Re: Ursodol

[Guest guest]

Yes I am in Canada so that is why I mentioned

Urso I was not aware that in the U.S.A. they would

have a different name.<br><br>The doctor said PBC is

something that happens to women in my age group they do not

know why.<br><br>Yes I realize the cholesterol did not

cause the PBC was just explaining how it was

detected.<br><br>I am not sure what 90 grams of protein looks

like?<br>Any examples as to how much chicken that would be or

something I can relate to.<br><br>Yes most doctors can not

relate to herbal or alternative treatments.<br>From what

I have read on PBC there is nothing that will stop

the disease but the meds may slow its progress some

what.<br><br><br>Lyn

[Guest guest]

i live in ga. and i take urso does anyone know what it is suppose to do for the

liver?

[Guest guest]

I'M NOT FOR SURE WHAT IT IS SUPPOSE TO DO FOR

YOU. MY HUSBAND TAKES URSO ALSO. HE TAKES IT AND

VITAMIN E,C. BUT JUST AS SOON AS YOU FIND OUT FOR SURE

WHAT IT IS SUPPOSE TO DO FOR YOU LET ME KNOW ALSO. WE

LIVE IN TEXAS, BURKBURNETT. JUST TAKE IT LIKE THE

DR.SAYS. IT SEEMS TO BE HELPING MY HUSBAND SOME.

[Guest guest]

Hi - I'm Dot and I joined this club a year or so

ago and have been reading, learning more and hoping

that everyone is going to be okay.<br><br>Back to the

point though - URSO. I have been taking it for almost

two years now and it has brought all of my Liver

blood levels back to almost normal. It is actually, my

specialist tells me, a bile acid. It has a revolting taste

if you don't drink enough fluid with it and it

explodes in your throat.<br><br>Apparently, over here in

Australia, it is only relatively new and they do not really

know how well it works, but for me it has made all the

difference. When I first went to see the transplant

specialist, I was teetering on the brink of having to have a

transplant, but because of the Urso, I am still working and

coping. Not quite as well at the moment, but coping just

the same. My biggest problems seem to be the same as

just about everyone else - fluid, varices, bursting

veins everywhere on my body, especially legs, constant

tiredness, vagueness, bad memory and now the shakes. I have

an appointment in March with a neurologist for that

one. <br><br>I think, had I not been able to take

Urso, I would definitely have needed a transplant by

now.<br>From what I've heard though, it doesn't work for

everyone.<br><br>Take care all - <br><br>Dot

[Guest guest]

Dear Dot,<br><br>For your memory problems, I

suggest you reduce your protein intake from all sorts to

below 60 mg a day and ask your doctor for

Lactulose.<br><br>Lactulose is a chemical sugar which is only slightly

metabolized by the body. I take 15 ml twice a day. It was

explained to me that the liquid goes through the alimentary

canal and in the lower large intestines removes

nitrogen from the breakdown of protein. The only slight

side effects are loose stools for the first few days

and intestinal gas (flatulence). This is a small

thing to have for the reduction of encphelaophy you

experience. Go girl!<br><br>

[Guest guest]

Thanks , for your advice. However, I

already take huge doses of lactulose and have also had

two courses of some antibiotic which is supposed to

kill any bugs in the bowel. Neither of these is doing

what they are supposed to do - and you can only

tolerate so much of that sickly sweet lactulose. yukky

stuff - I'm sure it can't be good for the teeth!!! I

will try and cut down on proteins though and see if

that helps.<br>Can you advise me of some things that I

shouldn't eat?<br>Today, I am climbing the walls I am so

agitated. My belly and legs are so full of fluid, it is

very uncomfortable. I'm sure you've all been through

this though and I'm not telling you anything new. I

just feel lucky that I am still around to complain,

even though I would once never have considered my

problems only thought that someone else, somewhere, was a

lot worse off than me. <br><br>Thanks again,<br>Dot

[Guest guest]

Dot,<br><br>Sure a hard case, even your legs. Of course you have to start

walking. Diuretics and herbal teas. Chamoille, Kava, and milk

thistle.<br><br>

[Guest guest]

<br><br>Thanks again. I really do have to

start doing some more exercise - I've been thinking of

swimming, but council pools usually cause me to get ear

infections so I've been avoiding that. The ocean is just a

touch too far away - my driving is not as it was, I've

started becoming too agitated. Perhaps some walking will

have to do - I will just have to make myself more

motivated and do it, not that I have too much spare time. I

do try to walk longer distances, when I go

somewhere, by parking further away than I need to. <br><br>I

will have to try diuretic tea - not Chamoille though

(tastes dreadful!!). How about green tea, isn't it

supposed to have a diuretic effect too? Now that I think

about it perhaps I may even try to drink Chamomile too

- it may calm me down a bit.<br><br>It's good to

talk to someone about these things. My other half

thinks dwelling on it, by thinking about it, just makes

it worse and I should always (I usually try to)

think that my liver is not a problem and the transplant

will never happen.<br>Sometimes, though, even tough

people need help.<br><br>Thanks again<br><br>Dot