Re: (unknown)

[Guest guest]

Adrienne,

You sound just like me--a bit anti-social but really enjoying people at times.

I have a few close friends but I've never been the type to be surrounded by

people. I don't make new friends easily either, but I've wished that I could.

Social anxiety seems like a pretty good diagnosis for me, at least at certain

times of my life.

For the original poster,

I have found something that helps my 4s! I don't know if it will work for

everyone, but a few people on this list have seen improvement by changing their

diets. I've been on a diet call GAPS (Gut and Psychology Syndrome) for about 2

months, and I feel nearly cured of 4s. Trigger sounds do not bother me to the

extent they used to, and many times I don't even notice them. It's absolutely

fantastic and worth the effort.

You can email me offlist if you'd like to know more.

>

> Twice in my life I have had to take anti-depressants (oh the joy of PND). 

Both times the medication did nothing to relieve the 4S.

>

> When I was at school I was social, always had a great group of friends - but

found it hard to mix with new groups of people.  I didn't make friends easily. 

Even today i have very few close friends.  I would like to think that a lot of

people would describe me as a friendly person, but I feel I'm always reserved -

I'm friendly but don't open up and invite close friendships into my life. 

Honestly, I am perfectly happy on my own.  I don't feel a huge desire to be

surrounded by friends.  My sister always has huge numbers of friends, always

very social, even at school.  I was the opposite and preferred a few very close

friends to a large number.

>

> I think it is easier to form friendships at school and when younger, because

you're forced into interaction with them every single day. When you're older you

must make an effort to maintain contact with people - maybe this is why I have

fewer friends as I get older.  I can go years without even speaking to someone -

I think of them sometimes, but never feel this overwhelming desire to catch up

or see people.

>

> Guess I just really enjoy my own company!  I'm sounding anti-social, and I can

assure you I'm not - just happy to be on my own, or with my children.

>

> Adrienne

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Saturday, May 9, 2009 12:30:49 PM

> Subject: (unknown)

>

>

>

>

>

> I find all of this very interesting.  Here are my thoughts.  My 12 yr old

daughter has been diagnosed with sensory processing disorder.  She also has

panic/anxiety disorder which she is on medication for.  We have done listening

therapy and also therapy for her vestibular system.  One psychiatrist mentioned

Aspergers and asked about her social life.  My daughter is very social but what

I find interesting is my very dear friend has always told me that my daughter

was different socially than other friends that her daughter plays with.  I must

mention that my friend's son has autism.  She has done a ton of research and

works very closely with hospitals, OT's, schools, etc...  I'm not saying I

believe that my daughter has this but it does cross my mind.  I also want to

mention that I have OCD/anxiety/ depression.  I do not know of anyone else who

has 4s in the family.  So, the question is, are all of these related in some

way.  My gut says

> yes.  Why hasn't anything worked for 4s, yet meds work for anxiety and my

OCD.  Also, I question whether or not meds really cure it.  I don't think so.  I

will still have my days I'm overly anxious and same with my daughter and we are

both on meds.  But if either of us do not take it then we are definately worse. 

We just need to find something that will " relieve " 4s.  I think this group is

going in the right direction in finding that. 

>

[Guest guest]



It is really funny how the minute someone puts a piece of gum into their mouth they must chew it with their mouth wide open. I always want to go up to them and ask if that is how they also chew their food....

Vicki

Re: Mild Aspergers (an Autistic Spectrum Condition)

It makes sense because I DO have Asperger's. Hypersensitive hearing is related to it.

But what're the odds we ALL have it?

= M-F.

>People with Asperger syndrome may have sensory difficulties. These can occur in one or all of the senses (sight, sound, smell, touch, or taste). The degree of difficulty varies from one individual to another. M ost commonly, an individual's senses are either intensified (over-sensitive) or underdeveloped (under-sensitive) . For example, bright lights, loud noises, overpowering smells, particular food textures and the feeling of certain materials can be a cause of anxiety and pain for people with Asperger syndrome.>What do you all think?>, x.

[Guest guest]

Hello Waleska,

Thank you for your response.

I am fortunate at the moment, as I am taking a career break and can get away from the stresses of work and all that it involves.

I have been able to take myself away for brief periods of time when needed. I think that is all that I can expect to be able to do.

I did manage to move desks after explaining some of my problems with a manager, but you have to expect that wherever you are placed you are likely to to be exposed to similar noise nuisance.

I too sleep with ear plugs. In fact I cannot sleep without them. I depend on them to give me the peace and quiet I need to wind down and relax.

I don't think that I could manage exposing myself to the sounds on purpose. It would be far too stressful.

In fact I have found that if I am feeling under stress myself I am much more noise intolerant. Bit of a vicious circle unfortunately.

I wish you all the very best at your new work place. I hope that you have a more understanding, sympathetic team to work with.

Best Wishes

Jo

To: Soundsensitivity Sent: Friday, May 15, 2009 5:46:17 PMSubject: (unknown)

Hi Jo, Welcome to the group. I too have suffer from this condition 15 years+. What is helping me is finding some outlets. I have tried to get use to the sounds or noises by exposing myself to them and it has made it worse. I think it is acceptable to remove yourself from the situation as needed and when possible. My biggest challenge is at work where I work with very belligerent people and they don't respect even with regards to noises that would disrupt the work of even any "normal" individual. I have given up with this place and found another job, which I will be transferring within this month. I sleep with earplugs and use my Ipod at work to block noises when possible. Hang in there!Waleska>> Hi to all,> I am Jo, new to your group. I would like to share my experience of my intolerance to certain noises and more recently repetitive movements or habits of others.> I had never realised this could be a medical condtion from which I have been dealing with since age 11.> At first as a youngster I was unable to sit at the dinner table because I had these feelings of rage whilst trying to blot out the sound of my father eating and his really heavy nasal breathing.> I have blamed myself for years and years and indeed my parents did too. Often I had arguments with them. I stormed off upstairs out of the way and from then on I took my meals in my room.> I feel a whole lot of guilt because it is time wasted on what should be an enjoyable part of life which I can never regain. I don't harbour bad feelings towards my father and wished I could tolerate it better.> I still have a lot

of problems in this area and I think that over the years it has progrssed.> I have found recently that I can eat with my own family providing I have the cooker hood fan on. I always feel quite panicky around meal times but when we get stuck in and start conversation it helps to divert my attention away from the sounds that cause me problems.> Would be pleased to hear from you especially if you have strategies that help you.> Regards> Jo>

[Guest guest]

Welcome Jo, and Waleska - I'm so happy you've found another job. Great move. Hope it's more enjoyable for you, with people who don't talk and eat noisily right next to you!

Jo, we can all relate to what you've been through. My dad was my first trigger also. When I was growing up at home I hated family mealtimes, and still do. Even yesterday I heard from across three rooms the gross sound my father made when eating a slice of cake, and I felt like throwing the rest of the cake at him. I went outside, using the usual lie "someone's sent a message" on my phone. You'll find this group amazingly supportive - a big welcome to you.

Adrienne (in Australia)

To: Soundsensitivity Sent: Saturday, May 16, 2009 2:46:17 AMSubject: (unknown)

Hi Jo, Welcome to the group.. I too have suffer from this condition 15 years+. What is helping me is finding some outlets. I have tried to get use to the sounds or noises by exposing myself to them and it has made it worse. I think it is acceptable to remove yourself from the situation as needed and when possible. My biggest challenge is at work where I work with very belligerent people and they don't respect even with regards to noises that would disrupt the work of even any "normal" individual. I have given up with this place and found another job, which I will be transferring within this month. I sleep with earplugs and use my Ipod at work to block noises when possible. Hang in there!Waleska>> Hi to all,> I am Jo, new to your group. I would like to share my experience of my intolerance to certain noises and more recently repetitive movements or habits of others.> I had never realised this could be a medical condtion from which I have been dealing with since age 11.> At first as a youngster I was unable to sit at the dinner table because I had these feelings of rage whilst trying to blot out the sound of my father eating and his really heavy nasal breathing.> I have blamed myself for years and years and indeed my parents did too. Often I had arguments with them. I stormed off upstairs out of the way and from then on I took my meals in my room.> I feel a whole lot of guilt because it is time wasted on what should be an enjoyable part of life which I can never regain. I don't harbour bad feelings towards my father and wished I could tolerate it better.> I still have a lot

of problems in this area and I think that over the years it has progrssed.> I have found recently that I can eat with my own family providing I have the cooker hood fan on. I always feel quite panicky around meal times but when we get stuck in and start conversation it helps to divert my attention away from the sounds that cause me problems.> Would be pleased to hear from you especially if you have strategies that help you.> Regards> Jo>

[Guest guest]

Hi,

Sounds like you prefer to blot out some noise with preferable sound to help you sleep.

I can hear my alarm clock whilst wearing ear plugs. It is a high pitched digital one and it is right next to me. My worry is that I can't hear my baby at night or if there is an emergency like a fire.

I have a baby monitor in my room also which I hear really well, and I'm pretty sure I would wake if the smoke alarm went off.I can't get to sleep at all without them. I tend to focus on my husbands breathing. It drives me nuts.

Jo

To: Soundsensitivity Sent: Saturday, May 16, 2009 12:09:03 PMSubject: Re: (unknown)

Question on sleeping with earplugs: Do you have trouble hearing an alarm clock that way? Right now I'm sleeping with noisy air cleaners, fans, and when the power goes out, I'm wide awake within 15 minutes and cannot sleep in silence. Strange! But I'd worry about not hearing the alarm. Is that ever a problem?

(unknown)

Hi Jo, Welcome to the group. I too have suffer from this condition 15 years+. What is helping me is finding some outlets. I have tried to get use to the sounds or noises by exposing myself to them and it has made it worse. I think it is acceptable to remove yourself from the situation as needed and when possible. My biggest challenge is at work where I work with very belligerent people and they don't respect even with regards to noises that would disrupt the work of even any "normal" individual. I have given up with this place and found another job, which I will be transferring within this month. I sleep with earplugs and use my Ipod at work to block noises when possible. Hang in there!Waleska>> Hi to all,> I am Jo, new to your group. I would like to share my experience of my intolerance to certain noises and more recently repetitive movements or habits of others.> I had never realised this could be a medical condtion from which I have been dealing with since age 11.> At first as a youngster I was unable to sit at the dinner table because I had these feelings of rage whilst trying to blot out the sound of my father eating and his really heavy nasal breathing.> I have blamed myself for years and years and indeed my parents did too. Often I had arguments with them. I stormed off upstairs out of the way and from then on I took my meals in my room.> I feel a whole lot of guilt because it is time wasted on what should be an enjoyable part of life which I can never regain. I don't harbour bad feelings towards my father and wished I could tolerate it better.> I still have a lot

of problems in this area and I think that over the years it has progrssed.> I have found recently that I can eat with my own family providing I have the cooker hood fan on. I always feel quite panicky around meal times but when we get stuck in and start conversation it helps to divert my attention away from the sounds that cause me problems.> Would be pleased to hear from you especially if you have strategies that help you.> Regards> Jo>

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

I've slept with ear plugs for 20-some years and never missed my alarm clock

either.

> >

> > Hi to all,

> > I am Jo, new to your group. I would like to share my experience of my

intolerance to certain noises and more recently repetitive movements or habits

of others.

> > I had never realised this could be a medical condtion from which I have been

dealing with since age 11.

> > At first as a youngster I was unable to sit at the dinner table because I

had these feelings of rage whilst trying to blot out the sound of my father

eating and his really heavy nasal breathing.

> > I have blamed myself for years and years and indeed my parents did too.

Often I had arguments with them. I stormed off upstairs out of the way and from

then on I took my meals in my room.

> > I feel a whole lot of guilt because it is time wasted on what should be an

enjoyable part of life which I can never regain. I don't harbour bad feelings

towards my father and wished I could tolerate it better.

> > I still have a lot

> of problems in this area and I think that over the years it has progrssed.

> > I have found recently that I can eat with my own family providing I have the

cooker hood fan on. I always feel quite panicky around meal times but when we

get stuck in and start conversation it helps to divert my attention away from

the sounds that cause me problems.

> > Would be pleased to hear from you especially if you have strategies that

help you.

> > Regards

> > Jo

> >

>

[Guest guest]

I used to break pencils when my sibilant fourth grade teacher drove me mad, and there were a couple of prolonged incidents with other people that had me ripping up a notebook with a pen, or covering my ears, rocking back and fourth and breathing loudly just trying to bear with it.All because Mom told me I couldn't tell those people to shut up or speak with a lisp. I was a lot younger then, but that kind of reinforced the issue that I feel I didn't (don't?) have the power to say no. And Mom actually got mad at me for this! She KNEW I was in agony, but she got mad! She probably thought I could have controlled myself better. (huffs) B--ch.I haven't thought of this in years. Time to imagine violence and calm down.= M-F.>I've been reading this web site for about a year but have never joined in. I hope this is responding to the right email - from (about digging her fingernails into her ankle). I think I may be the oldest one so far - I'm 56. I've had this since I was about 8 - at least that's when it started - and it's gotten worse - sorry to say. My father was my first trigger and when I was little I used to scratch and bite my arms and pull my hair - never to the point of drawing blood but I would leave marks. So I know what you mean. I'm not embarrased about it anymore and that has gotten better. Probably because I have more control about getting away from my triggers than I did when I had no choice but to figure out some way of dealing with it. As so many of you have said I thought I was alone with this disability.. That's what I have strated to call it since it has had such an effect on my life. Although I wouldn't wish this on anybody it's really a comfort to know that I'm not insane. And just a comment about the CBT. I've been in some type of therapy on and off since I was 16. The 4S is always want sent me to therapy and while I benefited from most of it it has had absolutely no effect of the 4S.

[Guest guest]

Thanks for the kind words Dr J. I wish I felt the way you describedbut I really don't. Actually I feel like the whole world has turnedon me (present company excluded of course) with the messagethat my very own wife of 24 years (whom I thought was "on board"with me) delivered to me this very morning, "just suck it up".Of course if I could just suck it up then there wouldn't be any problem, right? Jeez, I really thought she understood after allthese years. So here I am looking out and listening to the gorgeousSouthern California surf feeling absolutely alone. Doctor, and everyone else out there really, I just want to thankyou for this group and I thank God everyday that I found it. AsIt turns out, you are the only glimmer of light that i can see

right now. Thank you all so much. I really don't know where I wouldbe without your kindness and understanding. I really don't.So for now, I will suck it up and see how long I can survivein cubicle hell. God help me.Thanks again everyone for being so wonderful.CurtisGood always wins. So be good!

Curtis, you are front runner and a brave pionner in this field and your personal attempts to find justice will not be in vain!

Small steps can lead up to the tops of great mountains.

You need your MD or a medical provider to put some teeth into your situatin.

Dr. J

>

>

> Hi Curtis,

>

> I hope this goes to the right post. An employer is required by law (Americans With Disabilities Act) to make reasonable accommodations for you. I went through this last year - luckily I had a psychologist to back me up. I was given an office with a door. There's info on the Internet about this kind of stuff that I found helpful.

>

> Unfortunately my company transferred their offices to other states and I have been laid off. I will not go back to "cubicle hell." I'm looking for jobs where I can be isolated - and to add that requirement to this economy is really discouraging. I've spent well over 25 years trying to deal with "cubicle hell" and I'm not going to do it anymore. Life is too short. I'm 56, have been dealing with 4S since I was 8 and each experience seems to get worse. So I'm determined to find some way to make money where I can be comfortable. I look at as a disability that I have to learn to accommodate.

>

> If I can share the little I've learned about the ADA and reasonable accommodations let me know.

>

[Guest guest]

Yes, yes, yes! Thank you for being the voice of reason as this threadhas gone so far astray.Good always wins. So be good!

I think some of the problem here is "failure to communicate." Disability and the request for reasonable accommodate are two entirely different things. It's kinda like apples and oranges.

[Guest guest]

A request for reasonable accommodation so one can work at one's full potential, instead of wasting so much energy trying to get thru the day without losing one's mind. To: "Soundsensitivity " <Soundsensitivity >Sent: Sun, October 18, 2009 12:37:17 PMSubject: Re: (unknown)

Yes, yes, yes! Thank you for being the voice of reason as this threadhas gone so far astray.Good always wins. So be good!On Oct 18, 2009, at 9:32, Martha Spear <marthamaverne@ yahoo.com> wrote:

I think some of the problem here is "failure to communicate. " Disability and the request for reasonable accommodate are two entirely different things. It's kinda like apples and oranges.

[Guest guest]

Highlight the email and press reply button if you need more help, please tell me if you are reading these messages off the yahoo website or your email clientSent from my BlackBerry® smartphone on 3Date: Sun, 18 Oct 2009 09:30:05 -0700 (PDT)To: <Soundsensitivity >Subject: (unknown) To Crystal - (I'm still having trouble figuring out how to respond to a specific post) - Please don't stop putting your two cents into the group. We need everybody's input. It is often hard to express something via email and it doesn't always come across as we mean it. ' Thank you so much for your apology. Your comments and opinions are important to me since you are part of the group and a fellow 4S sufferer. I agree with that different wording would have made a difference in the reaction you got. We should all be able to say what we need to but I do think it's important to try to leave the tone of judgement out as much as possible.

[Guest guest]

HIPP is part of regular Medicaid coverage. You have to send them some

information about your health insurance costs, but it's pretty straight

forward. Go here to find out more: https://www.gethipptexas.com/

Melody

how do I get that I have Medicaid on my son and I also

carry insurance with out any one paying my premium>>???

Keep Idea's Developing Socially

check us out on the web: www.twokids.org

Sincerely Yours

a J. Benge

[Guest guest]

You could go to Dr. Seshagiri Rao in Plano or you could make an appt. with Dr. .

[Guest guest]

There is also Dr. .http://mychildwellness.com/site/No experience here, only w/Dr. or the Neurosensory Center which has been a Blessing for my son.

Irma

 

You could go to Dr. Seshagiri Rao in Plano or you could make an appt. with Dr. .