Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi Mark, There are some medications that help tics, but most doctors only use them in pretty extreme cases. In general the best response to tics is to ignore them as best you can. They will probably go away sooner or later but will probably be replaced by others. The less attention you pay to them, the less your daughter will notice them and this will actually help them disappear faster. My daughter has had many tics, and her doctor has increased her Risperdal at times to help dampen them a bit, but nothing makes them disappear entirely. Interestingly enough, my daughter apparently has almost no tics at school, but they certainly all come out when she arrives home! Reading is one area where tics can be pretty troublesome - especially tics which involve the eyes. If it truly starts to interfere with her reading, ask her doctor about it. But in the meantime, treat your daughter as if the tics weren't there and support her every way you can! Best wishes, in NV, mom to Annie (12) with OCD, ADHD, TS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 > My daughter has started showing increased tics since starting > school. No doubt the change and stress has helped the tics come on > so much. Last night for homework, she had to read me a story, one > that she had read me before without any problems. Well, she kept > having to shrug her shoulders and shake her legs. It interfered with > her reading and made her lose her concentration. She's a very smart > girl - just started first grade but is reading on a second or third > grade level. She said the tics had been kinda bad at school yesterday > too. I wonder how much it will interfere at school. The OCD has > kinda taken back seat to the tics. > > My son has recently developed a tic which is triggered by reading. When he reads aloud, he begins blinking his eyes rapdily and " urpping " . We have noticed, that the tic isn't nearly as bothersome when reading to himself, so we are just going to let the teachers know to allow him to read silently until this tic is gone. Jeanne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 High doses of SSRI's stopped my tics. Michele Re: TICS Hi Mark, There are some medications that help tics, but most doctors only use them in pretty extreme cases. In general the best response to tics is to ignore them as best you can. They will probably go away sooner or later but will probably be replaced by others. The less attention you pay to them, the less your daughter will notice them and this will actually help them disappear faster. My daughter has had many tics, and her doctor has increased her Risperdal at times to help dampen them a bit, but nothing makes them disappear entirely. Interestingly enough, my daughter apparently has almost no tics at school, but they certainly all come out when she arrives home! Reading is one area where tics can be pretty troublesome - especially tics which involve the eyes. If it truly starts to interfere with her reading, ask her doctor about it. But in the meantime, treat your daughter as if the tics weren't there and support her every way you can! Best wishes, in NV, mom to Annie (12) with OCD, ADHD, TS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 As many of you know, OCD and Tourettes are very common co-morbid " conditions " (sorry for the word). If you have a child who is having both motor and vocal tics (that are on-going) I would suggest that you have them evaluated! Jeanne wrote: > My daughter has started showing increased tics since starting > school. No doubt the change and stress has helped the tics come on > so much. Last night for homework, she had to read me a story, one > that she had read me before without any problems. Well, she kept > having to shrug her shoulders and shake her legs. It interfered with > her reading and made her lose her concentration. She's a very smart > girl - just started first grade but is reading on a second or third > grade level. She said the tics had been kinda bad at school yesterday > too. I wonder how much it will interfere at school. The OCD has > kinda taken back seat to the tics. > > My son has recently developed a tic which is triggered by reading. When he reads aloud, he begins blinking his eyes rapdily and " urpping " . We have noticed, that the tic isn't nearly as bothersome when reading to himself, so we are just going to let the teachers know to allow him to read silently until this tic is gone. Jeanne > Our list archives, bookmarks, files, and chat feature may be accessed at: http://health.groups.yahoo.com/group// . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Chris Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hi, My son Amer started tics before he was diognosed as having OCD. He use to finish from one tice to start with another. Now the tics are now more exsistitng after six years strugling with OCD. I use to notice when he is overstressed with some matters especially the stress of studying & exams, the tics comes back to him. Any way I don't consider them a big problem to worry about. Huda > >Reply-To: >To: < > >Subject: Re: TICS >Date: Tue, 10 Aug 2004 23:57:58 -0400 > >High doses of SSRI's stopped my tics. > >Michele > Re: TICS > > > Hi Mark, > There are some medications that help tics, but most doctors only use >them > in pretty extreme cases. In general the best response to tics is to >ignore > them as best you can. They will probably go away sooner or later but >will > probably be replaced by others. The less attention you pay to them, the >less your > daughter will notice them and this will actually help them disappear >faster. My > daughter has had many tics, and her doctor has increased her Risperdal >at > times to help dampen them a bit, but nothing makes them disappear >entirely. > Interestingly enough, my daughter apparently has almost no tics at >school, but they > certainly all come out when she arrives home! > Reading is one area where tics can be pretty troublesome - >especially > tics which involve the eyes. If it truly starts to interfere with her >reading, > ask her doctor about it. But in the meantime, treat your daughter as if >the tics > weren't there and support her every way you can! > Best wishes, > in NV, mom to Annie (12) with OCD, ADHD, TS > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 My daughter's tics have improved considerably as she has gotten older (they started at age 4, she is now 12). They come and go, but generally subside on their own after a period of time((maybe a few months). I've been told that tics often diminish considerably by age 14 as the nervous system matures. We seem to be seeing this with our daughter. One caveat as you explore treatment options - ERP seems to be of very little use in helping tics. Our therapist a few years ago thought our daughter's tics were just another manifestation of her OCD, so she spent many fruitless, futile hours attempting ERP to suppress them. It was very difficult, frustrating and in the end, accomplished nothing. For that particular episode, the tic eventually just went away on its own. " Habit reversal training " , described in Fred Penzel's book on OCD can be helpful in treating tics. The sufferer essentially completes a " competing response " when the urge to tic comes up. We've had some luck with a modified form of this by using deep, diaphramatic breathing (guided by me) when vocal tics have become troublesome at bedtime. Anyway, I feel lucky that this is one issue that seems to be diminishing on its own with time. Best of luck. > My daughter has started showing increased tics since starting > school. No doubt the change and stress has helped the tics come on > so much. Last night for homework, she had to read me a story, one > that she had read me before without any problems. Well, she kept > having to shrug her shoulders and shake her legs. It interfered with > her reading and made her lose her concentration. She's a very smart > girl - just started first grade but is reading on a second or third > grade level. She said the tics had been kinda bad at school yesterday > too. I wonder how much it will interfere at school. The OCD has > kinda taken back seat to the tics. > > Does anyone have experience with what to do to help? I read > somewhere that tics often go away after a month or so. I can't > pinpoint how long she's had them, but it's been at least 3 weeks and > probably more. Is there anything that can help? > > Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Thank you all for your advice and support. My daughter thinks the tics are ocd, but I'm trying to explain what they are. She doesn't feel something is going to happen if she doesn't do them, just the feeling that she needs to do them. We're going to try relaxation and breathing exercises and maybe the " competing response. " I'll have to read up on that. Thanks again, Mark > > My daughter has started showing increased tics since starting > > school. No doubt the change and stress has helped the tics come > on > > so much. Last night for homework, she had to read me a story, one > > that she had read me before without any problems. Well, she kept > > having to shrug her shoulders and shake her legs. It interfered > with > > her reading and made her lose her concentration. She's a very > smart > > girl - just started first grade but is reading on a second or > third > > grade level. She said the tics had been kinda bad at school > yesterday > > too. I wonder how much it will interfere at school. The OCD has > > kinda taken back seat to the tics. > > > > Does anyone have experience with what to do to help? I read > > somewhere that tics often go away after a month or so. I can't > > pinpoint how long she's had them, but it's been at least 3 weeks > and > > probably more. Is there anything that can help? > > > > Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 I had to keep Meg home this am..the tics are abating but aggressive/pain behaviors..constipation? gave her oxypowder..have not used nmb12 in 4 days..so I'm thinking it is not from nmb12...it wouldn't still be causing this, right? so, we'll work on gi..and try again w/o folinic.. > > Hi. I started Meg 12yo, on nasal mb12 during the winter break. No > folinic as it was on order. Initially she did great..she is > nonverbal/very severe, and she was attempting to talk..great eye > contact. When I added the folinic, she was doing a strange jump..lots > of abrupt yells, very hyped. I stopped both for 2 days and began back > with just nmb-12. These behaviors are still there. They manifest > w/yeast die-off as well and just look " viral " . She is also on the > lowest LDN dose (months) as she reacted severely > (agressive/weepy/uncomfortable)..her DAN also wants her on Valtrex > eventually. She has herpes/strep/varicella/rubeola (measles?)..so has > extremely high viral load. Should I forge ahead a bit more but do > every other day w/nmb12? We never did shots. Also, it is from > Coastal, but did not say alternate nostrils (1 spray per day)should I > have been doing that? Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 I've never heard of MB12 causing tics, but there is a subset of our kids that have tics and OCD. One of the possible causes is antibodies to certain bacteria like Strep. If MB12 causes a negative reaction, it typically goes right away when you stop.... in maybe a day or two. You may want to consider a PANDAS test which is an antibody of strep and to also look closely at your gut strategy and see if there is something more that may need to be done. - Stan > > > > Hi. I started Meg 12yo, on nasal mb12 during the winter break. No > > folinic as it was on order. Initially she did great..she is > > nonverbal/very severe, and she was attempting to talk..great eye > > contact. When I added the folinic, she was doing a strange jump..lots > > of abrupt yells, very hyped. I stopped both for 2 days and began back > > with just nmb-12. These behaviors are still there. They manifest > > w/yeast die-off as well and just look " viral " . She is also on the > > lowest LDN dose (months) as she reacted severely > > (agressive/weepy/uncomfortable)..her DAN also wants her on Valtrex > > eventually. She has herpes/strep/varicella/rubeola (measles?)..so has > > extremely high viral load. Should I forge ahead a bit more but do > > every other day w/nmb12? We never did shots. Also, it is from > > Coastal, but did not say alternate nostrils (1 spray per day)should I > > have been doing that? Thanks. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Hi again, I'm not the original poster here but have been trying desperately to figure out why my son has regressed so far so fast. We just got strep test back from ER ... it's POSITIVE. He has had on and off OCD issues for some time now and I always wondered if he was a PANDAS kid. Question regarding pencillin. Liquid penicillin has been prescribed from regular ER doctor .. we see our DAN on FRiday .. would you suggest filling the script and giving before then. He is not feverish or anything right now and seems better today but I know we do have to treat this. Any ideas? ann Re: tics I've never heard of MB12 causing tics, but there is a subset of our kids that have tics and OCD. One of the possible causes is antibodies to certain bacteria like Strep.If MB12 causes a negative reaction, it typically goes right away when you stop.... in maybe a day or two.You may want to consider a PANDAS test which is an antibody of strep and to also look closely at your gut strategy and see if there is something more that may need to be done.- Stan> >> > Hi. I started Meg 12yo, on nasal mb12 during the winter break. No> > folinic as it was on order. Initially she did great..she is> > nonverbal/very severe, and she was attempting to talk..great eye> > contact. When I added the folinic, she was doing a strange jump..lots> > of abrupt yells, very hyped. I stopped both for 2 days and began back> > with just nmb-12. These behaviors are still there. They manifest> > w/yeast die-off as well and just look "viral". She is also on the> > lowest LDN dose (months) as she reacted severely> > (agressive/weepy/uncomfortable)..her DAN also wants her on Valtrex> > eventually. She has herpes/strep/varicella/rubeola (measles?)..so has> > extremely high viral load. Should I forge ahead a bit more but do> > every other day w/nmb12? We never did shots. Also, it is from> > Coastal, but did not say alternate nostrils (1 spray per day)should I> > have been doing that? Thanks.> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Thanks Stan. I talked to our DAN today and she feels it may be more yeast related..I am calling them tomorrow for options..probably diflucan, and then decide to hold off and restart nmb12. I'll post more as we start...Thanks so much for this group!! > > > > Hi. I started Meg 12yo, on nasal mb12 during the winter break. No > > folinic as it was on order. Initially she did great..she is > > nonverbal/very severe, and she was attempting to talk..great eye > > contact. When I added the folinic, she was doing a strange jump..lots > > of abrupt yells, very hyped. I stopped both for 2 days and began back > > with just nmb-12. These behaviors are still there. They manifest > > w/yeast die-off as well and just look " viral " . She is also on the > > lowest LDN dose (months) as she reacted severely > > (agressive/weepy/uncomfortable)..her DAN also wants her on Valtrex > > eventually. She has herpes/strep/varicella/rubeola (measles?)..so has > > extremely high viral load. Should I forge ahead a bit more but do > > every other day w/nmb12? We never did shots. Also, it is from > > Coastal, but did not say alternate nostrils (1 spray per day)should I > > have been doing that? Thanks. > > > > > Quote Link to comment Share on other sites More sharing options...
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