Re: seizure advise

[Guest guest]

Nope..no other symptoms at all. We aren't even working on any infections right now, we're working on her immune system. At our last appt. we determined that she was stuck in Th2 and the best approach would be to get her system functioning well first and then it should be able to fight off these daily exposures we all have. The last bug she tested positive for was sackie virus.

She said that when she was unconscious she heard weird loud noises but can't pinpoint what they were...then she heard us yelling, Jenna Jenna.

Can Dr. Sosin handle a 24hr take home EEG? I would like to do that. Just in the last 2 weeks she's started sleep walking. I wonder if that's related at all?

Tami DuncanPresident and Co-Founderwww.liafoundation.orgJoin us in Fort Lee, NJ for our first East Coast Conference, Saturday, April 12th. You'll hear top doctors such as Bransfield, MD, Ray , MD, Janelle Love, MD, Warren Levin, MD, Peta Cohen, PhD, Guissepina Feingold, MD, Baker, ND, Horowitz, MD and the author of "Mold Warriors" Ritchie Shoemaker, MD. Online registration available at: www.liafoundation.org (click Spring 2008 Conference)

No other symptoms huh...like fever, sick?Are you working on any viral things with her as these can tweak neurologically speaking?I have had a seizure, several, grand mal when I was just about to be eight years old. On meds from age 8-15.Have you considered talking with Dr Sosin who knows this pretty well in Irvine, CA?I would consider an EEG. You can always visit a pediatric neurologist to order a 24 hour take it home and wear it on your head EEG. Just to rule out ongoing while she sleeps seizures. We like Dr Donnelly through 4OCKIDS in Orange, CA.Or perhaps in the future if you do a spect scan for your son you could do it for her as well?I am so sorry. I know they are scary to watch. Does she remember anything from when it happened like what she thought she was doing? I thought my tongue (was sleeping when it happened) was getting swallowed down my throat and I was trying to pull it to make sure it wouldn't go down my throat. I have also passed out like her but from a combination with heat. This happened when I was about 10. Saw silver streaks, then purple spots floating in the air, then gray rain streaks, then passed out. Awoke at the top of the stairs of the ride getting water dumped on my face from the Log Ride at Magic Mountain and ice chips (luckily it was a water ride so they were ready). Again so sorry it happened!!! Kristie

[Guest guest]

No other symptoms huh...like fever, sick?

Are you working on any viral things with her as these can tweak

neurologically speaking?

I have had a seizure, several, grand mal when I was just about to be

eight years old. On meds from age 8-15.

Have you considered talking with Dr Sosin who knows this pretty well

in Irvine, CA?

I would consider an EEG. You can always visit a pediatric neurologist

to order a 24 hour take it home and wear it on your head EEG. Just to

rule out ongoing while she sleeps seizures. We like Dr Donnelly

through 4OCKIDS in Orange, CA.

Or perhaps in the future if you do a spect scan for your son you

could do it for her as well?

I am so sorry. I know they are scary to watch. Does she remember

anything from when it happened like what she thought she was doing? I

thought my tongue (was sleeping when it happened) was getting

swallowed down my throat and I was trying to pull it to make sure it

wouldn't go down my throat.

I have also passed out like her but from a combination with heat.

This happened when I was about 10. Saw silver streaks, then purple

spots floating in the air, then gray rain streaks, then passed out.

Awoke at the top of the stairs of the ride getting water dumped on my

face from the Log Ride at Magic Mountain and ice chips (luckily it

was a water ride so they were ready).

Again so sorry it happened!!!

Kristie

[Guest guest]

Thanks so much Kristie and Heidi,

I am convinced she had a seizure. I looked it up and it looks like she had a tonic seizure. I am calling Dr. Sosin Monday and getting the ball rolling. Hopefully he can squeeze us in quickly. To be honest she's also sleeping next to me in bed tonight so I can "watch her" all night. My poor son can't sleep either because he is so worried. He is sleeping on my floor so he can be by her too. I'm considering taking her to NY with me this coming week so I can watch her

[Guest guest]

I have seen a bunch of seizures in my day, and yes what you describe

sounds just like what I have seen. All the seizures I have seen were

from people with a history of seizure disorders, but I have heard

many people tell me that their children had seizures of unknown

causes. They told me their docs said that seizures can be caused by

things such as common medicines, even tylenol and even caffiene, and

withdrawal of any common medicine. Thus, the message I got was that

they can be caused by just about anything. I think it would be easy

to also believe they can be caused by die-off.

I remember reading about things here and there that parents can do

when their child is having a seizure, I don't remember all of it, but

here is some:

remove objects from around her

put a pillow under her head

put an ice pack on the back of her neck to shorten the duration

This is what I have heard, but I am no expert on treating seizures.

But, I will say this, one of my 4 year old twins appeared to have a

hallucination episode last night that lasted for 4 hours. He said

the bees were on him, and he was screaming, very frightened. I gave

him some Burbur and he has been fine ever since. I think it was from

die-off. I just can't imagine what my family's life would be like if

we didn't know about all this stuff. Poor Philip may have ended up

with schizophrenia. I notice that die-off causes different symptoms

in each person, depending upon the symptoms the person had before the

pathogen-killers. Everybody is doing well now.

Best wishes and prayers,

Heidi N

>

> Ok..well it happened to us.

>

> My daughter...neurological little 5 year old was dancing this

morning, fell

> on her butt. Then she got up screaming that her back hurt and

within 20

> seconds, fell to the ground, twitching, her arms and legs frozen

solid

> (unbendable), her eyes rolled in the back of her head and she was

holding her breath

> and unresponsive. It lasted for an eternity, probably in reality

15-30

> seconds, but it seemed like forever.

>

> She is fine now, but the hospital of course said she probably just

passed

> out and sent us on our way. Not EEG or anything like that.

>

> This is the first time I have witnessed such a thing. My gut tells

me this

> was a seizure. Just wondering if any parents who are experienced

with

> seizures can give me some advice as to what to look for, what to

do, etc. The

> hospital said to just call 911 if that ever happens again.

>

> Tami Duncan

>

> President and Co-Founder

> _www.liafoundation.org_ (http://www.liafoundation.org/)

>

> Join us in Fort Lee, NJ for our first East Coast Conference,

Saturday, April

> 12th. You'll hear top doctors such as Bransfield, MD,

Ray

> , MD, Janelle Love, MD, Warren Levin, MD, Peta Cohen, PhD,

Guissepina

> Feingold, MD, Baker, ND, Horowitz, MD and the

author of " Mold

> Warriors " Ritchie Shoemaker, MD.

>

> Online registration available at: _www.liafoundation.org_

> (http://www.liafoundation.org/) (click Spring 2008 Conference)

>

>

>

> **************Planning your summer road trip? Check out AOL Travel

Guides.

> (http://travel.aol.com/travel-guide/united-states?

ncid=aoltrv00030000000016)

>

[Guest guest]

I remember Dr. Klinghardt talked about seizures. This was probably

for chronic seizure disorders, but it might be good to look at your

child's levels if she is having seizures.

' & #56256; & #56451; Bernie Rimlands B6. Seizure control 300 mg B6/kg/day (Pietz).

Magnesium citrate 400 mg/day or at least 25% of B6 dose or at least

10 mg/kg body weight) "

from the website:

http://www.vsan.org/rok-az/misc/KH.1.21.06.pdf

Heidi N

>

> Ok..well it happened to us.

>

> My daughter...neurological little 5 year old was dancing this

morning, fell

> on her butt. Then she got up screaming that her back hurt and

within 20

> seconds, fell to the ground, twitching, her arms and legs frozen

solid

> (unbendable), her eyes rolled in the back of her head and she was

holding her breath

> and unresponsive. It lasted for an eternity, probably in reality

15-30

> seconds, but it seemed like forever.

>

> She is fine now, but the hospital of course said she probably just

passed

> out and sent us on our way. Not EEG or anything like that.

>

> This is the first time I have witnessed such a thing. My gut tells

me this

> was a seizure. Just wondering if any parents who are experienced

with

> seizures can give me some advice as to what to look for, what to

do, etc. The

> hospital said to just call 911 if that ever happens again.

>

> Tami Duncan

>

> President and Co-Founder

> _www.liafoundation.org_ (http://www.liafoundation.org/)

>

> Join us in Fort Lee, NJ for our first East Coast Conference,

Saturday, April

> 12th. You'll hear top doctors such as Bransfield, MD,

Ray

> , MD, Janelle Love, MD, Warren Levin, MD, Peta Cohen, PhD,

Guissepina

> Feingold, MD, Baker, ND, Horowitz, MD and the

author of " Mold

> Warriors " Ritchie Shoemaker, MD.

>

> Online registration available at: _www.liafoundation.org_

> (http://www.liafoundation.org/) (click Spring 2008 Conference)

>

>

>

> **************Planning your summer road trip? Check out AOL Travel

Guides.

> (http://travel.aol.com/travel-guide/united-states?

ncid=aoltrv00030000000016)

>

[Guest guest]

I would say that yes perhaps sleep walking being related to possible

seizure activity. The seizures I have had have occured during sleep.

The abnormal EEG my son has had has been at 3 AM. In essence she may

in fact be having seizure activity or pre seizure activity in her

sleep and thus far it has manifested as sleep walking.

Dr Sosin may do the 24 hour EEG since this is his speciality: the

brain/neurology and his background. He may refer you to a quality ped

neurologist as well. I am not certain.

If you were turning her immune system on so she could get ready to be

able to deal with a virus perhaps this did stir up the virus into

action which is creating seizure activity. there are some moms out

there that can talk you through this and off the ledge so to speak,

like Dana. She puts a very positive spin on seizures. Ped

neurologists normally won't be as positive about seizures.

Seizures=MEDICATE!!!!

You need to just get a grasp on how often its happening and a 24 hour

EEG won't hurt anyone just give you more information.

I know you have lots on the plate right now. Just give Dr Sosin a

call on Monday and take it from there.

Here if you wanna talk day or night,

Kristie

[Guest guest]

Hi Tami,I'm so sorry for your daughter and your family.   Seizures are very tough to live through.  My son has a history of  seizures of every kind (tonic clonic, myoclonic, complex partial, petit mal... he's had them all).    My son's seizures started at age 5 and his first one was grand mal (tonic clonic) in bed.  One morning I went to wake him up for school and there he was having a major seizure.  The next four years were very difficult because the anti-seizure meds made him and the seizures worse.   Finally with no other options, we tried CLASSICAL homeopathy and the ketogenic diet and the seizures STOPPED.   We have been doing classical homeopathy since that time (we did the ketogenic diet for 2 years) and he is now 13 years old and seizure-free for 4 years.   If you are in California, I would highly recommend taking your daughter to see Dr. Luc DeSchepper who is an excellent classical homeopath.   Classical homeopathy saved my son's life.   We did some non-classical homeopathy with Dr. Carley and her protocol did not help my son at all, it was very harsh on him.If you decide on the ketogenic diet, I have some books that I can mail to you if you like.  Just email me off-list because I don't always read all of the group posts.Good luck and God Bless.LydiaThanks so much Kristie and Heidi, I am convinced she had a seizure.  I looked it up and it looks like she had a tonic seizure.  I am calling Dr. Sosin Monday and getting the ball rolling. Hopefully he can squeeze us in quickly.    To be honest she's also sleeping next to me in bed tonight so I can "watch her" all night.  My poor son can't sleep either because he is so worried.  He is sleeping on my floor so he can be by her too.  I'm considering taking her to NY with me this coming week so I can watch her. In regards to the nightime hallucinations...Heidi...I had those myself for years.  I rarely have them now, but it is usually attributed to Babesia. Thanks again...I really appreciate it. Tami DuncanPresident and Co-Founderwww.liafoundation.orgJoin us in Fort Lee, NJ for our first East Coast Conference, Saturday, April 12th. You'll hear top doctors such as Bransfield, MD, Ray , MD, Janelle Love, MD, Warren Levin, MD, Peta Cohen, PhD, Guissepina Feingold, MD, Baker, ND, Horowitz, MD and the author of "Mold Warriors" Ritchie Shoemaker, MD. Online registration available at: www.liafoundation.org (click Spring 2008 Conference) In a message dated 4/5/2008 10:12:49 P.M. Pacific Daylight Time, kristie_burchittacanow (DOT) org writes:I would say that yes perhaps sleep walking being related to possible seizure activity. The seizures I have had have occured during sleep. The abnormal EEG my son has had has been at 3 AM. In essence she may in fact be having seizure activity or pre seizure activity in her sleep and thus far it has manifested as sleep walking.Dr Sosin may do the 24 hour EEG since this is his speciality: the brain/neurology and his background. He may refer you to a quality ped neurologist as well. I am not certain.If you were turning her immune system on so she could get ready to be able to deal with a virus perhaps this did stir up the virus into action which is creating seizure activity. there are some moms out there that can talk you through this and off the ledge so to speak, like Dana. She puts a very positive spin on seizures. Ped neurologists normally won't be as positive about seizures. Seizures=MEDICATE!!!!You need to just get a grasp on how often its happening and a 24 hour EEG won't hurt anyone just give you more information.I know you have lots on the plate right now. Just give Dr Sosin a call on Monday and take it from there. Here if you wanna talk day or night,KristieMessages in this topic (6)Reply (via web post) | Start a new topic.

[Guest guest]

Our son was having viral related seizures early 2006 through mid

2007. He has a disregulated immune system and when everyone else

would get a cold or other random virus he would get much more

autistic and sit down several times a day and have seizures. We began

the Valtrex Protocal Stan Kurtz last July and we have been seizure

free. We discovered we had Lyme autumn 2007, thought to be cronic

dating to 9/2005 or earlier possible maternal transmission. E-mail me

if you need more info. Stan's web site

http://www.childrenscornerschool.com/recoveries_new.html

>

> Ok..well it happened to us.

>

> My daughter...neurological little 5 year old was dancing this

morning, fell

> on her butt. Then she got up screaming that her back hurt and

within 20

> seconds, fell to the ground, twitching, her arms and legs frozen

solid

> (unbendable), her eyes rolled in the back of her head and she was

holding her breath

> and unresponsive. It lasted for an eternity, probably in reality

15-30

> seconds, but it seemed like forever.

>

> She is fine now, but the hospital of course said she probably just

passed

> out and sent us on our way. Not EEG or anything like that.

>

> This is the first time I have witnessed such a thing. My gut tells

me this

> was a seizure. Just wondering if any parents who are experienced

with

> seizures can give me some advice as to what to look for, what to

do, etc. The

> hospital said to just call 911 if that ever happens again.

>

> Tami Duncan

>

> President and Co-Founder

> _www.liafoundation.org_ (http://www.liafoundation.org/)

>

> Join us in Fort Lee, NJ for our first East Coast Conference,

Saturday, April

> 12th. You'll hear top doctors such as Bransfield, MD,

Ray

> , MD, Janelle Love, MD, Warren Levin, MD, Peta Cohen, PhD,

Guissepina

> Feingold, MD, Baker, ND, Horowitz, MD and the

author of " Mold

> Warriors " Ritchie Shoemaker, MD.

>

> Online registration available at: _www.liafoundation.org_

> (http://www.liafoundation.org/) (click Spring 2008 Conference)

>

>

>

> **************Planning your summer road trip? Check out AOL Travel

Guides.

> (http://travel.aol.com/travel-guide/united-states?

ncid=aoltrv00030000000016)

>

[Guest guest]

seizures=viral encephalopathy

This theory to my knowledge comes from Dr Goldberg in Tarzana, CA prior

to Stan's time.

Kristie

[Guest guest]

Well Stan’s video and his

conclutions that what his son did are seizures were ‘diagnosed” and

presumed by him and him only!

Please let’s concentrate in what

seizures are and lost of balance dizziness can be too.

I saw those episodes in my son several

times and I never jump to conclusions and publicly said SEIZURES! To gain

parent’s attention like he does.

I am sorry if the crude of my words may

offend anyone, it is not my intention but I would like to keep my perspective straight

and my mind clear if I want to find answers.

I personally took my son for EGG, MRI and

brain mapping and all confirm my son had never suffered any kind of seizure! And

I assure you my son used to do that, my friend Carol were present when he used

to tremble and shake his eyes and head like it would it be a seizure, but it

was not!

My personal opinion regarding those

episodes is that is due to brain intoxication from execs of phenols or tyrosine.....WHY?

Because I personally developed this

intolerance to red wine, casein and wheat flour, and when I eat those things I experience

the same trembling “type of seizures” my son had it.

Now if the children were in SCD diet like Stan’s

son was, he still could get too much phenols or tyrosine built up in his brain

to cause the dizziness, and that to me had more logical explanation that panicking

and shouting and modifying a video to gain public attention and create “DRAMA”

about something he is just speculating it happened, when he has no medical

records to corroborate such as statements!

I am sorry but I really don’t like

when people misuse information that even does not belong to them and then they manipulate

information for personal EGO.

The reality is that most of us “parents’

don’t know if our children are having seizures or dizziness attacks or

what, for some children the ones “that get properly diagnosed” and

the brain scans show lacerations or damage of any kind are the only ones that should

claim such a thing.

This will help all of us to find the

truth, also I do believe in PSITIVE thinking is very important! And putting

preconceived ideas of a disgrace has ocurrs to your child will bring on to you

or the child the problem that didn’t exist to begin with. This opinion I have

is based on Dr. Hamer’s writings, where he find out after 40 years of practice

that cancer patients were more prone to die after they receive their diagnosed

and where told that they were going to die instead of the doctors giving them a

more serious and promissory news.

My personal opinion is DO NOT JUMP TO

CONCLUTIONS wait for serious brain scans, do not get desperate, and find out if

first if it’s true that those were actually seizures, then IF so go from

there BUT IF NOT doesn’t think Valtrex will cure you from something that

never existed to begging with! Investigate a little bit more.

I have found so far that PKU can cause all

sort of brain dizziness that can be confused with seizures, for example.

And I am currently writing a short summary

on this findings since my desire is to fix my son ADD not just by providing

Octopamine but I am going back along the line of metabolism to see where the

chain was broken and fixed, because he was tested at birth for Phenyketoluria

and he was fine, but my gut’s feeling is that his problem is right above

the first metabolic pathway, which is the conversion of Tyrosine to tyramine to

Octopamine, for a lot of reasons I will explain in my next summary, please

review it after I post it, it may give you more answers that you can imagine.

Don’t jump into non-sense drugs

without logical explanation, having high titters of HHV6 is not logical neither

unless those are IGGM, otherwise it’s again no logical. And totally unnecessary.

Valtrex side effect is to cause lethargy

and sometimes parents have told me: “my son is doing great! He is not

hyper anymore after giving Valtrex” then I see the kid and it’s in

the moon! And of course this is NOT better, he is just lethargic! This is one

of the side effects of that drug because it suppresses liver enzymes!!! Not the

child is better it’s just a side effect!

By other hand sometimes by pure change the

parents are doing 100 things and then they add Valtrex and a little something happens

and then they say was valtex and what happens, they are not even sure what it

was, but because of the fame Stan has given to Valtrex and the attention parents

get when they promote Valtrex or Stan the let their emotions over rule the

reality, and it’s just awful later seeing them in my group totally heart

broken because their children are not like Stan’s son.

I asked in that group before I left, if

there was anyone there that can come up to me and say they have seen improvements

like Stan’s Claim in his modified videos Valtrex recover his son, and NO

ONE PERSON responded, NO one! Except for a mom that said difuclan was the most

important thing. THAT I believe and made sense but Not Valtrex.

There are a few things Stan has not told t

everyone, like he did gave his son the homeopathic Thuja, for example, and also

little by little his story changed, he stated to say that he was also giving difuclan

and then later he mention l-carnitine and niacin and vitamin C. and so on. Every

time I spoke to him was a different story, so I never got it straight.

Then he claimed his w=son was perfect, and

when I met him true he can talk but so as my son, but his son didn’t pass

kindergarten, his wife told me he had to repeat! So what kind of healing is

that?

I am talking about mental cognitive stuff

and awareness and common sense and emotions. Another thing I notice is that his

son spaces out a lot and he was not able to establish a normal conversation

with me, I am not saying his son is not doing really well, what I am saying is

that there is a lack of transparency in the information and to me that it’s

not right.

My best

.

From: BorreliaMultipleInfectionsAndAutism

[mailto:BorreliaMultipleInfectionsAndAutism ]

On Behalf Of erinsullivan65

Sent: Monday, April 14, 2008 9:27

AM

To: BorreliaMultipleInfectionsAndAutism

Subject:

Re: seizure advise - Stan Kurtz website -

,

My son was having petit mal seizures every time he had a cold or

other virus, fever which was about every three weeks in pre-school.

He'd miss 5-7-10 days of school from fever/lethargy.

He'd have seizures only during these illnesses then he'd come out of

it and they did not appear in the in-between periods. I did not

recognize these as seizures in the beginning. I saw videos of kids

having seizures during an RDI conference (Gutstein) -- they show a

lot of videos at RDI conferences.

It struck me that what Gutstein showed (a kid having a seizure during

therapy -- it was about social skills therapy not the seizure) that's

what was happening with my son.

My son has HHV6. Our DAN proposed the Valtrex protocal for " virus. "

We knew he was a " viral " in the DAN parlence.

In the same time frame we had an appt. with our mainstream

neurologist at which time I explained these seizures in detail and he

suggested that he wanted to do a stress EEG, and CAT or PET (I don't

have the paper here.) He did not withness a seizure but was willing

to go along with my story.

But, at the same time we'd just started Valtrex (he was skeptical

about Valtrex) and by the time we got our appt. about a month after

the neurologist appt. there was no evidence of seizure. His reaction

was " we don't know. "

Our DAN tends toward " well, I think we know what happened. "

The time frame on the seizures is early 2006 (possibly late 2005)

until July 2007. Valtrex and the associated antifungal tweaks were

the only things we changed in the July-December time frame.

This winter he's only had two very normal head colds runny nose,

stuffy, a little cough -- beautiful actually. He'd actually not had

boogies or a cough since he was two, before he regressed.

I don't know if that's helpful to you or not. Hope it is. Good luck.

> > >

> > > Ok..well it happened to us.

> > >

> > > My daughter...neurological little 5 year old was dancing

this

> > morning, fell

> > > on her butt. Then she got up screaming that her back hurt and

> > within 20

> > > seconds, fell to the ground, twitching, her arms and legs

frozen

> > solid

> > > (unbendable), her eyes rolled in the back of her head and

she

was

> > holding her breath

> > > and unresponsive. It lasted for an eternity, probably in

> reality

> > 15-30

> > > seconds, but it seemed like forever.

> > >

> > > She is fine now, but the hospital of course said she probably

> just

> > passed

> > > out and sent us on our way. Not EEG or anything like that.

> > >

> > > This is the first time I have witnessed such a thing. My gut

> tells

> > me this

> > > was a seizure. Just wondering if any parents who are

experienced

> > with

> > > seizures can give me some advice as to what to look for, what

to

> > do, etc. The

> > > hospital said to just call 911 if that ever happens again.

> > >

> > > Tami Duncan

> > >

> > > President and Co-Founder

> > > _www.liafoundation.org_ (http://www.liafound

> <http://www.liafoundation.org/>

ation.org/)

> > >

> > > Join us in Fort Lee,

NJ for our first East Coast

Conference,

> > Saturday, April

> > > 12th. You'll hear top doctors such as Bransfield, MD,

> > Ray

> > > , MD, Janelle Love, MD, Warren Levin, MD, Peta Cohen, PhD,

> > Guissepina

> > > Feingold, MD,

Baker, ND, Horowitz, MD and the

> > author of " Mold

> > > Warriors " Ritchie

Shoemaker, MD.

> > >

> > > Online registration available at: _www.liafoundation.org_

> > > (http://www.liafound <http://www.liafoundation.org/>

ation.org/) (click

> Spring 2008 Conference)

> > >

> > >

> > >

> > > **************Planning your summer road trip? Check out AOL

> Travel

> > Guides.

> > > (http://travel. <http://travel.aol.com/travel-guide/united-

states?>

> aol.com/travel-guide/united-states?

> > ncid=aoltrv00030000000016)

> > >

> >

>