an appropriate program, I would have been more than

happy to sign off, but I cannot in good conscience sign off on a sub-standard

program that is inappropriate.

My son is falling further and further behind his peers -- not due to a lack of

intellect, but due to a six year failure to provide FAPE.

Where do we go from here?

Please email us directly at hdelay@...

Thank you all!

Shygirl