Re: Valtrex Day 14 - Regression, No Rash, No Improvement...?'s

[Guest guest]

I can understand your frustration. My son has been on a lower dose than yours of valtrex now for 13 days now. I have not seen any thing really positive or different. He does seem to be having a little bit more fits and seems to notice more things around him. I dont know if that is from the valtrex or not. However, I am going to continue on with it through the 6 week, period. My doctor wants him on it until our next appointment in May. So I dont know what I am going to do!!!!! So , hang in there. R.

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of SallySent: Monday, March 06, 2006 11:32 AMTo: mb12 valtrex Subject: [Norton AntiSpam] Valtrex Day 14 - Regression, No Rash, No Improvement...?'s

Stan and all,Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is taking 500mg in am, and same before bed. He has just learned to swallow small pills in applesauce so I'm cutting the pill into quarters and not washing off the blue coating.Although he has some verbal skills, he is low functioning cognitively and a very sensory kid (hand flapper, visual stimmer, loves to touch bare arms, etc.) He didn't display a sudden regression after any one vaccination. His Herpesvirus 6 IgG was 160 and I'm told that normal is 10. We've been doing the DAN thing for 1 year including GF/CF, MB 12 shots, and not seen any "big bang" improvement. The biggest thing is that he has been toilet trained since August...and if we get nothing else out of this journey, that will have been worth it.Since starting Valtrex he is REALLY hyper and we've seen big regression behaviorially...not answering questions or following directions very well, visual stims are really up, focus to task is even worse than before. Verbal scripting (which was VERY high when starting) is a bit reduced. Unfortunately, no rash or fever. He has said that he doesn't feel good in the evening and seems to be gassy. I've added activated charcoal once in a while.We took Diflucan for the first week and I've just requested a longer term dose to accompany the Valtrex for however long we stay on it. Maybe yeast is causing some of this?Life has really been tough the last couple of days. So my questions for Stan...1) Do you know of kids being responders without displaying a rash?1.5) Does this sound like it could be "healing regression"?2) Do you know of any older kids who have seen positive results?3) How does his HV 6 level compare to responders that you know?4) How long would you stay on Valtrex before deciding he isn't a responder? I'm trying not to get discouraged until we pass days 21-40 but I'm having a tough time.Thanks for your support.Sally

[Guest guest]

Sally,

Why don't you try washing the blue dye off? If I were you, I would

want to know if that was affecting my son. Some of our kids react

terribly to dyes. It seems to me that you could wash the dye off

and still give it in pill form.

Anne

>

> Stan and all,

>

> Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

> taking 500mg in am, and same before bed. He has just learned to

> swallow small pills in applesauce so I'm cutting the pill into

> quarters and not washing off the blue coating.

>

> Although he has some verbal skills, he is low functioning

cognitively

> and a very sensory kid (hand flapper, visual stimmer, loves to

touch

> bare arms, etc.) He didn't display a sudden regression after any

one

> vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

normal

> is 10. We've been doing the DAN thing for 1 year including GF/CF,

MB

> 12 shots, and not seen any " big bang " improvement. The biggest

thing

> is that he has been toilet trained since August...and if we get

> nothing else out of this journey, that will have been worth it.

>

> Since starting Valtrex he is REALLY hyper and we've seen big

> regression behaviorially...not answering questions or following

> directions very well, visual stims are really up, focus to task is

> even worse than before. Verbal scripting (which was VERY high

when

> starting) is a bit reduced. Unfortunately, no rash or fever. He

has

> said that he doesn't feel good in the evening and seems to be

gassy.

> I've added activated charcoal once in a while.

>

> We took Diflucan for the first week and I've just requested a

longer

> term dose to accompany the Valtrex for however long we stay on

it.

> Maybe yeast is causing some of this?

>

> Life has really been tough the last couple of days. So my

questions

> for Stan...

>

> 1) Do you know of kids being responders without displaying a rash?

> 1.5) Does this sound like it could be " healing regression " ?

> 2) Do you know of any older kids who have seen positive results?

> 3) How does his HV 6 level compare to responders that you know?

> 4) How long would you stay on Valtrex before deciding he isn't a

> responder?

>

> I'm trying not to get discouraged until we pass days 21-40 but I'm

> having a tough time.

>

> Thanks for your support.

>

> Sally

>

[Guest guest]

Thanks for the suggestion. I'll try washing off the dye. I was

doing that initially and giving dissolving in Crystal Lite. He

doesn't like me messing with his lemonade:) He does have some dyes

as possible offenders on his allergy panel but I've never been able

to make the correlation based on behavior.

Sally

> >

> > Stan and all,

> >

> > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

> > taking 500mg in am, and same before bed. He has just learned to

> > swallow small pills in applesauce so I'm cutting the pill into

> > quarters and not washing off the blue coating.

> >

> > Although he has some verbal skills, he is low functioning

> cognitively

> > and a very sensory kid (hand flapper, visual stimmer, loves to

> touch

> > bare arms, etc.) He didn't display a sudden regression after any

> one

> > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

> normal

> > is 10. We've been doing the DAN thing for 1 year including

GF/CF,

> MB

> > 12 shots, and not seen any " big bang " improvement. The biggest

> thing

> > is that he has been toilet trained since August...and if we get

> > nothing else out of this journey, that will have been worth it.

> >

> > Since starting Valtrex he is REALLY hyper and we've seen big

> > regression behaviorially...not answering questions or following

> > directions very well, visual stims are really up, focus to task

is

> > even worse than before. Verbal scripting (which was VERY high

> when

> > starting) is a bit reduced. Unfortunately, no rash or fever. He

> has

> > said that he doesn't feel good in the evening and seems to be

> gassy.

> > I've added activated charcoal once in a while.

> >

> > We took Diflucan for the first week and I've just requested a

> longer

> > term dose to accompany the Valtrex for however long we stay on

> it.

> > Maybe yeast is causing some of this?

> >

> > Life has really been tough the last couple of days. So my

> questions

> > for Stan...

> >

> > 1) Do you know of kids being responders without displaying a rash?

> > 1.5) Does this sound like it could be " healing regression " ?

> > 2) Do you know of any older kids who have seen positive results?

> > 3) How does his HV 6 level compare to responders that you know?

> > 4) How long would you stay on Valtrex before deciding he isn't a

> > responder?

> >

> > I'm trying not to get discouraged until we pass days 21-40 but

I'm

> > having a tough time.

> >

> > Thanks for your support.

> >

> > Sally

> >

>

[Guest guest]

Sally,

In an ideal world, too, Valtrex is dosed more than twice a day. We

haven't started yet so I don't know exactly how we'll handle that,

but you might consider trying to divide the total dose into at least

three daily doses. I have read that five or six might be better,

but don't have much information to back that up.

Anne

> > >

> > > Stan and all,

> > >

> > > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He

is

> > > taking 500mg in am, and same before bed. He has just learned

to

> > > swallow small pills in applesauce so I'm cutting the pill into

> > > quarters and not washing off the blue coating.

> > >

> > > Although he has some verbal skills, he is low functioning

> > cognitively

> > > and a very sensory kid (hand flapper, visual stimmer, loves to

> > touch

> > > bare arms, etc.) He didn't display a sudden regression after

any

> > one

> > > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

> > normal

> > > is 10. We've been doing the DAN thing for 1 year including

> GF/CF,

> > MB

> > > 12 shots, and not seen any " big bang " improvement. The

biggest

> > thing

> > > is that he has been toilet trained since August...and if we

get

> > > nothing else out of this journey, that will have been worth it.

> > >

> > > Since starting Valtrex he is REALLY hyper and we've seen big

> > > regression behaviorially...not answering questions or

following

> > > directions very well, visual stims are really up, focus to

task

> is

> > > even worse than before. Verbal scripting (which was VERY high

> > when

> > > starting) is a bit reduced. Unfortunately, no rash or fever.

He

> > has

> > > said that he doesn't feel good in the evening and seems to be

> > gassy.

> > > I've added activated charcoal once in a while.

> > >

> > > We took Diflucan for the first week and I've just requested a

> > longer

> > > term dose to accompany the Valtrex for however long we stay on

> > it.

> > > Maybe yeast is causing some of this?

> > >

> > > Life has really been tough the last couple of days. So my

> > questions

> > > for Stan...

> > >

> > > 1) Do you know of kids being responders without displaying a

rash?

> > > 1.5) Does this sound like it could be " healing regression " ?

> > > 2) Do you know of any older kids who have seen positive

results?

> > > 3) How does his HV 6 level compare to responders that you know?

> > > 4) How long would you stay on Valtrex before deciding he isn't

a

> > > responder?

> > >

> > > I'm trying not to get discouraged until we pass days 21-40 but

> I'm

> > > having a tough time.

> > >

> > > Thanks for your support.

> > >

> > > Sally

> > >

> >

>

[Guest guest]

Sally,

I would suspect that some of the behaviors you are seeing are yeast but I

see a lot of those behaviors if my son accidently gets anything with blue die.

I would definetly take off the blue coating. My son goes crazy and spaces with

food dyes. -

>

>Date: Mon Mar 06 11:31:57 CST 2006

>To: mb12 valtrex

>Subject: Re: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>

>>

>>Date: Mon Mar 06 11:31:57 CST 2006

>>To: mb12 valtrex

>>Subject: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>

>>Stan and all,

>>

>>Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

>>taking 500mg in am, and same before bed. He has just learned to

>>swallow small pills in applesauce so I'm cutting the pill into

>>quarters and not washing off the blue coating.

>>

>>Although he has some verbal skills, he is low functioning cognitively

>>and a very sensory kid (hand flapper, visual stimmer, loves to touch

>>bare arms, etc.) He didn't display a sudden regression after any one

>>vaccination. His Herpesvirus 6 IgG was 160 and I'm told that normal

>>is 10. We've been doing the DAN thing for 1 year including GF/CF, MB

>>12 shots, and not seen any " big bang " improvement. The biggest thing

>>is that he has been toilet trained since August...and if we get

>>nothing else out of this journey, that will have been worth it.

>>

>>Since starting Valtrex he is REALLY hyper and we've seen big

>>regression behaviorially...not answering questions or following

>>directions very well, visual stims are really up, focus to task is

>>even worse than before. Verbal scripting (which was VERY high when

>>starting) is a bit reduced. Unfortunately, no rash or fever. He has

>>said that he doesn't feel good in the evening and seems to be gassy.

>>I've added activated charcoal once in a while.

>>

>>We took Diflucan for the first week and I've just requested a longer

>>term dose to accompany the Valtrex for however long we stay on it.

>>Maybe yeast is causing some of this?

>>

>>Life has really been tough the last couple of days. So my questions

>>for Stan...

>>

>>1) Do you know of kids being responders without displaying a rash?

>>1.5) Does this sound like it could be " healing regression " ?

>>2) Do you know of any older kids who have seen positive results?

>>3) How does his HV 6 level compare to responders that you know?

>>4) How long would you stay on Valtrex before deciding he isn't a

>>responder?

>>

>>I'm trying not to get discouraged until we pass days 21-40 but I'm

>>having a tough time.

>>

>>Thanks for your support.

>>

>>Sally

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Sally,

I would suspect that some of the behaviors you are seeing are yeast but I

see a lot of those behaviors if my son accidently gets anything with blue die.

I would definetly take off the blue coating. My son goes crazy and spaces with

food dyes. -

>

>Date: Mon Mar 06 11:31:57 CST 2006

>To: mb12 valtrex

>Subject: Re: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>

>>

>>Date: Mon Mar 06 11:31:57 CST 2006

>>To: mb12 valtrex

>>Subject: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>

>>Stan and all,

>>

>>Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

>>taking 500mg in am, and same before bed. He has just learned to

>>swallow small pills in applesauce so I'm cutting the pill into

>>quarters and not washing off the blue coating.

>>

>>Although he has some verbal skills, he is low functioning cognitively

>>and a very sensory kid (hand flapper, visual stimmer, loves to touch

>>bare arms, etc.) He didn't display a sudden regression after any one

>>vaccination. His Herpesvirus 6 IgG was 160 and I'm told that normal

>>is 10. We've been doing the DAN thing for 1 year including GF/CF, MB

>>12 shots, and not seen any " big bang " improvement. The biggest thing

>>is that he has been toilet trained since August...and if we get

>>nothing else out of this journey, that will have been worth it.

>>

>>Since starting Valtrex he is REALLY hyper and we've seen big

>>regression behaviorially...not answering questions or following

>>directions very well, visual stims are really up, focus to task is

>>even worse than before. Verbal scripting (which was VERY high when

>>starting) is a bit reduced. Unfortunately, no rash or fever. He has

>>said that he doesn't feel good in the evening and seems to be gassy.

>>I've added activated charcoal once in a while.

>>

>>We took Diflucan for the first week and I've just requested a longer

>>term dose to accompany the Valtrex for however long we stay on it.

>>Maybe yeast is causing some of this?

>>

>>Life has really been tough the last couple of days. So my questions

>>for Stan...

>>

>>1) Do you know of kids being responders without displaying a rash?

>>1.5) Does this sound like it could be " healing regression " ?

>>2) Do you know of any older kids who have seen positive results?

>>3) How does his HV 6 level compare to responders that you know?

>>4) How long would you stay on Valtrex before deciding he isn't a

>>responder?

>>

>>I'm trying not to get discouraged until we pass days 21-40 but I'm

>>having a tough time.

>>

>>Thanks for your support.

>>

>>Sally

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Sally,

I would suspect that some of the behaviors you are seeing are yeast but I

see a lot of those behaviors if my son accidently gets anything with blue die.

I would definetly take off the blue coating. My son goes crazy and spaces with

food dyes. -

>

>Date: Mon Mar 06 11:31:57 CST 2006

>To: mb12 valtrex

>Subject: Re: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>

>>

>>Date: Mon Mar 06 11:31:57 CST 2006

>>To: mb12 valtrex

>>Subject: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>

>>Stan and all,

>>

>>Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

>>taking 500mg in am, and same before bed. He has just learned to

>>swallow small pills in applesauce so I'm cutting the pill into

>>quarters and not washing off the blue coating.

>>

>>Although he has some verbal skills, he is low functioning cognitively

>>and a very sensory kid (hand flapper, visual stimmer, loves to touch

>>bare arms, etc.) He didn't display a sudden regression after any one

>>vaccination. His Herpesvirus 6 IgG was 160 and I'm told that normal

>>is 10. We've been doing the DAN thing for 1 year including GF/CF, MB

>>12 shots, and not seen any " big bang " improvement. The biggest thing

>>is that he has been toilet trained since August...and if we get

>>nothing else out of this journey, that will have been worth it.

>>

>>Since starting Valtrex he is REALLY hyper and we've seen big

>>regression behaviorially...not answering questions or following

>>directions very well, visual stims are really up, focus to task is

>>even worse than before. Verbal scripting (which was VERY high when

>>starting) is a bit reduced. Unfortunately, no rash or fever. He has

>>said that he doesn't feel good in the evening and seems to be gassy.

>>I've added activated charcoal once in a while.

>>

>>We took Diflucan for the first week and I've just requested a longer

>>term dose to accompany the Valtrex for however long we stay on it.

>>Maybe yeast is causing some of this?

>>

>>Life has really been tough the last couple of days. So my questions

>>for Stan...

>>

>>1) Do you know of kids being responders without displaying a rash?

>>1.5) Does this sound like it could be " healing regression " ?

>>2) Do you know of any older kids who have seen positive results?

>>3) How does his HV 6 level compare to responders that you know?

>>4) How long would you stay on Valtrex before deciding he isn't a

>>responder?

>>

>>I'm trying not to get discouraged until we pass days 21-40 but I'm

>>having a tough time.

>>

>>Thanks for your support.

>>

>>Sally

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Sally,

I would suspect that some of the behaviors you are seeing are yeast but I

see a lot of those behaviors if my son accidently gets anything with blue die.

I would definetly take off the blue coating. My son goes crazy and spaces with

food dyes. -

>

>Date: Mon Mar 06 11:31:57 CST 2006

>To: mb12 valtrex

>Subject: Re: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>

>>

>>Date: Mon Mar 06 11:31:57 CST 2006

>>To: mb12 valtrex

>>Subject: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>

>>Stan and all,

>>

>>Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

>>taking 500mg in am, and same before bed. He has just learned to

>>swallow small pills in applesauce so I'm cutting the pill into

>>quarters and not washing off the blue coating.

>>

>>Although he has some verbal skills, he is low functioning cognitively

>>and a very sensory kid (hand flapper, visual stimmer, loves to touch

>>bare arms, etc.) He didn't display a sudden regression after any one

>>vaccination. His Herpesvirus 6 IgG was 160 and I'm told that normal

>>is 10. We've been doing the DAN thing for 1 year including GF/CF, MB

>>12 shots, and not seen any " big bang " improvement. The biggest thing

>>is that he has been toilet trained since August...and if we get

>>nothing else out of this journey, that will have been worth it.

>>

>>Since starting Valtrex he is REALLY hyper and we've seen big

>>regression behaviorially...not answering questions or following

>>directions very well, visual stims are really up, focus to task is

>>even worse than before. Verbal scripting (which was VERY high when

>>starting) is a bit reduced. Unfortunately, no rash or fever. He has

>>said that he doesn't feel good in the evening and seems to be gassy.

>>I've added activated charcoal once in a while.

>>

>>We took Diflucan for the first week and I've just requested a longer

>>term dose to accompany the Valtrex for however long we stay on it.

>>Maybe yeast is causing some of this?

>>

>>Life has really been tough the last couple of days. So my questions

>>for Stan...

>>

>>1) Do you know of kids being responders without displaying a rash?

>>1.5) Does this sound like it could be " healing regression " ?

>>2) Do you know of any older kids who have seen positive results?

>>3) How does his HV 6 level compare to responders that you know?

>>4) How long would you stay on Valtrex before deciding he isn't a

>>responder?

>>

>>I'm trying not to get discouraged until we pass days 21-40 but I'm

>>having a tough time.

>>

>>Thanks for your support.

>>

>>Sally

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Crystal lite has nutrasweet in it and could also be a factor.

Re: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

Thanks for the suggestion. I'll try washing off the dye. I was doing that

initially and giving dissolving in Crystal Lite. He

doesn't like me messing with his lemonade:) He does have some dyes

as possible offenders on his allergy panel but I've never been able to make

the correlation based on behavior.

Sally

> >

> > Stan and all,

> >

> > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

> > taking 500mg in am, and same before bed. He has just learned to

> > swallow small pills in applesauce so I'm cutting the pill into

> > quarters and not washing off the blue coating.

> >

> > Although he has some verbal skills, he is low functioning

> cognitively

> > and a very sensory kid (hand flapper, visual stimmer, loves to

> touch

> > bare arms, etc.) He didn't display a sudden regression after any

> one

> > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

> normal

> > is 10. We've been doing the DAN thing for 1 year including

GF/CF,

> MB

> > 12 shots, and not seen any " big bang " improvement. The biggest

> thing

> > is that he has been toilet trained since August...and if we get

> > nothing else out of this journey, that will have been worth it.

> >

> > Since starting Valtrex he is REALLY hyper and we've seen big

> > regression behaviorially...not answering questions or following

> > directions very well, visual stims are really up, focus to task

is

> > even worse than before. Verbal scripting (which was VERY high

> when

> > starting) is a bit reduced. Unfortunately, no rash or fever. He

> has

> > said that he doesn't feel good in the evening and seems to be

> gassy.

> > I've added activated charcoal once in a while.

> >

> > We took Diflucan for the first week and I've just requested a

> longer

> > term dose to accompany the Valtrex for however long we stay on

> it.

> > Maybe yeast is causing some of this?

> >

> > Life has really been tough the last couple of days. So my

> questions

> > for Stan...

> >

> > 1) Do you know of kids being responders without displaying a rash?

> > 1.5) Does this sound like it could be " healing regression " ?

> > 2) Do you know of any older kids who have seen positive results?

> > 3) How does his HV 6 level compare to responders that you know?

> > 4) How long would you stay on Valtrex before deciding he isn't a

> > responder?

> >

> > I'm trying not to get discouraged until we pass days 21-40 but

I'm

> > having a tough time.

> >

> > Thanks for your support.

> >

> > Sally

> >

>

[Guest guest]

Yes, I know. Sam had cane sugar on his allergy panel so I've been

choosing non-sugar otions when possible. Also because he is such a

BIG boy and not very active. If I have a choice I go for splenda

rather than nutri-sweet. And if I'm making something from scratch I

use stevia or xylitol. It is so hard to know which is a bigger

problem. Thanks for your thought.

Sally

> > >

> > > Stan and all,

> > >

> > > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He

is

> > > taking 500mg in am, and same before bed. He has just learned to

> > > swallow small pills in applesauce so I'm cutting the pill into

> > > quarters and not washing off the blue coating.

> > >

> > > Although he has some verbal skills, he is low functioning

> > cognitively

> > > and a very sensory kid (hand flapper, visual stimmer, loves to

> > touch

> > > bare arms, etc.) He didn't display a sudden regression after any

> > one

> > > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

> > normal

> > > is 10. We've been doing the DAN thing for 1 year including

> GF/CF,

> > MB

> > > 12 shots, and not seen any " big bang " improvement. The biggest

> > thing

> > > is that he has been toilet trained since August...and if we get

> > > nothing else out of this journey, that will have been worth it.

> > >

> > > Since starting Valtrex he is REALLY hyper and we've seen big

> > > regression behaviorially...not answering questions or following

> > > directions very well, visual stims are really up, focus to task

> is

> > > even worse than before. Verbal scripting (which was VERY high

> > when

> > > starting) is a bit reduced. Unfortunately, no rash or fever.

He

> > has

> > > said that he doesn't feel good in the evening and seems to be

> > gassy.

> > > I've added activated charcoal once in a while.

> > >

> > > We took Diflucan for the first week and I've just requested a

> > longer

> > > term dose to accompany the Valtrex for however long we stay on

> > it.

> > > Maybe yeast is causing some of this?

> > >

> > > Life has really been tough the last couple of days. So my

> > questions

> > > for Stan...

> > >

> > > 1) Do you know of kids being responders without displaying a

rash?

> > > 1.5) Does this sound like it could be " healing regression " ?

> > > 2) Do you know of any older kids who have seen positive results?

> > > 3) How does his HV 6 level compare to responders that you know?

> > > 4) How long would you stay on Valtrex before deciding he isn't

a

> > > responder?

> > >

> > > I'm trying not to get discouraged until we pass days 21-40 but

> I'm

> > > having a tough time.

> > >

> > > Thanks for your support.

> > >

> > > Sally

> > >

> >

>

>

>

>

>

>

>

>

[Guest guest]

Do not give up! My son Logan is a responder to Valtrex and MB12. He

had a very subtle rash for a day. I had to search for the rash on

him and I doubt anyone else would have noticed it. I probably

wouldn't have noticed it myself. But... I had just seen a severe

version of it on my younger son who is also a Valtrex responder.

LOgan became very hyper for a while, but has calmed down. He also

had high HHV6 readings. Logan had an itchy yeasty rash on his stomach

and bottom. (Different from the Valtrex rash) Diflucan seemed to

help a bit, but then he stopped eating so we had to take him off of

it and load him with probiotics. He also had a small rash the size of

a quarter on his leg. It had red bumps in it. When that went away

the progress began. The bottom line is that you don't have to have a

major rash to see improvement with Valtrex. It can be subtle, small

and not even last long. Hang in there and good luck. : ) Jeanine

>

> Stan and all,

>

> Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

> taking 500mg in am, and same before bed. He has just learned to

> swallow small pills in applesauce so I'm cutting the pill into

> quarters and not washing off the blue coating.

>

> Although he has some verbal skills, he is low functioning

cognitively

> and a very sensory kid (hand flapper, visual stimmer, loves to

touch

> bare arms, etc.) He didn't display a sudden regression after any

one

> vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

normal

> is 10. We've been doing the DAN thing for 1 year including GF/CF,

MB

> 12 shots, and not seen any " big bang " improvement. The biggest

thing

> is that he has been toilet trained since August...and if we get

> nothing else out of this journey, that will have been worth it.

>

> Since starting Valtrex he is REALLY hyper and we've seen big

> regression behaviorially...not answering questions or following

> directions very well, visual stims are really up, focus to task is

> even worse than before. Verbal scripting (which was VERY high when

> starting) is a bit reduced. Unfortunately, no rash or fever. He

has

> said that he doesn't feel good in the evening and seems to be

gassy.

> I've added activated charcoal once in a while.

>

> We took Diflucan for the first week and I've just requested a

longer

> term dose to accompany the Valtrex for however long we stay on it.

> Maybe yeast is causing some of this?

>

> Life has really been tough the last couple of days. So my

questions

> for Stan...

>

> 1) Do you know of kids being responders without displaying a rash?

> 1.5) Does this sound like it could be " healing regression " ?

> 2) Do you know of any older kids who have seen positive results?

> 3) How does his HV 6 level compare to responders that you know?

> 4) How long would you stay on Valtrex before deciding he isn't a

> responder?

>

> I'm trying not to get discouraged until we pass days 21-40 but I'm

> having a tough time.

>

> Thanks for your support.

>

> Sally

>

[Guest guest]

Thanks for the words of encouragement. It's good to know that the

rash can be minimal and short lived. I'm thrilled to report that

washing off the coating has really improved things. I guess I now

know that blue dye is a BIG issue for my little man.

Sally

reducdyrehapp

> >

> > Stan and all,

> >

> > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

> > taking 500mg in am, and same before bed. He has just learned to

> > swallow small pills in applesauce so I'm cutting the pill into

> > quarters and not washing off the blue coating.

> >

> > Although he has some verbal skills, he is low functioning

> cognitively

> > and a very sensory kid (hand flapper, visual stimmer, loves to

> touch

> > bare arms, etc.) He didn't display a sudden regression after any

> one

> > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

> normal

> > is 10. We've been doing the DAN thing for 1 year including

GF/CF,

> MB

> > 12 shots, and not seen any " big bang " improvement. The biggest

> thing

> > is that he has been toilet trained since August...and if we get

> > nothing else out of this journey, that will have been worth it.

> >

> > Since starting Valtrex he is REALLY hyper and we've seen big

> > regression behaviorially...not answering questions or following

> > directions very well, visual stims are really up, focus to task

is

> > even worse than before. Verbal scripting (which was VERY high

when

> > starting) is a bit reduced. Unfortunately, no rash or fever. He

> has

> > said that he doesn't feel good in the evening and seems to be

> gassy.

> > I've added activated charcoal once in a while.

> >

> > We took Diflucan for the first week and I've just requested a

> longer

> > term dose to accompany the Valtrex for however long we stay on

it.

> > Maybe yeast is causing some of this?

> >

> > Life has really been tough the last couple of days. So my

> questions

> > for Stan...

> >

> > 1) Do you know of kids being responders without displaying a rash?

> > 1.5) Does this sound like it could be " healing regression " ?

> > 2) Do you know of any older kids who have seen positive results?

> > 3) How does his HV 6 level compare to responders that you know?

> > 4) How long would you stay on Valtrex before deciding he isn't a

> > responder?

> >

> > I'm trying not to get discouraged until we pass days 21-40 but

I'm

> > having a tough time.

> >

> > Thanks for your support.

> >

> > Sally

> >

>

[Guest guest]

Hi Sally,

If you are seeing a difference in removing the coating this quickly, you

might also want to remove food dyes from his diet. They are evil in my opinion,

but that's because my son turns into a maniac if he gets into something with

dyes. I'm glad you are seeing a difference. -

>

>Date: Wed Mar 08 10:29:51 CST 2006

>To: mb12 valtrex

>Subject: Re: Valtrex Day 14 - Regression, No Rash, No

Improvement...?'s

>Thanks for the words of encouragement. It's good to know that the

>rash can be minimal and short lived. I'm thrilled to report that

>washing off the coating has really improved things. I guess I now

>know that blue dye is a BIG issue for my little man.

>Sally

>

>

>reducdyrehapp

>> >

>> > Stan and all,

>> >

>> > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

>> > taking 500mg in am, and same before bed. He has just learned to

>> > swallow small pills in applesauce so I'm cutting the pill into

>> > quarters and not washing off the blue coating.

>> >

>> > Although he has some verbal skills, he is low functioning

>> cognitively

>> > and a very sensory kid (hand flapper, visual stimmer, loves to

>> touch

>> > bare arms, etc.) He didn't display a sudden regression after any

>> one

>> > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

>> normal

>> > is 10. We've been doing the DAN thing for 1 year including

>GF/CF,

>> MB

>> > 12 shots, and not seen any " big bang " improvement. The biggest

>> thing

>> > is that he has been toilet trained since August...and if we get

>> > nothing else out of this journey, that will have been worth it.

>> >

>> > Since starting Valtrex he is REALLY hyper and we've seen big

>> > regression behaviorially...not answering questions or following

>> > directions very well, visual stims are really up, focus to task

>is

>> > even worse than before. Verbal scripting (which was VERY high

>when

>> > starting) is a bit reduced. Unfortunately, no rash or fever. He

>> has

>> > said that he doesn't feel good in the evening and seems to be

>> gassy.

>> > I've added activated charcoal once in a while.

>> >

>> > We took Diflucan for the first week and I've just requested a

>> longer

>> > term dose to accompany the Valtrex for however long we stay on

>it.

>> > Maybe yeast is causing some of this?

>> >

>> > Life has really been tough the last couple of days. So my

>> questions

>> > for Stan...

>> >

>> > 1) Do you know of kids being responders without displaying a rash?

>> > 1.5) Does this sound like it could be " healing regression " ?

>> > 2) Do you know of any older kids who have seen positive results?

>> > 3) How does his HV 6 level compare to responders that you know?

>> > 4) How long would you stay on Valtrex before deciding he isn't a

>> > responder?

>> >

>> > I'm trying not to get discouraged until we pass days 21-40 but

>I'm

>> > having a tough time.

>> >

>> > Thanks for your support.

>> >

>> > Sally

>> >

>>

>

>

>

>

>

>

>

>

>

[Guest guest]

Very glad to hear that! Keep us posted?

Anne

> > >

> > > Stan and all,

> > >

> > > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He

is

> > > taking 500mg in am, and same before bed. He has just learned to

> > > swallow small pills in applesauce so I'm cutting the pill into

> > > quarters and not washing off the blue coating.

> > >

> > > Although he has some verbal skills, he is low functioning

> > cognitively

> > > and a very sensory kid (hand flapper, visual stimmer, loves to

> > touch

> > > bare arms, etc.) He didn't display a sudden regression after

any

> > one

> > > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

> > normal

> > > is 10. We've been doing the DAN thing for 1 year including

> GF/CF,

> > MB

> > > 12 shots, and not seen any " big bang " improvement. The biggest

> > thing

> > > is that he has been toilet trained since August...and if we get

> > > nothing else out of this journey, that will have been worth it.

> > >

> > > Since starting Valtrex he is REALLY hyper and we've seen big

> > > regression behaviorially...not answering questions or following

> > > directions very well, visual stims are really up, focus to task

> is

> > > even worse than before. Verbal scripting (which was VERY high

> when

> > > starting) is a bit reduced. Unfortunately, no rash or fever.

He

> > has

> > > said that he doesn't feel good in the evening and seems to be

> > gassy.

> > > I've added activated charcoal once in a while.

> > >

> > > We took Diflucan for the first week and I've just requested a

> > longer

> > > term dose to accompany the Valtrex for however long we stay on

> it.

> > > Maybe yeast is causing some of this?

> > >

> > > Life has really been tough the last couple of days. So my

> > questions

> > > for Stan...

> > >

> > > 1) Do you know of kids being responders without displaying a

rash?

> > > 1.5) Does this sound like it could be " healing regression " ?

> > > 2) Do you know of any older kids who have seen positive results?

> > > 3) How does his HV 6 level compare to responders that you know?

> > > 4) How long would you stay on Valtrex before deciding he isn't

a

> > > responder?

> > >

> > > I'm trying not to get discouraged until we pass days 21-40 but

> I'm

> > > having a tough time.

> > >

> > > Thanks for your support.

> > >

> > > Sally

> > >

> >

>

[Guest guest]

Hi Sally,

I've noticed a lot of headers that are responding to your post, which is nice.

Forgive me I

am just repeating what you may have already heard.

First, yes I would get back on Diflucan asap. Since you are noticing some

positive gains

mixed with a regression, I would keep going --but with Diflucan onboard. The

afternoon

discomfort could be yeast as well. I'm assuming the discomfort is from the gut

if you are

adding activated charcoal. I can't stress an antifungal when doing Valtrex

enough.

>1) Do you know of kids being responders without displaying a rash?

25%+ of the responders do not see a rash, according to polls. Typical

non-responders

don't see anything at all from Valtrex (if you can believe that) or they don't

see ANY gains

in the first 45 days.

> 2) Do you know of any older kids who have seen positive results?

Yes. I've read about teenagers who have had positive results from it. The

medical

literature has several recoveries based on herpes stain viruses in teenagers....

and I'm

assuming they used Valtrex or acyclovir. My guess is Valtrex.

> 3) How does his HV 6 level compare to responders that you know?

I've seen recoveries with NO HHV levels at all. The values mean very little to

me as far as

who is a responder and who isn't.

> 4) How long would you stay on Valtrex before deciding he isn't a

> responder?

I personally would stay on at least 45 days of both Valtrex and a good

antifungal. Longer

if you see any positive responses mixed in with your healing-regression.

You've come this far, I wouldn't stop now.

- Stan

>

> Stan and all,

>

> Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

> taking 500mg in am, and same before bed. He has just learned to

> swallow small pills in applesauce so I'm cutting the pill into

> quarters and not washing off the blue coating.

>

> Although he has some verbal skills, he is low functioning cognitively

> and a very sensory kid (hand flapper, visual stimmer, loves to touch

> bare arms, etc.) He didn't display a sudden regression after any one

> vaccination. His Herpesvirus 6 IgG was 160 and I'm told that normal

> is 10. We've been doing the DAN thing for 1 year including GF/CF, MB

> 12 shots, and not seen any " big bang " improvement. The biggest thing

> is that he has been toilet trained since August...and if we get

> nothing else out of this journey, that will have been worth it.

>

> Since starting Valtrex he is REALLY hyper and we've seen big

> regression behaviorially...not answering questions or following

> directions very well, visual stims are really up, focus to task is

> even worse than before. Verbal scripting (which was VERY high when

> starting) is a bit reduced. Unfortunately, no rash or fever. He has

> said that he doesn't feel good in the evening and seems to be gassy.

> I've added activated charcoal once in a while.

>

> We took Diflucan for the first week and I've just requested a longer

> term dose to accompany the Valtrex for however long we stay on it.

> Maybe yeast is causing some of this?

>

> Life has really been tough the last couple of days. So my questions

> for Stan...

>

> 1) Do you know of kids being responders without displaying a rash?

> 1.5) Does this sound like it could be " healing regression " ?

> 2) Do you know of any older kids who have seen positive results?

> 3) How does his HV 6 level compare to responders that you know?

> 4) How long would you stay on Valtrex before deciding he isn't a

> responder?

>

> I'm trying not to get discouraged until we pass days 21-40 but I'm

> having a tough time.

>

> Thanks for your support.

>

> Sally

>

[Guest guest]

Folks, typicallly the healing-regression has a beginning and an end. As long as

you have

the yeast under control it commonly just stops as quickly as it starts.

And yes, don't be suprised if you see gains mixed in with the

healing-regression. It

typically works that way. I can't tell you how often I hear, " I'm not sure if

it's the Valtrex,

but I'm seeing <insert positive response here>.... and then the regression calms

down and

the gains continue.

Just take it one day at a time and keep us posted. We'll help you through it.

- Stan

>

> I can understand your frustration. My son has been on a lower dose than

> yours of valtrex now for 13 days now. I have not seen any thing really

> positive or different. He does seem to be having a little bit more fits and

> seems to notice more things around him. I dont know if that is from the

> valtrex or not. However, I am going to continue on with it through the 6

> week, period. My doctor wants him on it until our next appointment in May.

> So I dont know what I am going to do!!!!! So , hang in there. R.

>

>

> [Norton AntiSpam] Valtrex Day 14 - Regression, No

> Rash, No Improvement...?'s

>

>

> Stan and all,

>

> Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He is

> taking 500mg in am, and same before bed. He has just learned to

> swallow small pills in applesauce so I'm cutting the pill into

> quarters and not washing off the blue coating.

>

> Although he has some verbal skills, he is low functioning cognitively

> and a very sensory kid (hand flapper, visual stimmer, loves to touch

> bare arms, etc.) He didn't display a sudden regression after any one

> vaccination. His Herpesvirus 6 IgG was 160 and I'm told that normal

> is 10. We've been doing the DAN thing for 1 year including GF/CF, MB

> 12 shots, and not seen any " big bang " improvement. The biggest thing

> is that he has been toilet trained since August...and if we get

> nothing else out of this journey, that will have been worth it.

>

> Since starting Valtrex he is REALLY hyper and we've seen big

> regression behaviorially...not answering questions or following

> directions very well, visual stims are really up, focus to task is

> even worse than before. Verbal scripting (which was VERY high when

> starting) is a bit reduced. Unfortunately, no rash or fever. He has

> said that he doesn't feel good in the evening and seems to be gassy.

> I've added activated charcoal once in a while.

>

> We took Diflucan for the first week and I've just requested a longer

> term dose to accompany the Valtrex for however long we stay on it.

> Maybe yeast is causing some of this?

>

> Life has really been tough the last couple of days. So my questions

> for Stan...

>

> 1) Do you know of kids being responders without displaying a rash?

> 1.5) Does this sound like it could be " healing regression " ?

> 2) Do you know of any older kids who have seen positive results?

> 3) How does his HV 6 level compare to responders that you know?

> 4) How long would you stay on Valtrex before deciding he isn't a

> responder?

>

> I'm trying not to get discouraged until we pass days 21-40 but I'm

> having a tough time.

>

> Thanks for your support.

>

> Sally

>

>

>

>

>

>

>

[Guest guest]

It's a good suggestion Anne.

- Stan

>

> Sally,

>

> Why don't you try washing the blue dye off? If I were you, I would

> want to know if that was affecting my son. Some of our kids react

> terribly to dyes. It seems to me that you could wash the dye off

> and still give it in pill form.

>

> Anne

>

[Guest guest]

Hi Anne and Sally,

I'm a fan of three times a day. I have heard of people doing more, but I'm not

convinced

that more is actually worth the effort, but I do seem to see better results from

three times

a day compared to two times a day.

- Stan

> > > >

> > > > Stan and all,

> > > >

> > > > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He

> is

> > > > taking 500mg in am, and same before bed. He has just learned

> to

> > > > swallow small pills in applesauce so I'm cutting the pill into

> > > > quarters and not washing off the blue coating.

> > > >

> > > > Although he has some verbal skills, he is low functioning

> > > cognitively

> > > > and a very sensory kid (hand flapper, visual stimmer, loves to

> > > touch

> > > > bare arms, etc.) He didn't display a sudden regression after

> any

> > > one

> > > > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

> > > normal

> > > > is 10. We've been doing the DAN thing for 1 year including

> > GF/CF,

> > > MB

> > > > 12 shots, and not seen any " big bang " improvement. The

> biggest

> > > thing

> > > > is that he has been toilet trained since August...and if we

> get

> > > > nothing else out of this journey, that will have been worth it.

> > > >

> > > > Since starting Valtrex he is REALLY hyper and we've seen big

> > > > regression behaviorially...not answering questions or

> following

> > > > directions very well, visual stims are really up, focus to

> task

> > is

> > > > even worse than before. Verbal scripting (which was VERY high

> > > when

> > > > starting) is a bit reduced. Unfortunately, no rash or fever.

> He

> > > has

> > > > said that he doesn't feel good in the evening and seems to be

> > > gassy.

> > > > I've added activated charcoal once in a while.

> > > >

> > > > We took Diflucan for the first week and I've just requested a

> > > longer

> > > > term dose to accompany the Valtrex for however long we stay on

> > > it.

> > > > Maybe yeast is causing some of this?

> > > >

> > > > Life has really been tough the last couple of days. So my

> > > questions

> > > > for Stan...

> > > >

> > > > 1) Do you know of kids being responders without displaying a

> rash?

> > > > 1.5) Does this sound like it could be " healing regression " ?

> > > > 2) Do you know of any older kids who have seen positive

> results?

> > > > 3) How does his HV 6 level compare to responders that you know?

> > > > 4) How long would you stay on Valtrex before deciding he isn't

> a

> > > > responder?

> > > >

> > > > I'm trying not to get discouraged until we pass days 21-40 but

> > I'm

> > > > having a tough time.

> > > >

> > > > Thanks for your support.

> > > >

> > > > Sally

> > > >

> > >

> >

>

[Guest guest]

Try honey. It's a monosaccrite that is very easy to digest.

- Stan

> > > >

> > > > Stan and all,

> > > >

> > > > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son. He

> is

> > > > taking 500mg in am, and same before bed. He has just learned to

> > > > swallow small pills in applesauce so I'm cutting the pill into

> > > > quarters and not washing off the blue coating.

> > > >

> > > > Although he has some verbal skills, he is low functioning

> > > cognitively

> > > > and a very sensory kid (hand flapper, visual stimmer, loves to

> > > touch

> > > > bare arms, etc.) He didn't display a sudden regression after any

> > > one

> > > > vaccination. His Herpesvirus 6 IgG was 160 and I'm told that

> > > normal

> > > > is 10. We've been doing the DAN thing for 1 year including

> > GF/CF,

> > > MB

> > > > 12 shots, and not seen any " big bang " improvement. The biggest

> > > thing

> > > > is that he has been toilet trained since August...and if we get

> > > > nothing else out of this journey, that will have been worth it.

> > > >

> > > > Since starting Valtrex he is REALLY hyper and we've seen big

> > > > regression behaviorially...not answering questions or following

> > > > directions very well, visual stims are really up, focus to task

> > is

> > > > even worse than before. Verbal scripting (which was VERY high

> > > when

> > > > starting) is a bit reduced. Unfortunately, no rash or fever.

> He

> > > has

> > > > said that he doesn't feel good in the evening and seems to be

> > > gassy.

> > > > I've added activated charcoal once in a while.

> > > >

> > > > We took Diflucan for the first week and I've just requested a

> > > longer

> > > > term dose to accompany the Valtrex for however long we stay on

> > > it.

> > > > Maybe yeast is causing some of this?

> > > >

> > > > Life has really been tough the last couple of days. So my

> > > questions

> > > > for Stan...

> > > >

> > > > 1) Do you know of kids being responders without displaying a

> rash?

> > > > 1.5) Does this sound like it could be " healing regression " ?

> > > > 2) Do you know of any older kids who have seen positive results?

> > > > 3) How does his HV 6 level compare to responders that you know?

> > > > 4) How long would you stay on Valtrex before deciding he isn't

> a

> > > > responder?

> > > >

> > > > I'm trying not to get discouraged until we pass days 21-40 but

> > I'm

> > > > having a tough time.

> > > >

> > > > Thanks for your support.

> > > >

> > > > Sally

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I recenlty heard that agave nectar is a good natural sweetener,but

haven't tried it yet.

> > > > >

> > > > > Stan and all,

> > > > >

> > > > > Today is Day 14 on Valtrex for my 6 year old, 72 lb. son.

He

> > is

> > > > > taking 500mg in am, and same before bed. He has just

learned to

> > > > > swallow small pills in applesauce so I'm cutting the pill

into

> > > > > quarters and not washing off the blue coating.

> > > > >

> > > > > Although he has some verbal skills, he is low functioning

> > > > cognitively

> > > > > and a very sensory kid (hand flapper, visual stimmer, loves

to

> > > > touch

> > > > > bare arms, etc.) He didn't display a sudden regression

after any

> > > > one

> > > > > vaccination. His Herpesvirus 6 IgG was 160 and I'm told

that

> > > > normal

> > > > > is 10. We've been doing the DAN thing for 1 year including

> > > GF/CF,

> > > > MB

> > > > > 12 shots, and not seen any " big bang " improvement. The

biggest

> > > > thing

> > > > > is that he has been toilet trained since August...and if we

get

> > > > > nothing else out of this journey, that will have been worth

it.

> > > > >

> > > > > Since starting Valtrex he is REALLY hyper and we've seen

big

> > > > > regression behaviorially...not answering questions or

following

> > > > > directions very well, visual stims are really up, focus to

task

> > > is

> > > > > even worse than before. Verbal scripting (which was VERY

high

> > > > when

> > > > > starting) is a bit reduced. Unfortunately, no rash or

fever.

> > He

> > > > has

> > > > > said that he doesn't feel good in the evening and seems to

be

> > > > gassy.

> > > > > I've added activated charcoal once in a while.

> > > > >

> > > > > We took Diflucan for the first week and I've just requested

a

> > > > longer

> > > > > term dose to accompany the Valtrex for however long we stay

on

> > > > it.

> > > > > Maybe yeast is causing some of this?

> > > > >

> > > > > Life has really been tough the last couple of days. So my

> > > > questions

> > > > > for Stan...

> > > > >

> > > > > 1) Do you know of kids being responders without displaying

a

> > rash?

> > > > > 1.5) Does this sound like it could be " healing regression " ?

> > > > > 2) Do you know of any older kids who have seen positive

results?

> > > > > 3) How does his HV 6 level compare to responders that you

know?

> > > > > 4) How long would you stay on Valtrex before deciding he

isn't

> > a

> > > > > responder?

> > > > >

> > > > > I'm trying not to get discouraged until we pass days 21-40

but

> > > I'm

> > > > > having a tough time.

> > > > >

> > > > > Thanks for your support.

> > > > >

> > > > > Sally

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >