day 23 - update on my son Ethan

[Guest guest]

Good morning listmates,

I wanted to share a quick update on my son Ethan, 3.3 yo, 750 mg/day in

3 doses:

Its day 23.... no rashes, bumps etc at all. Background - Ethan has

chronic chicken pox (varicella zoster shot) and we're hoping Valtrex

helps.

At first, Ethan was irritable, sensitive and his visual stimms came

back--he loves to watch the wheels on his toy trucks. He became a bit

umcompliant with us (parents)and potty training took a dive. HIs

therapists also said he had a few episodes of inappropriate laughter in

session. I started diflucan on day 14.

Around day 14-16 Ethan's language really picked up. His language has

been ona a steady climb but he really started saying long

sentences... " I want Daddy's hand and go up stairs to play in my

playroom!!! " His social skills are getting better too - he is waving

and saying hello to all the neighbors and good bye, umprompted on our

walks. Before, I felt I was prompting him to do so, most of the time.

He is also making friends at the kids corner at the mall and

bookstore. He was social before, but its slightly better...Day 19-21

visual stimms are decreasing drastically. If I see him stare at his

trucks he redirects himself and pushes the truck around appropriately.

No inappropriate laughter and he is no longer irratable and sensitive.

He is compliant with us too - although, he is acting like a typical 3

yo too, which I love! Potty training is better as well. I'm hoping

our regression is over and he continues to progress. Will keep you

all posted. We are also starting HBOT this week!!

I forgot something! Ethan is expanding his list of foods! He is picky

but has tried new foods this last 3-4 weeks. FINALLY!!!!

Thanks for the great advice on this list, Stan and others. Hope to see

you all at DAN! this weekend.

emily

[Guest guest]

,

I'm in the airport, so I'll be short.

Great update . Another Ethan on his way back. That's really great news.

Please go into the polls section and log that you are one of the families who

did not have

the rash, but did have a regression and is certainly improving.

I encourage everyone that tries a therapy to go into the polls section of this

list and take

one minute to respond to them. The more people who tell their story in the

group and on

the polls, the more data we'll have to convince doctors that this is a viable

therapy.

http://health.groups.yahoo.com/group/mb12 valtrex/polls

Question :

Did your son test for any viral markers? If so, what? If not, that's OK as

well. I would like

to hear from families who did not have a posative titers test but improved with

Valtrex.

- Stan

>

> Good morning listmates,

> I wanted to share a quick update on my son Ethan, 3.3 yo, 750 mg/day in

> 3 doses:

> Its day 23.... no rashes, bumps etc at all. Background - Ethan has

> chronic chicken pox (varicella zoster shot) and we're hoping Valtrex

> helps.

> At first, Ethan was irritable, sensitive and his visual stimms came

> back--he loves to watch the wheels on his toy trucks. He became a bit

> umcompliant with us (parents)and potty training took a dive. HIs

> therapists also said he had a few episodes of inappropriate laughter in

> session. I started diflucan on day 14.

> Around day 14-16 Ethan's language really picked up. His language has

> been ona a steady climb but he really started saying long

> sentences... " I want Daddy's hand and go up stairs to play in my

> playroom!!! " His social skills are getting better too - he is waving

> and saying hello to all the neighbors and good bye, umprompted on our

> walks. Before, I felt I was prompting him to do so, most of the time.

> He is also making friends at the kids corner at the mall and

> bookstore. He was social before, but its slightly better...Day 19-21

> visual stimms are decreasing drastically. If I see him stare at his

> trucks he redirects himself and pushes the truck around appropriately.

> No inappropriate laughter and he is no longer irratable and sensitive.

> He is compliant with us too - although, he is acting like a typical 3

> yo too, which I love! Potty training is better as well. I'm hoping

> our regression is over and he continues to progress. Will keep you

> all posted. We are also starting HBOT this week!!

> I forgot something! Ethan is expanding his list of foods! He is picky

> but has tried new foods this last 3-4 weeks. FINALLY!!!!

> Thanks for the great advice on this list, Stan and others. Hope to see

> you all at DAN! this weekend.

> emily

>

[Guest guest]

Hi Stan

Yes, we did the Immunioscience premeire viral panel and his Varicella

came back 442! <100 ref range. That is the only one that came back

on that test. Our son is doing so great - his stimms are

drastically dropping and his speech is expoding. I really feel like

the diflucan helped us and yeast really was masking his progress the

first two weeks. We'll keep it up and test frequently to be sure

liver enzymes are ok. I'm excited about this intervention. I'll go

to the polls now....

Thanks and see you at DAN!

emily

ethans mom, 3.3 yo

alexandria, va

> >

> > Good morning listmates,

> > I wanted to share a quick update on my son Ethan, 3.3 yo, 750

mg/day in

> > 3 doses:

> > Its day 23.... no rashes, bumps etc at all. Background - Ethan

has

> > chronic chicken pox (varicella zoster shot) and we're hoping

Valtrex

> > helps.

> > At first, Ethan was irritable, sensitive and his visual stimms

came

> > back--he loves to watch the wheels on his toy trucks. He became

a bit

> > umcompliant with us (parents)and potty training took a dive. HIs

> > therapists also said he had a few episodes of inappropriate

laughter in

> > session. I started diflucan on day 14.

> > Around day 14-16 Ethan's language really picked up. His language

has

> > been ona a steady climb but he really started saying long

> > sentences... " I want Daddy's hand and go up stairs to play in

my

> > playroom!!! " His social skills are getting better too - he is

waving

> > and saying hello to all the neighbors and good bye, umprompted on

our

> > walks. Before, I felt I was prompting him to do so, most of the

time.

> > He is also making friends at the kids corner at the mall and

> > bookstore. He was social before, but its slightly better...Day

19-21

> > visual stimms are decreasing drastically. If I see him stare at

his

> > trucks he redirects himself and pushes the truck around

appropriately.

> > No inappropriate laughter and he is no longer irratable and

sensitive.

> > He is compliant with us too - although, he is acting like a

typical 3

> > yo too, which I love! Potty training is better as well. I'm

hoping

> > our regression is over and he continues to progress. Will keep

you

> > all posted. We are also starting HBOT this week!!

> > I forgot something! Ethan is expanding his list of foods! He is

picky

> > but has tried new foods this last 3-4 weeks. FINALLY!!!!

> > Thanks for the great advice on this list, Stan and others. Hope

to see

> > you all at DAN! this weekend.

> > emily

> >

>