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Have you heard of the Hanen program. Matt wasn't talking at 3 and we took

it. It is a very good program. I recommend it highly. It's for the

parents, to make US better at communicating, finding alternate ways to

communicate, etc.. Let me know if you are interested in more information.

I think you can do a search on the web.

Sharon, mother of 6,and Matt 4 MDS

At 11:48 PM 1/25/2000 -0500, you wrote:

>From: JEMcC62@...

>

>Dear ,

>

>Although your letter was not written directly to me I wanted to thank you.

>You didn't sound high and mighty at all, just very knowledgable in your

>field. It was so very refreshing to hear a specialist say that as parents,

>we know our child(ren) best and what is right for them. I have found with

> that he does very well in his therapy classes, but does excellent at

>regular daycare. He does everything all the others do at 3 except talk,

and

>in this family...that's not a bad thing!!!!!!

>

>Thank you again for being so passionate regarding this topic!! We need more

>like you who are willing to see our kids as individuals and who will listen

>to us and OUR expertise when it comes to OUR children. I too am passionate

>about this...can ya tell???????

>

>

>mom to 7, Casey 5 and 3 MDS

>

>---------------------------

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Matt is in his second year of pre school. He is doing GREAT for the

teachers, but will not do a lot for me. lol. He does not like to " perform "

When they came to test him when he was three, I remember him pointing out

the answer for the first question...suddenly he realized he was being

tested and refused to give any more answers. They told me he scored a 71,

with 70 being " retarded " . He is now going to be 5 next week. He knows

MOST of his letters, he gets an l and i mixed up at times. He is learning

some phonics. and he can count to 20 leaving out the number 16 most of the

time. (I remember my older son always left out 14, so I'm not worried

about that) We played Mouse Trap for the first time last night and he

amazed me...he knew how many dots were on the die, and he knew how to move

that many spaces!! We got a Nintendo 64 for the boys for Christmas, Matt

has taken it over. It came with the game Donkey Kong, which is for older

kids. I DON " T EVEN UNDERSTAND IT!! anyway, he has figured out how to get

to different levels, stuff that amazes me. He is great on the computer.

He loves games like Putt Putt, Freddi Fish, etc. Where they have to figure

out how to get money to buy a piece to get him back from the moon,,,,,it

requires a lot of " thinking " skills. He is my bigger discipline problem.

He has a hard time controlling his anger. We have really had to come down

hard on him for that. But that's another story.. Hope I didn't ramble too

much. I'll get you the Hanen information ASAP (gotta find it) I believe I

can enter Hanen and search for it on the web.

Sharon mother of (6) and Matt (4, MDS)

Please let me know how Matt is doing.

>

>

>Mom to 7, Casey 5 and MDS 3

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Hi ,

Thanks for the support. I am going to try to relax about a decision about

school until my meeting in March. Sometimes I wonder if my trying to deal

with her learning disability and the Down Syndrome get in the way of my

making a decision. I just want her to be able to be a part of the same world

that we are all in and not be looked at differently or treated differently.

It is difficult enough for children to feel comfortable with each other.

Just listening to my older two and the problems they encounter makes me want

to push to have her included in everything so she will feel like she fits in

in the future. I do treat her the same as my other two. I usually try to

bring her everywhere we go even though her behavior at times makes things

difficult. She is so stubborn sometimes. I feel the more I can expose her

to the better off she will be.

Sometimes she is so funny. When we drive in the car she wanted me to explain

what the shifter was and the gas pedal and brake. She then told me she

wanted to drive. I told her she wasn't old enough. That she had to be 17.

She is so aware of everyday things.

I just want the best for her.

Take care,

Jeanne

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He does not like to " perform "

When they came to test him when he was three, I remember him pointing out

the answer for the first question...suddenly he realized he was being

tested and refused to give any more answers.

& Sharon,

I just had to respond to your description of Matt. You could have been

describing Maggie. I can remember as early as when she learned to play

" Pat-a-cake " that she would not do it if others were watching or requested

her performance. She can do so much more than most people ever see. She's

not yet had to take an IQ test, but I can imagine that when she does, her

scores will be lower than they should be. That was the case with most of her

pre-IEP assessments. As always, it's good to know that others share similiar

experiences with their children.

Carla

MO Maggie 3 1/2 (mds)

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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Carla,

Hello! Just had to respond to the message you wrote to & Sharon.

My Naomi is the same!!!!! She will be 3 in March. We have had Birth-to-3

intervention program for her since she was a few months old. Whenever the

therapists are here, she never does what I say she is now doing. It makes

me feel like a liar! :-) Just tonight, Naomi was putting on a show for us

with her Pooh, Tigger, and Piglet puppets, and then sat with the pile of

clean laundry (towels and washcloths) and folded very carefully the

washcloths----my sister turned to me and said, Why doesn't she ever do these

things when the therapists are here? Beats me! Although, I must say, that

lately she has been " performing " more for the therapists. I found a trick

that helped---instead of letting them do their " therapy " things with new

toys and games that they bring in, I show them what she does with toys and

books that she owns here, that she is already familiar with. For example,

she loves to draw on the Magna Doodle, I draw faces with eyes, nose, mouth,

ears, hair, etc. And as I draw, she names the different parts. Then she

erases the whole thing and draws a face, with eyes, nose, mouth, etc. She

is quite good at it. So, last time her therapist came, I took out the Magna

Doodle and drew, and then had Naomi do it, and the teacher was amazed that

she actually drew a face. So, you have to find what works, I guess.

Sorry this is so long---have a great day!

Nathalie mommy of (5 1/2), Naomi (almost 3), and Anne (almost 1)

Re: School

>

>

> He does not like to " perform "

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  • 1 month later...
Guest guest

this is thursday night, tommorrow is friday, then comes saturday, and

sunday.... and then comes MONDAY ....... the day I put my not yet three year

old baby on that big yellow cheese box with wheels.... to send her off into

the world to start her independance.......and suddenly I am not ready for

this......

Just yesterday I was carting her around in her infant carrier, my little

peanut went every where with me, now having grown into a walnut she follows

me on her own, and is going to willingly make the leap to the ground from the

tree, some squirrel will come thru gather her up and take her off on another

leg of her journey thru life leaving me waving bye bye at the side walk, till

they are out of sight, now comes the hardest decision in my life, do I do the

hustle back up the side walk, or the moon walk???? ha you thought I was going

to say do I chase the bus ..... or stand there and wait for it to come

back....... well right after I hustle back into the house and jump into the

shower for the first unassisted shower in three years.......... I have this

book that is calling me.... it is saying read me read me read me.......so

naturally in order to read this book I must lay in the prone position on the

couch....... the first time I have gotton to lay without a child attached in

many many many years........... ohhhhhhhhhhhh better then a

spa............................. when in reality I am still sitting on the

curb waiting for my baby to come home............ debbi mom to kaiteeanne

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  • 4 weeks later...
Guest guest

Sharon,

Thank you for the information regarding the Hanen program. I am going to go

to the website after I finish the laundry, which could be in the next

decade!!!!!! I appreciate you remembering me. Thank you again. I will let

you know what I think.

Mom to 7, Casey 5 and MDS 3

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Guest guest

>No I don't think I have heard of the Hanen program and YES!...I would love

>more information. I am very interested in learning other ways of

>communication.

Dear :

Sorry this has taken so long. I was saving this message so I could look

up the address. We did some moving around, office wise, so I couldn't find

the papers from the program. I was just getting rid of old mail and saw

this. I looked up the address on the web and here it is. Hope it is not too

late. It's a GREAT program for children with speech delays. I am sure you

will learn a lot from it. The address is: www.hanen.org

Sharon, mother to Matt 5 MDS, and 7

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