Re: What step next to take with Sam

[Guest guest]

Hi Kirsty

I am doing olive leaf extract & Enhansa and also giving isoprinosine (following Dr Cheneys pulsing schedule) http://www.anapsid.org/cnd/diagnosis/cheneyis.html

I am going to be starting LDM-100 with Harry soon.

x

To: Autism-Biomedical-Europe From: greenkirsty1@...Date: Wed, 27 Apr 2011 10:23:39 +0100Subject: What step next to take with Sam

I am doing AC chelation, and Scotson. But i still feel that there is still something else going on with Sam.

I have never tackled viruses with Sam and was wondering what others have done about this?

Kirsty

x

[Guest guest]

We are looking to trial valtrex but understand anti-virals on their own are not the root cause rather you have to somehow get the immune system right (as this would remove viruses anyway)

And 50 rounds of cutler normally recommended first

To: autism-biomedical-europe From: michelle0471@...Date: Wed, 27 Apr 2011 09:33:04 +0000Subject: RE: What step next to take with Sam

Hi Kirsty I am doing olive leaf extract & Enhansa and also giving isoprinosine (following Dr Cheneys pulsing schedule) http://www.anapsid.org/cnd/diagnosis/cheneyis.html I am going to be starting LDM-100 with Harry soon. x

To: Autism-Biomedical-Europe From: greenkirsty1@...Date: Wed, 27 Apr 2011 10:23:39 +0100Subject: What step next to take with Sam

I am doing AC chelation, and Scotson. But i still feel that there is still something else going on with Sam.

I have never tackled viruses with Sam and was wondering what others have done about this?

Kirsty

x

[Guest guest]

Also - looking at amino acid, urine, and stooll test - do u have any indicators that are not within the green/ normal zones?

These all need normalising imho

To: autism-biomedical-europe From: peter_2_@...Date: Wed, 27 Apr 2011 09:38:01 +0000Subject: RE: What step next to take with Sam

We are looking to trial valtrex but understand anti-virals on their own are not the root cause rather you have to somehow get the immune system right (as this would remove viruses anyway) And 50 rounds of cutler normally recommended first

To: autism-biomedical-europe From: michelle0471@...Date: Wed, 27 Apr 2011 09:33:04 +0000Subject: RE: What step next to take with Sam

Hi Kirsty I am doing olive leaf extract & Enhansa and also giving isoprinosine (following Dr Cheneys pulsing schedule) http://www.anapsid.org/cnd/diagnosis/cheneyis.html I am going to be starting LDM-100 with Harry soon. x

To: Autism-Biomedical-Europe From: greenkirsty1@...Date: Wed, 27 Apr 2011 10:23:39 +0100Subject: What step next to take with Sam

I am doing AC chelation, and Scotson. But i still feel that there is still something else going on with Sam.

I have never tackled viruses with Sam and was wondering what others have done about this?

Kirsty

x

[Guest guest]

Dr will be discussing antivirals and immune modulation in great detail at TA conference. Are you with a doc who can prescribe?

Our son has always been a good responder to most natural antivirals, but having said that my biggest regret, actually only regret, of 6 years of biomed has been not starting rx treatments sooner!! Valtrex did more for us in 2 months than OLE did in 2 years.

Also things like Ketotifen – rx antihistamine, or Neuroprotek, as it is critical to keep mast cells calm/deactivated. Any immune stimulant, like reactive foods etc, will activate mast cells in our kids (because they are already desensitised). Activated mast cells release inflammatory molecules, which in turn reactivate viruses, keep BBB open etc. Dr Theoharides is doing some fab research on that, he will be talking about it at the conference J.

I highly recommend Goldberg's book http://www.amazon.co.uk/Myth-Autism-Misunderstood-Epidemic-Destroying/dp/1616081716/ref=sr_1_1?ie=UTF8 & s=books & qid=1303898706 & sr=8-1 –

Also worth following Bradstreets blog for latest developments http://drbradstreet.org/

If you cannot or don't want to go rx route it is worth focusing for pharm grade supplements, like Enhansa or Artesunate/Artemisia (there is a pharm-grade extract, available as rx from Breakspear), Neuoprotek etc.

Btw chelators are great antivirals ! Partly through through reducing cell oxidative stress, and partly through directly disintegrating viruses and inhibiting further replication.

Also anything that boosts gsh that your child is not sensitive to... (kirkman td-gsh has been great for us).

Other antiviral things that were helpful over the years: OLE, ldm-100, monolaurin, some hpthic remedies that I forgot names of J - all those were good for us but I view them as support sups until you can get big guns on board.

P.S. be carefully when considering `immune boosters' – just "boosting" immune system may be contraindicated in many kids. Many `immune boosters' act via activating inflammatory pathways, which is the last thing our kids need.

Natasa x

>> I am doing AC chelation, and Scotson. But i still feel that there is still something else going on with Sam.> I have never tackled viruses with Sam and was wondering what others have done about this?> > Kirsty> x>

[Guest guest]

Natasa,

I wondered whether elderberry extract increased inflammation or whether it

worked some other way?

Margaret

> >

> > I am doing AC chelation, and Scotson. But i still feel that there is

> still something else going on with Sam.

> > I have never tackled viruses with Sam and was wondering what others

> have done about this?

> >

> > Kirsty

> > x

> >

>

[Guest guest]

Hi KirstyYou might also consider seeing Sasha the Russian Doctor who comes to Advance every three months... He looks at oxygenation levels and has a very effective blend of amino acids.. I have not used him for Tatijana, however I know that some on the group doing TST have seen him already.

Best WishesTracey

 

I am doing AC chelation, and Scotson. But i still feel that there is still something else going on with Sam.

I have never tackled viruses with Sam and was wondering what others have done about this?Kirstyx

[Guest guest]

potentially yes, although data is conflicting. I could only find few

studies, all in vitro looking at human blood-derived cells and coming up

with different results. Some found decreases in nfkb (a crucial

proinflammatory cytokine 'bad guy') and th1/th2 modulation towards th1,

which sounded very good, but some found increases in tnf-alpha and il-6

etc cytokines (not good at all).

> > >

> > > I am doing AC chelation, and Scotson. But i still feel that there

is

> > still something else going on with Sam.

> > > I have never tackled viruses with Sam and was wondering what

others

> > have done about this?

> > >

> > > Kirsty

> > > x

> > >

> >

>

[Guest guest]

Hello Kirsty.

WE've tried viral treatment in the past with OLE,a few other thinks I can't

remember, recently immunovir ,tried for a few months.I think it was helping to

my son, no real respiratory problems he had during this period except

hyperventilation, but this is different matter.

I read the DrGoldberg's " The Myth of Autism " book , it made a lot of sense to

me.I am considering anti viral treatment with Valtrex, dr Goyal mentioned once.

After completing the Genomic test in Yasko protocol, I talked to Dr Mullan

and asked her about antiviral treatment.She strongly said that my son's first

issue to clear the gut,parasities and review his diet.I agreed.I think after

strength the body, the second stage they are dealing with viruses,perhaps that

stage if i can reach I will consider antiviral therapy with medication

..In the past we had a test fromImmunosciences lab -regarding the viral issues

and my son showed viral weakness,he had Herpes, I am sure he still has.Perhaps

you can try that sort of test to see if Sam has some weaknesses.

All the best

Nevin

-- In Autism-Biomedical-Europe , B wrote:

>

>

> We are looking to trial valtrex but understand anti-virals on their own are

not the root cause rather you have to somehow get the immune system right (as

this would remove viruses anyway)

>

> And 50 rounds of cutler normally recommended first

>

>

>

>

>

> To: autism-biomedical-europe

> From: michelle0471@...

> Date: Wed, 27 Apr 2011 09:33:04 +0000

> Subject: RE: What step next to take with Sam

>

>

>

>

>

>

>

>

> Hi Kirsty

>

> I am doing olive leaf extract & Enhansa and also giving isoprinosine

(following Dr Cheneys pulsing schedule)

http://www.anapsid.org/cnd/diagnosis/cheneyis.html

>

> I am going to be starting LDM-100 with Harry soon.

>

> x

>

>

>

> To: Autism-Biomedical-Europe

> From: greenkirsty1@...

> Date: Wed, 27 Apr 2011 10:23:39 +0100

> Subject: What step next to take with Sam

>

>

>

>

>

>

> I am doing AC chelation, and Scotson. But i still feel that there is still

something else going on with Sam.

> I have never tackled viruses with Sam and was wondering what others have done

about this?

>

>

> Kirsty

> x

>

[Guest guest]

Thank you. So it's a bit confusing when to use it - I remember reading that

perhaps it's not a good idea to use it for 'flu - but it sounds as though

elderberry is potentially auseful tool. I use Sambucus from Mandi - elderberry

products from other places all seem to contain sugar and Sambucus doesn't.

Margaret

> > > >

> > > > I am doing AC chelation, and Scotson. But i still feel that there

> is

> > > still something else going on with Sam.

> > > > I have never tackled viruses with Sam and was wondering what

> others

> > > have done about this?

> > > >

> > > > Kirsty

> > > > x

> > > >

> > >

> >

>

[Guest guest]

echinacea is another tricky one, acts as both anti-inflammatory and very

PROinflammatory in some circumstances, imo need to be very cautious if

using it

Natasa

> > > > >

> > > > > I am doing AC chelation, and Scotson. But i still feel that

there

> > is

> > > > still something else going on with Sam.

> > > > > I have never tackled viruses with Sam and was wondering what

> > others

> > > > have done about this?

> > > > >

> > > > > Kirsty

> > > > > x

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I did a three week course of OLE with a couple of years back, with

monolaurin etc. Didn't see any change.

I use Enhansa currently off round and have been for about three weeks.

No way will I go near LDM-100. Too scared to touch that stuff!!!!

You seen on youtube what it did to Tim?!

Kirsty

x

>

>

> Hi Kirsty

>

> I am doing olive leaf extract & Enhansa and also giving isoprinosine

(following Dr Cheneys pulsing schedule)

http://www.anapsid.org/cnd/diagnosis/cheneyis.html

>

> I am going to be starting LDM-100 with Harry soon.

>

> x

>

>

>

> To: Autism-Biomedical-Europe

> From: greenkirsty1@...

> Date: Wed, 27 Apr 2011 10:23:39 +0100

> Subject: What step next to take with Sam

>

>

>

>

>

>

>

>

> I am doing AC chelation, and Scotson. But i still feel that there is still

something else going on with Sam.

> I have never tackled viruses with Sam and was wondering what others have done

about this?

>

>

> Kirsty

> x

>

[Guest guest]

Have not done any tests in ages actually, apart from hair test for chelation.

K

xx

>

>

> Also - looking at amino acid, urine, and stooll test - do u have any

indicators that are not within the green/ normal zones?

>

> These all need normalising imho

>

>

>

> To: autism-biomedical-europe

> From: peter_2_@...

> Date: Wed, 27 Apr 2011 09:38:01 +0000

> Subject: RE: What step next to take with Sam

>

>

>

>

>

>

>

>

> We are looking to trial valtrex but understand anti-virals on their own are

not the root cause rather you have to somehow get the immune system right (as

this would remove viruses anyway)

>

> And 50 rounds of cutler normally recommended first

>

>

>

>

>

> To: autism-biomedical-europe

> From: michelle0471@...

> Date: Wed, 27 Apr 2011 09:33:04 +0000

> Subject: RE: What step next to take with Sam

>

>

>

>

>

>

>

> Hi Kirsty

>

> I am doing olive leaf extract & Enhansa and also giving isoprinosine

(following Dr Cheneys pulsing schedule)

http://www.anapsid.org/cnd/diagnosis/cheneyis.html

>

> I am going to be starting LDM-100 with Harry soon.

>

> x

>

>

>

> To: Autism-Biomedical-Europe

> From: greenkirsty1@...

> Date: Wed, 27 Apr 2011 10:23:39 +0100

> Subject: What step next to take with Sam

>

>

>

>

>

>

> I am doing AC chelation, and Scotson. But i still feel that there is still

something else going on with Sam.

> I have never tackled viruses with Sam and was wondering what others have done

about this?

>

>

> Kirsty

> x

>

[Guest guest]

I am there on the saturday and leave sunday morning. I couldn't believe it when

I got the list of who is talking and when! Trust me to stay for the beginners

day!!!

My friend is there on sunday so I have asked her to make loads of notes for me.

Will there be the usual handout of their powerpoints so I can look at that too?

Am not with a doctor that prescribes.

I have ordered the Goldberg book on Amazon now so will read that when it comes

through.

Remind me what gsh is? Brain dead.

On the enhansa already.

Just feel there is something else missing with sam, something I have never

addressed and think viruses must be it.

Getting so many gains now, and able to eat alot more different food etc but his

speech is plateauing and his understanding too.

Thanks for all the info Natasa.

K

xx

> >

> > I am doing AC chelation, and Scotson. But i still feel that there is

> still something else going on with Sam.

> > I have never tackled viruses with Sam and was wondering what others

> have done about this?

> >

> > Kirsty

> > x

> >

>

[Guest guest]

Should be landing here sometime next week, can't price it up until I know how much customs hit me for

Mx

http://algonot.com/neuroprotek.php

[Guest guest]

Hi Kirsty,

I don't know what happened to my previous message for responding this thread, it

has just gone somewhere!

Anyway, I read the Dr Goldberg's " The Myth of Autism " book,listened him on the

youtube..It made alot of sense to me as my boy has Herpes virus.In the past he

had viral panel from the immunosciences lab and showed viral weaknesses.That's

why I believe we should try antiviral-valtrex treatment.In recent past he was on

the immunovir, I think it was good.I will discuss this with Dr Goyal again.

All the best

Nevin

> > >

> > > I am doing AC chelation, and Scotson. But i still feel that there is

> > still something else going on with Sam.

> > > I have never tackled viruses with Sam and was wondering what others

> > have done about this?

> > >

> > > Kirsty

> > > x

> > >

> >

>

[Guest guest]

gsh is glutathione

yes there will be handouts!

we had a BIG leap in cognitive/understanding recently after starting ketotifen (on NHS prescription- email me), then again later with valtrex and then Neuroprotek . http://algonot.com/neuroprotek.php

I'm hearing the same from few other parents so mostly likely not a coincidence... (also adults with ME brain fog seeing big cognitive gains, one described as "astounding" change in brain function). Some kids not able to tolerate quercetin in it, and doing ok on luteolin-only sups - there is lutimax and Beyond-a-century does some apparenly.

hth

> > >> > > I am doing AC chelation, and Scotson. But i still feel that there is> > still something else going on with Sam.> > > I have never tackled viruses with Sam and was wondering what others> > have done about this?> > >> > > Kirsty> > > x> > >> >>

[Guest guest]

I did start it before Christmas, really low and really slow, gave one drop each day for a week then increased by one drop each week after but then decided to do KIB500 so stopped but he was on it for about a month with no issues at all. I have been taking it myself and am currently up to 12 drops each day and apart from feeling quite emotional and tired/irritable i have no rash or any other issues.

I dont think 3 weeks is enough with OLE, viruses can take as long as mercury to get rid of. Why do you only give enhansa on days off chelation?

x

To: Autism-Biomedical-Europe From: greenkirsty1@...Date: Wed, 27 Apr 2011 13:45:00 +0000Subject: Re: What step next to take with Sam

I did a three week course of OLE with a couple of years back, with monolaurin etc. Didn't see any change.I use Enhansa currently off round and have been for about three weeks.No way will I go near LDM-100. Too scared to touch that stuff!!!!You seen on youtube what it did to Tim?!Kirstyx>> > Hi Kirsty> > I am doing olive leaf extract & Enhansa and also giving isoprinosine (following Dr Cheneys pulsing schedule) http://www.anapsid.org/cnd/diagnosis/cheneyis.html> > I am going to be starting LDM-100 with Harry soon.> > x> > > > To: Autism-Biomedical-Europe > Date: Wed, 27 Apr 2011 10:23:39 +0100> Subject: What step next to take with Sam> > > > > > > > > I am doing AC chelation, and Scotson. But i still feel that there is still something else going on with Sam.> I have never tackled viruses with Sam and was wondering what others have done about this?> > > Kirsty> x>

[Guest guest]

imo you should not be doing frequent breaks with enhansa. not that

frequent, and not in the beginning. could potentially cause resistance.

> >

> >

> > Hi Kirsty

> >

> > I am doing olive leaf extract & Enhansa and also giving isoprinosine

(following Dr Cheneys pulsing schedule)

http://www.anapsid.org/cnd/diagnosis/cheneyis.html

> >

> > I am going to be starting LDM-100 with Harry soon.

> >

> > x

> >

> >

> >

> > To: Autism-Biomedical-Europe

> > From: greenkirsty1@

> > Date: Wed, 27 Apr 2011 10:23:39 +0100

> > Subject: What step next to take with Sam

> >

> >

> >

> >

> >

> >

> >

> >

> > I am doing AC chelation, and Scotson. But i still feel that there is

still something else going on with Sam.

> > I have never tackled viruses with Sam and was wondering what others

have done about this?

> >

> >

> > Kirsty

> > x

> >

>