Let's all welcome new member

[Guest guest]

Hope everyone's having a great weekend! Mine just got even better cause I

get to introduce to all of you....she is the aunt of a brand new

baby boy! You'll find her intro below!

Welcome to the group . You'll find tons of support here...so feel

free to ask away! I guess I'd better update the list's description to

family members as well! Thanks for bringing this to my attention! :>)

Oh, welcomes may be sent group level or privately, to , at

mailto:redoctober1978@...

Bree

Mommy to (8 mos., mds) and 3 siblings

MosaicDS Listowner

National MDS List Facilitator

http://www.mosaicdownsyndrome.com

http://www.insidetheweb.com/mbs.cgi/mb778401 (MDS Message Board)

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Hi,

My name is Mebruer. I personally do not have

a child with MDS, but my sister does. She

just had her baby this past Monday and he was

diagnosed with MDS. His name is Hayden.

His diagnosis was a bit of a shocker for everyone in

my family. He is currently in the hospital under blue

lights because he is jaundiced. THe good news is that

his heart is super and he will not need an operation,

and he went off his IV and oxygen a few days ago.

I wanted to find out as much information as possible

on MDS so I and the rest of 's family could try

and understand what exactly the syndrome is and how

other families dealt with it. I know my sister and

her husband are still very emotional and are not quite

ready to join something like this group. Maybe in a

few weeks though. I realize that this web mailing

list is made only for parents with children that have

MDS. I was hoping that by joining I, as 's

Aunt, would be better informed about his syndrome and

therefore be a better support unit for him, his big

sister (three years old), and his mommy and

daddy.

I guess I am looking for some advice on how to be

supportive. As I said, this all came as quite a

surprise and has been a pretty emotional week for the

whole family. Things are starting to settle down now

and most of us have gotten over the initial shock.

really is a sweetie pie. He has red hair and

big blue eyes, like his daddy and two aunts. He is

such a little peanut. We all just want him to come

home so we all can hold him. He should be home in a

few days, hopefully. Another positive thing is that

my sister was able to breast feed him yesterday, which

is supposedly unusual for babies with DS.

Anyway, I hope to hear from someone with any

information they may have that could be helpful for me

to share with the rest of my family. has a

very supportive and loving family and we all just want

the best for her, Jim (daddy), and the baby.

Thanks!

Sincerely,

Mebruer (a new Aunt)

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