Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Hi Dawn, I believe Dr. Tim Buie, a pediatric gastroenterologist at Mass General Hospital in Boston, believes toe-walking is often a sign of bowel pain/problems. I remember hearing a story about a girl with autism who, upon learning to communicate better, told her doctor and parents that she used to toe-walk because it " made her tummy feel better. " I am sure that it is not always the case, but I suspect that for many of our kids bowel pain is a contributor to toe-walking. Suzanne Woodland Hills, CA On Feb 8, 2006, at 8:23 AM, mb12 valtrex wrote: > Message: 23 > Date: Wed, 08 Feb 2006 15:19:43 -0000 > > Subject: Toe Walking > > This question is not specifically a Valtrex issue, but I was wondering > what you all have done about/or know what causes toe walking. My son > is 3 years 10 months and has been up on his toes since he was one. We > have tried (I think) everything, but thought maybe someone out there > could tell me what they did or know why our kids do this. Anyone seen > the toe walking deminish with Valtrex? > > Thanks. > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 This has not been an issue for my son but I do know of people who have gone to visual specialists for toe-walking. I think for some kids it can be a perceptual thing. > > > Message: 23 > > Date: Wed, 08 Feb 2006 15:19:43 -0000 > > > > Subject: Toe Walking > > > > This question is not specifically a Valtrex issue, but I was wondering > > what you all have done about/or know what causes toe walking. My son > > is 3 years 10 months and has been up on his toes since he was one. We > > have tried (I think) everything, but thought maybe someone out there > > could tell me what they did or know why our kids do this. Anyone seen > > the toe walking deminish with Valtrex? > > > > Thanks. > > Dawn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 In my experience, toe walking is often a sensory integration issue. The child is typically hyposensitive (undersensitive... or low registration) and is walking on the toe to get more pressure and sensation in order to feel more confident about feeling the floor. This usually ends when the sensory integration ends which is often when methylation or other metaboloc impairment or gut dysfunction is improved. - Stan > > This question is not specifically a Valtrex issue, but I was wondering > what you all have done about/or know what causes toe walking. My son > is 3 years 10 months and has been up on his toes since he was one. We > have tried (I think) everything, but thought maybe someone out there > could tell me what they did or know why our kids do this. Anyone seen > the toe walking deminish with Valtrex? > > Thanks. > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 More thoughts: My son's sensory issues declined significantly when we changed his diet and reduced his fungal levels and again when we did antiviral therapy. - Stan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Stan, did you see toe walking return during Ethan's regressive-healing stage on Valtrex? Natasa > > More thoughts: > > My son's sensory issues declined significantly when we changed his diet and reduced his > fungal levels and again when we did antiviral therapy. > > - Stan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Since my son was very hypotonic and floppy he did not have the strength to toe walk. His inner ankle would rotate down towards the floor. We had to put him in over the ankle orthodics and he was in those for about 18 months. He WAS very sensitive to touch and defensive with textures and water before and during Valtrex. I'm not sure if it became worse for him during the regressive-healing stage. I don't remember. But diet and Valtrex where the two best therapies for the SI dysfunction. I HAVE seen and heard of children's toe walking become more pronounced during Valtrex. - Stan > > > > More thoughts: > > > > My son's sensory issues declined significantly when we changed his > diet and reduced his > > fungal levels and again when we did antiviral therapy. > > > > - Stan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 > > > > > > More thoughts: > > > > > > My son's sensory issues declined significantly when we changed his > > diet and reduced his > > > fungal levels and again when we did antiviral therapy. > > > > > > - Stan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Natasa, Our son, age 3.0, recently began toe-walking which is quite unusual for him. He has been on Valtrex for a little over 2 months and this recent episode of toe-walking coincided with a new series of rashes (which appear like red/pink patches). We feel strongly that the toe- walking is in direct relation to a new round of excretion (be it viral or metals). Hope this helps. Luke (Valtrex 250mg. 3x per day) (gfcfsf and SCD) > > > > > > More thoughts: > > > > > > My son's sensory issues declined significantly when we changed his > > diet and reduced his > > > fungal levels and again when we did antiviral therapy. > > > > > > - Stan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 , thanks, that is definitely useful to know. Also, did you by any chance start adding any vitamins or supplements recently, especially B vitamins? Or have you changed brands or dosing? Natasa > > > > > > > > More thoughts: > > > > > > > > My son's sensory issues declined significantly when we changed > his > > > diet and reduced his > > > > fungal levels and again when we did antiviral therapy. > > > > > > > > - Stan > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Natasa, In fact, we recently switched over to Brainchild vitamins/minerals. I have considered that this switch could also play a role in Luke's recent toe-walking. We are going to dose these for a full month, then take a break to notice any differences. (Luke was previously taking SuperNuThera for vitamins with some additional minerals from Wellness. I haven't yet compared the B vitamin doses in each, but I think I will do that right now!) Take care, > > > > > > > > > > More thoughts: > > > > > > > > > > My son's sensory issues declined significantly when we changed > > his > > > > diet and reduced his > > > > > fungal levels and again when we did antiviral therapy. > > > > > > > > > > - Stan > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 , that is interesting. The reason I asked was because we started a few individual b vitamins and that was followed with lots of toewalking and also increased a few 'Valtrex-regression-type symptoms we had been seeing (he is on 'high doses' of crushed garlic only). I wonder if these vitamins just amplified whatever was happening... of course, could have been a metabolic reaction to vitamins themselves, although we did start small and moved slowly, and he is also deficient in those. Natasa > > > > > > > > > > > > More thoughts: > > > > > > > > > > > > My son's sensory issues declined significantly when we > changed > > > his > > > > > diet and reduced his > > > > > > fungal levels and again when we did antiviral therapy. > > > > > > > > > > > > - Stan > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Natasa, We too began slowly and worked our way up with b vitamins/Brainchild. Now that I think about it, Luke's new rashes coincided with the introduction of Brainchild vit/minerals. Please keep me posted - and I'll do the same! > > > > > > > > > > > > > > More thoughts: > > > > > > > > > > > > > > My son's sensory issues declined significantly when we > > changed > > > > his > > > > > > diet and reduced his > > > > > > > fungal levels and again when we did antiviral therapy. > > > > > > > > > > > > > > - Stan > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 , this is now our second day without b vitamins and NO RASHES. I am sure now this was what was causing them - the label on vit B3 actually warns of possible skin reaction (although the rashes appeared before we introduced that one). Still lots of toe walking and some spinning and slightly flushed cheeks but a bit more present, definitely less hyper. Stan, do you have any thoughts on this or knowledge on possible links between vit's B and antiviral treatment/reactions and sensory issues. We are also going to drop garlic and see what happens - although it might be doing great things antivirally and antifungally, I am just a bit worried that it could have some negative metabolic effects re sulphure and cysteine levels. Natasa > > > > > > > > > > > > > > > > More thoughts: > > > > > > > > > > > > > > > > My son's sensory issues declined significantly when we > > > changed > > > > > his > > > > > > > diet and reduced his > > > > > > > > fungal levels and again when we did antiviral therapy. > > > > > > > > > > > > > > > > - Stan > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Very interesting observation. Keep us posted. - Stan > > > > > > > > More thoughts: > > > > > > > > My son's sensory issues declined significantly when we changed > his > > > diet and reduced his > > > > fungal levels and again when we did antiviral therapy. > > > > > > > > - Stan > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 I guess the question is " When is a rash a good thing and when is it a bad thing? " As I mentioned in an earlier email, I do suspect that some vitamins may cause an immune system response, so that's one possibility. On the other hand, the b vitamins may be helping methylation and you are methylating something that is causing the rash. Or, the overload of a B vitamin may be slowing down methylation and then the gut becomes more impaired and the leakage causes the body rash. It's very hard to tell from here. You may want to do a MAP and OATS test and see what you can learn. This, IMO, is not an easy thing to figure out --espeically over the Internet.... from here. But maybe some of the things I'm thinking of above may help to give you some ideas how to figure this out. - Stan > > > > > > > > > > > > > > > > > > More thoughts: > > > > > > > > > > > > > > > > > > My son's sensory issues declined significantly when we > > > > changed > > > > > > his > > > > > > > > diet and reduced his > > > > > > > > > fungal levels and again when we did antiviral therapy. > > > > > > > > > > > > > > > > > > - Stan > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 One more thought. Maybe if you look at the behaviors during this rash to see if you see ANYTHING posative... maybe that will help. - Stan Quote Link to comment Share on other sites More sharing options...
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