Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 To be honest with you, I think one of the reasons why children bounce back so fast is they are " no fear. " As adults, we know too much and instead of trying to get past it all, we dwell. I have seen myself in both settings, but not in so serious surgeries, and I am more cautious to allow the incisions to heal. I am more aware of what could happen if I don't. Back when I had my back surgery, all I wanted to do was get out of bed. Mind you, it would have been highly impossible to get out of bed within the first week, whether I could or not.. or I should say thought I could. After a few weeks went by, I was tired of laying in bed. Now, if it happened again, I wouldn't be so anxious. I think laying on my back for as long as I did and letting things heal is what helped me along. I suppose I will never know the other scenerio, but I feel it helped. This was to let bones heal though.. they never worked on my cord at all. I think now, i'd be more afraid than anxious. Laurie lauray@... new to the group > > > Hello > I am new to your group. My daughter Brittany has spina bifida. We just > found out yesterday that she needs tethered cord surgery. I have a ton of > questions. How long of a surgery is it? How long does it take for > recovery? What should I do to prepare her for the surgery? She will be 7 > June 30. We will be admitted and have surgery next Friday. > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Hi Groovecitymami, Welcome to the group. The comment you made about if you were diabetic or had high blood pressure you'd take the meds wouldn't you....have you read Climbing Higher by Montel ? It's a great book and that is what he says in the book! If you haven't read it it is wonderful. We all here understand the pain thing and the ruining your life. Hang in there hope to chat with you soon. Gentle hugs, Debi -- New to the group Hi Everyone, I signed up for this group awhile ago but haven't had the chance to post anything until now. A little bit about myself and my conditions. I'm 35, mother of two beautiful girls (ages 16 and 11), unemployed now due to my health problems but used to be a nursing tech during the day and a bartender at night. My first medical condition that causes me pain is PA. For anyone who doesn't know what that is, it's called psoritic arthritis. Goes along with psoriasis so on top of the lovely looking skin condition, people with PA basically just hurt in all their joints pretty much all the time. I also have problems with my lower back and neck. I have degenerative disc disease, spondilylosis and bone spurs on L5. I had a spinal fusion and lamenectomy on Oct. 20th 2005. Unfortunately the surgery left me in more pain then I had before. I can't even stand at the kitchen sink and do the dishes without having to lie down after 10 minutes. Pretty much my entire life has been turned upside down because of my back. The surgeon (and I use that term loosely) that did my fusion told me during my last visit that there is nothing else he could do for me and sent a referral to the local pain clinic. Until I get in there, he's agreed to keep prescribing Lortab for my pain. What ticks me off about him is that one week he'll order 5mg. tabs and the next week he'll order 7.5mg tabs. I've told him that the 5's don't work for me anymore, so I don't know why he still throws them in there occasionally. Maybe for his own sick jollies ( he is a major control freak and definately has a God complex). As for as my PA goes, I'm just waiting for my PCP to prescribe Enbrel injections and the insurance co. to approve the treatment (it's sooo expensive, $1500 per month) I did the injections last year and they worked wonders, no pain and no flakes...lol So, that's my current situation in a nutshell. I joined the group to meet people who truly understand what it's like living with pain every single day of their lives. My family has been supportive but they really don't understand fully what it's like the been in pain all the time and to not being able to live your life doing the things you want to do. Oh, almost forgot, to the woman who was wondering the best way to get off of her pain meds I have a bit of advice. Don't stop them all at once. If you've been on the meds for more than a couple of months, you need to be weened off of them or you will most likely go into withdrawl. Also, please don't start drinking to kill the pain, in the long run it's worse for your body then the meds. If you are having pain there's nothing wrong with taking medication to treat the pain. I hate that there's a stigma attached to taking narcotics. We're not junkies looking to get high. We're people with medical problems that need treatment. If you had diabetes or high blood pressure you'd take meds for that wouldn't you? Anyway, that's my two cents for what it's worth. I hope you find relief in whatever choice you make. Take care all, Groovecitymami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Hi Debi, Thanks for the welcome and I hope you're doing well. No, I haven't read Montel's book but I might just pick it up now and see if he has anymore sage words of wisdom ;-) Tobey aka Groovecitymami > > Hi Groovecitymami, > Welcome to the group. The comment you made about if you were diabetic or > had high blood pressure you'd take the meds wouldn't you....have you read > Climbing Higher by Montel ? It's a great book and that is what he > says in the book! If you haven't read it it is wonderful. We all here > understand the pain thing and the ruining your life. Hang in there hope to > chat with you soon. > Gentle hugs, Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Tobey, You will love the book. He writes very well. My mom has even read the book and she doesn't have pain she read it for me! I hope all is well with you. Hope to chat soon. Gentle hugs, Debi -- Re: New to the group Hi Debi, Thanks for the welcome and I hope you're doing well. No, I haven't read Montel's book but I might just pick it up now and see if he has anymore sage words of wisdom ;-) Tobey aka Groovecitymami > > Hi Groovecitymami, > Welcome to the group. The comment you made about if you were diabetic or > had high blood pressure you'd take the meds wouldn't you....have you read > Climbing Higher by Montel ? It's a great book and that is what he > says in the book! If you haven't read it it is wonderful. We all here > understand the pain thing and the ruining your life. Hang in there hope to > chat with you soon. > Gentle hugs, Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2009 Report Share Posted August 6, 2009 Hi and welcome to the group! It's nice knowing you are not alone in this... it makes you feel a little less weird Most of my family knows of my condition. I thought I was weird too until a little over a year ago when I started looking into this. Since then, I've explained to my husband, and family about why I act the way I do. My husband used to think I was loony until he read a little about it. He now helps me out best he can. It helps having this website to show them that you are not alone in feeling this way... that it's an actual condition. You will have those who are intrigued by it and will help you out, and you will have those who still insist it's in our heads and we could stop if we wanted to. They are usually the ones who also deliberately provoke. My advice is to show them other posts here and let them see that it's real. Be honest with them and how it makes you feel. Make them understand that you leaving the room is nothing personal against them... it's just something you must do to keep your sanity! LOL. But be prepared for strange looks and perhaps them not getting it. People who don't have this can never fully understand but they can try. I hope finding this site will help you out and that whomever you tell will respect your feelings. Best of luck. Darlene > > Hello, my name is and I am new to this group. I am 16 and didn't know I had misophonia until just recently, I always just thought I was weird. I am so glad to know that I am not the only one going through this, I just wanted to know if any of you have families or friends that you have told about your misophonia that understand and accommodate to your situation. I'd also like to know how you were able to explain it to them. My family always makes fun of me when I run out of the room if they are eating, and my friends get mad at me if I try to walk out of the room when they eat or bite their nails. I really hate it when they are like that and I would really appreciate any advice on how to explain to them about this disorder. Thank you. > Quote Link to comment Share on other sites More sharing options...
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