Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 My daughter was diagnosed with OCD at 5.5 and started Prozac slowly with 10 mg. Within six months she was up to 40 mg with relief. She is now 10 and has been taking 60 mg of Prozac for 2 years. We will switch to Anafil (mispelled) which was originally for OCD but helps with attention, as she has been diagnosed with ADHD. Prozac gave her relief and helped with depression/anxiety. in Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 Hi, I'm sure there are several adult sufferers, of OCD or other, who have been on Prozac for extended periods and it's still working. I think here in the group it can be a matter of dosages for kids, meds pooping out at some point, kids still growing, puberty, etc. I always think of one adult I know of who has been on Prozac several years for OCD and says she'll stay on it forever. So apparently she has found what works for her and has continued to work. So your son hasn't been on any SSRI meds yet for OCD? That can be the hard part. Finding the medication/SSRI that works for " you " (or in your case, your son). We used inositol for several years. Last August we quit the inositol and began Celexa, my son's first prescription med. I, too, worried about all the possible side effects, what if it wasn't " the " one, etc. Luckily Celexa worked for my son although one side effect is a daily nap now in the late afternoon. My son (now 15) still can't swallow pills so I was looking for a liquid SSRI. I was going to begin with Prozac (my choice) but decided to ask to try Celexa first. Now, I was very lucky to have a cooperative psych who didn't mind " my " suggesting the medication to try first. Not all doctors are like that. I also went thru the " is the inositol/med helping or is his OCD just waning on its own... " questions. I think both the inositol and Celexa have actually worked for us. The inositol I know did, my son could tell a difference. I felt it was pooping out after 3 yrs; I could have increased the dosage but I always had wondered would a prescription med give him more relief. I think he just might have got a " tad " more help with Celexa. But there I go again - was it the Celexa or would things have improved....? I choose to think Celexa. With 5-HTP - that actually activated my son!! So we quit that. I do think I read that you need to stop taking that for a week or so after taking it for so long.... Did you come across that? I recall thinking that I hoped I would remember to give him a " 5-HTP break " after so many weeks....hmmm.... I also wondered if it was too much for him, as he had been taking the inositol. But, there again, it's like with any " medication " be it prescribed or alternative: all people are affected in their own way. So - don't know if I helped. We tried inositol first, had success, used it throughout middle school. Then last August he began taking Celexa alone. I do plan to eventually wean him off Celexa and back onto inositol. For some reason, not anything particular, I just want him to stay on the prescribed med at least 2 years before weaning him off. Still - for us, neither the inositol or the Celexa has made OCD " go away. " He's done really well on both, but when asked will say that OCD is " always there. " So - have I totally confused you?? Welcome to the group!! single mom, 3 sons , 15, with OCD, dysgraphia and HFA/Aspergers > Hi, > > Just found this group and wish I'd known you were here a long time > ago. > > My son is eleven and has ocd. I've read everything I can find on > SSRI's, read the recent FDA warnings and their requests for all the > hidden studies, and heard the good reports on prozac from the > psychiatrist and psychologist. Is there anyone out there whose child Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Hi, When my son's OCD was at it's worst, over two years ago now, we were desperately trying to locate a qualified psychologist to no avail. Due to my work at the time with children with autism spectrum disorders and seeing firsthand the benefits of dietary and biomedical interventions, I began to explore these for my son as well. We started 5-HTP (make sure it is ONLY 5-HTP-we use Natrol's brand, as many others contain valerian root and other things that can cause side effects), and within a few days, my son, 8 at the time, slept through the night for the first time in his life! That was enough to continue it's use right there. We were also exploring the role thimerosal and other heavy metals played in my son's disorder and had him tested for heavy metals. He came back off the charts with mercury, aluminum and arsenic. I was uncomfortable with heavy duty chelating agents so I did my research and decided upon spirulina and chlorella and added flaxseed oil to the mix. Long story short, after a few months we saw significant decrease in my son's OC behaviors, by 9 months I would say his OCD was subclinical so I ordered another test and found that he was NO LONGER TOXIC in those heavy metals! Now, I initially didn't truly believe the reports of the thimerosal (mercury) in vaccines causing neuropsychological disorders but I am a believer now even though this is an intensely debated issue. Currently, my son has been relatively OCD-free for two years and remains on a daily regimen of 5-HTP, flaxseed oil mixed in a drink with spirulina and chlorella. We also do not drink tap water and have a distiller for our drinking water. in MA > Hi, > > Just found this group and wish I'd known you were here a long time > ago. > > My son is eleven and has ocd. I've read everything I can find on > SSRI's, read the recent FDA warnings and their requests for all the > hidden studies, and heard the good reports on prozac from the > psychiatrist and psychologist. Is there anyone out there whose child > has been on Prozac alone for an extended period of time? It seems > nearly impossible to find anyone who can show me extended success > with it of a few years or more. Typically, the child seems to get > bumped around to other things eventually, or other meds are added to > the Prozac or the dose gets higher and higher until the child is > taken off it. So how do you really know it's the Prozac that is > helping? With the waxing and waning of OCD anyway, I need parent > reports of success with Prozac over a very extended amount of time. > The psychiatrist and psychologist are pushing us to use meds, but it > is hard to ignore all the recent negative press about the studies or > lack thereof. > > We started 5-htp on Friday and increased Inositol and have seen an > improvement in the ocd. Not sure yet if it will last or if it is > coincidence. What is the longest anyone has been on 5-htp and/or > Inositol with success and without other ocd meds? > > k Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 , What dosage amts are you using for your son's regimen? Thanks, cristey On Thu, 24 Jun 2004 12:39:50 -0000 " lmb558 " writes: > Currently, my son has been relatively OCD-free for two years and > remains on a daily regimen of 5-HTP, flaxseed oil mixed in a drink > with spirulina and chlorella. in MA ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Hi Cristey, My son takes only 50mg of 5-HTP each evening. The flaxseed oil is about a tablespoon and the drink is a mixture made by Knudsen- Simply Nutritious Mega Green. It's interesting that you asked this as I have been trying to determine if we need to tweek the dose as it's been two years and my son weighs more and is moving toward puberty. I have read that serotonin levels decrease at puberty so I'm not sure what that may mean for my son. We have also thought to try stopping the 5-HTP to see what may happen but are hesitant. When my son did stop the spirulina and chlorella drink for a bit, we saw an increase of OC behaviors that went away once he was back on it for a few days. Perhaps he is normally deficient in one of these nutrients and requires ongoing supplementation. There was a point when we tried 50mg of 5-HTP twice a day but my son said it made him too tired. in MA > , What dosage amts are you using for your son's regimen? > Thanks, > cristey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 I would strongly suggest taking your daughter off the 5-HTP as soon as possible. 5-HTP is a naturopathic version of an SSRI. In Canada, you can't even buy that without seeing a naturopath as it is a controlled substance. The danger is that she could be getting too much. 5-HTP is basically the precursor to serotonin, the same neurochemical that SSRIs increase in the brain. So your child is basically getting a double dose of Prozac. I am not suggesting that naturopathic treatments aren't as good as allopathic ones, only that they can interact and if these treatments are not being supervised by a medical professional, you can end up making things worse instead of better. R. --------------------------------- Post your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 > Can you please tell me what 5-htp and Inositol is? > > Thanks, > Michele from Ohio, Mommy of Trenton 6 with BP, PDD, ODD, OCD, ADD, SID, Dyspraxia, and seizure disorder > Meds: 1200 Lithium, 5 mg. Abilify, 3 mgs. Risperdal, .20 mg. Clonidine, Synthroid > First Grade on IEP with one on one aide > Other children: Chucky 16, 14, le 12 and is 5 > Husband is Inositol is a nutrient usually considered part of the vitamin-B complex and may be helpful with depression and anxiety. 5-htp (L-5- Hydroxytryptophan) is extracted from the seeds of the Griffonia plant and may increase serotonin levels in the brain. Both are supplements. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 , I'm interested in your approach but am wondering what made you decide to use the Spirulina. The reason why I ask is that whenever I use it in a drink, it seems to hype me up and I don't want my already hyper son with OCD to become more hyper from it. I found a drink today with chlorella and greens (wheat grass and barley grass in it) and am trying this since our health food store didn't sell Knudsen brand. I'll have to search for your suggestion at other health food stores in town or online. Thanks in advance. Re: Prozac Qs, 5-htp Q, Inositol Q Hi, When my son's OCD was at it's worst, over two years ago now, we were desperately trying to locate a qualified psychologist to no avail. Due to my work at the time with children with autism spectrum disorders and seeing firsthand the benefits of dietary and biomedical interventions, I began to explore these for my son as well. We started 5-HTP (make sure it is ONLY 5-HTP-we use Natrol's brand, as many others contain valerian root and other things that can cause side effects), and within a few days, my son, 8 at the time, slept through the night for the first time in his life! That was enough to continue it's use right there. We were also exploring the role thimerosal and other heavy metals played in my son's disorder and had him tested for heavy metals. He came back off the charts with mercury, aluminum and arsenic. I was uncomfortable with heavy duty chelating agents so I did my research and decided upon spirulina and chlorella and added flaxseed oil to the mix. Long story short, after a few months we saw significant decrease in my son's OC behaviors, by 9 months I would say his OCD was subclinical so I ordered another test and found that he was NO LONGER TOXIC in those heavy metals! Now, I initially didn't truly believe the reports of the thimerosal (mercury) in vaccines causing neuropsychological disorders but I am a believer now even though this is an intensely debated issue. Currently, my son has been relatively OCD-free for two years and remains on a daily regimen of 5-HTP, flaxseed oil mixed in a drink with spirulina and chlorella. We also do not drink tap water and have a distiller for our drinking water. in MA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Hi , Sorry I took so long to reply but I've been away for a few days and am just catching up on my e-mails. To answer your question, we used spirulina (and chlorella) for its chelation properties. I did not want to use DMSA, EDTA or DMPS to decrease my son's heavy metal burden as the side effects were concerning. As a more natural approach we have been very pleased with the results. I am not sure why spirulina seems to " hype you up " although it is known to contain high amounts of GLA which can increase energy levels. If it is an uncomfortable " hyped-up " perhaps you are experiencing a mild allergic response to it (some of the grasses can do this as well). As far as utilizing any of these approaches, every child is different so you can't go by what others do in all cases. My son typically would not be considered " hyper " in any way even when he is at the height of anxiety. The only times my son was " hyper " was when he tried inositol (quite activating for him) or drank anything with red or blue food dye (purple Kool-aid put him over the edge!). As you know, just like with medications, natural approaches can involve a lot of trial and error. We were fortunate to be able to receive education, testing (blood tests, allergy testing, urinalysis, etc), and guidance from a number of highly qualified medical professionals (both " mainstream " and " complementary " ) in our efforts to help my son. Take care. in MA > , > I'm interested in your approach but am wondering what made you decide to use the Spirulina. The reason why I ask is that whenever I use it in a drink, it seems to hype me up and I don't want my already hyper son with OCD to become more hyper from it. I found a drink today with chlorella and greens (wheat grass and barley grass in it) and am trying this since our health food store didn't sell Knudsen brand. I'll have to search for your suggestion at other health food stores in town or online. Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
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