Re: Re:Tina chit chat room hello everyone

[Guest guest]

Re:Tina chit chat room hello everyone

Tina,

This is not your fault. Nothing you could have done differenty would have

changed the outcome. It is an occurance of nature, that you had nothing to

do with. It is perfectly normal to feel that it is your fault. I felt that

way. I even thought that 's delays were caused because I let her fall

out of a window sill when she was just two years old. (I did not find out

she was mosic until later). Anyway, we have no answers, so it is natural

for us to blame ourselves. Please don't do this to yourself. It is not

your fault. Your post shows that you are doing EVERYTHING humanly possible

for your baby. Your are doing just what every exceptionally good parent

does....you are there, your are giving your love, and your are making

tremendous sacrafices. There is no more for you to do. There is nothing

more you CAN do. You should be very proud of yourself. You must stay

strong (as I know you will) for your little one. You sound like one hell of

a lady to me!! Be proud, hold your head up high, and pat yourself on the

back for all your strenghths. Congratulations on the news that your baby

will be home soon. Things will settle in more for you and Crystal's dad

then. The pain will lessen with time. Your joys will be greater and

greater as time goes on.

Marie (Mom to 6 MDS, and her 9 year old big sister.

>PLEASE CAN SOMEONE HELP ME WITH THIS PROBLEM THAT I AM

>HAVING I FEEL THAT IT IS MY FAULT THAT ALL THIS STUFF

>HAPPENED TO MY LITTLE GIRL I DON'T KNOW WNAT DO ANY

>MORE OR WNAT TO SAY THE ONLY THING I CAN DO IS LOVE

>HER AND LET HER KNOW THAT I AM THERE FOR HER BUT SOME

>TIMES I THINK THAT SHE NEED MORE THEN THAT I DON'T

>KNOW WANT ELSE I CAN GIVE HER SHE HARDLY SEE HER FATHE

>RBECAUSE HE TRAVELS BACK AND FORTH TO WORK FROM

>GETTSYBURG TO HERSHEY WHERE I AM STAYING AT AND IT

>MAKES IT HARD ON HER AND HARD ON ME ME AND HIM HARDLY

>SPEND ANY TIME WITH EACH OTHER ANY MORE PLEASE

>SOMEBODY HELP ME OUT HOPE TO HER FROM YOU ALL REAL

>SOON.

>

>TINA(MOTHER)DEREK(FATHER) TO CRYSTAL 5 MONTHS OLD WITH

>MDS, HOLE IN HER HEART, CRONIC LUNG DIEASE, PREMATURE,

>DIAHFRAMTIC HERNIA, TRACESTONMY, AND GASTONMY TUBE.

>

>

>FROM TINA

>

>=====

>

>>

[Guest guest]

[This message contained attachments]

[Guest guest]

Wow, from all the diagnosis it is a miracle that she is alive. I am

currently working with a 5 month old Diaphramatic Hernia infant. They do

have chronic respiratory problems. Add on to that the prematurity, which

comes hand in hand with respriratory distress syndrome. But I am sure the

docs have already told you all this.

First, prematurity is NOT your fault! I had 2 premies.... following 4 lost

pregancies. I was on bed rest, did everything the docs said and they were

STILL early. It is usually a enexpected event, that can not be prevented.

The medical conditions that you are dealing with just sorta come with the

territory of a premature baby (except the hernia, that is an added

complication). There is no one to blame here, especially not you. I felt

like my body had failed me and my kids... why couldn't I carry to term

like most other mothers. Why did my babies have to suffer this way. There

is defiently the feelings of guilt.... more so for me because I knew they

would be premie before I even got pregnant. So in my case it was a choice

to put my babies through that. Selfish on my part... maybe ( I am sure

some would think so ) but I now have 2 very beautiful and releatively

healthy childern. The second by the way was not planned, but a gift from

above. We had chosen after the first survived (andra) that we would be

greatful and not push our luck. Needless to say, we wouldn't trade

in for the world.

I degress on occassion.... Back to the subject. Guilt..... All you can do

is to accept the fact that your beautiful daughter is here now, and love

her as much as humanly possible. She is a fighter. All premies are in

order to survive. You will be shocked at how well she will do given time,

love and patience.

Keep in touch,

, mom to .... 3 weeks and counting to genetic testing (Oct 12)

and .... driving mom crazy... part of next post!

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>

> To: MosaicDSonelist

> Subject: Re:Tina chit chat room hello everyone

> Date: Monday, September 27, 1999 8:58 PM

>

>

>

>

>

> HELLO EVERYONE SORRY I HAVE BEEN SO BUSY LATING BE

> OVER AT THE HOSPITAL WITH MY DAUGHTER AND LEARNING HER

> CARE.

> THANK YOU EVERYONE FOR SENDING INFORMATION AND WRITING

> TO ME IT HAS REALLY HELP ME OUT WITH MY DAUGHTER. I

> HOPE THAT YOU ALL WILL CONTINUE TO E-MAIL AND TO WRITE

> ME.

> WELL GUESS WHAT IT 4 WEEKS MY DAUGHTER WILL BE COMING

> HOME AND I CAN'T WAIT SHE COMES HOME OCTOBER 27 AND I

> AM GETTING SO EXCITED. SHE IS DOING REALLY WELL NOW

> SHE HAS EMPRESSED ALL THE DOCTORS AND NURSES BECAUSE

> EVERYBODY KEPT TELLING ME THAT MY DAUGHTER WOULDN'T

> MAKE IT THROUGH THE WEEK HERE IT IS 5 MONTHS LATER AND

> SHE IS FINE AND LIVING IT UP.

> IF ANY ONE WOULD LIKE TO WRITE ME OR BE PEN-PALS HER

> IS MY ADDRESS 2075 OLD HARRISBURG ROAD GETTYSBURG,PA

> 17325 PLEASE FEEL FREE TO WRITE ME ANY TIME I AM A

> GREAT PEN-PAL I HOPE TAT SOME OF YOU WILL BE NICE AND

> LET ME HAVE YOUR ADDRESS SO I CAN WRITE YU DON'T WORRY

> I AM A VERY NICE PERSON.

> I AM GLAD THAT I HAVE PEOPLE THAT I CAN TALK TO I

> DON'T KNOW WHAT I WOULD DO IF I WOULD HAVE NEVER FOUND

> THIS ON THE INERNET. ALL YOU GUYS HAVE BEEN SO

> WONDERFUL TO HELP ME OUT AND TO SPEAK TO YOU THANK YOU

> SO MUCH.

> PLEASE KEEP THE E-MAILS COMUNG AND I WILL KEEP MY

> COMING IF I HAVEN'T ANSWERED YOUR E-MAIL I WILL AS

> SOON AS POSSIBLE.

> PLEASE CAN SOMEONE HELP ME WITH THIS PROBLEM THAT I AM

> HAVING I FEEL THAT IT IS MY FAULT THAT ALL THIS STUFF

> HAPPENED TO MY LITTLE GIRL I DON'T KNOW WNAT DO ANY

> MORE OR WNAT TO SAY THE ONLY THING I CAN DO IS LOVE

> HER AND LET HER KNOW THAT I AM THERE FOR HER BUT SOME

> TIMES I THINK THAT SHE NEED MORE THEN THAT I DON'T

> KNOW WANT ELSE I CAN GIVE HER SHE HARDLY SEE HER FATHE

> RBECAUSE HE TRAVELS BACK AND FORTH TO WORK FROM

> GETTSYBURG TO HERSHEY WHERE I AM STAYING AT AND IT

> MAKES IT HARD ON HER AND HARD ON ME ME AND HIM HARDLY

> SPEND ANY TIME WITH EACH OTHER ANY MORE PLEASE

> SOMEBODY HELP ME OUT HOPE TO HER FROM YOU ALL REAL

> SOON.

>

> TINA(MOTHER)DEREK(FATHER) TO CRYSTAL 5 MONTHS OLD WITH

> MDS, HOLE IN HER HEART, CRONIC LUNG DIEASE, PREMATURE,

> DIAHFRAMTIC HERNIA, TRACESTONMY, AND GASTONMY TUBE.

>

>

> FROM TINA

>

> =====

>

>