Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 how does one know if the child will tolerate folinic or not? is it purely trial and see or are there some data or reports or polls available as to the type of child blood or otherwise? do most start with no folinic first and then wait to see results and then if not enough positives try the spray with folinic? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 There are tests that some doctors use, but I'm not sure how accurate they are. I would just do a trial of MB12 with and without it and see if you notice a difference. I think that's the best way to be sure these days. Typically, if you problems with folinic, then you folic may be better. So, really there might be as many as three trials. No folinic with folinic with folic - Stan > > how does one know if the child will tolerate folinic or not? is it > purely trial and see or are there some data or reports or polls > available as to the type of child blood or otherwise? do most start > with no folinic first and then wait to see results and then if not > enough positives try the spray with folinic? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 > > > > how does one know if the child will tolerate folinic or not? is it > > purely trial and see or are there some data or reports or polls > > available as to the type of child blood or otherwise? do most start > > with no folinic first and then wait to see results and then if not > > enough positives try the spray with folinic? thanks so much stan for answering both of my questions. i am mostly worried for regression with my 9 yr old as he is so HF and most issues have been behind us for 5 years. though i now believe this may be the one thing for him to try since we have not done any biomed other than diet for 5 yrs. can you tell me if after regression periods do most return to current levels and then improve? b/c this is happenning after this cold sore event,he is mostly back now and how long do most stay on valtrex? are there any doing it without mb12? as im not sure he needs that unless they somehow work together. sorry to be so questionable as i am really stuck with knowing what to do, it's not like we are still searching because he truely is a great kid in all ways functioning at or slightly below grade level and is a social butterfly. this just happened to catch my eye while going forth with treated our other son. i just dont want to not do more for him if i can on one hand and on the other i would absolutely be mortified if i contributed to a down grade or loss of functioning in his life. i know you beleive in this treatment, could you go in my shoes and tell me your opinion and course of action with these circumstances? or have you known of similiar childrens results on the protocal? i would truely appreciate it thanks so much! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 Yes, typically we see the regression end and then gains. A good portion of people see a some type of small gain mixed in with the regressions. I noticed that with my son. It's what helped me to stay on course. My son was not a responder to MB12 shots and I hadn't even thought of making the spray back then, so to answer your question - many people do just fine on Valtrex without MB12. I don't feel it's a requirement and we haven't had many people do both yet. I'm interested in seeing if it helps with the process but I'm not sure if it will. I just happen to like both therapies for different reasons, that's why the group works on both therapies. My son regressed for about 20 days and began improving thereafter. I kept him on Valtrex and Diflucan for for 9 months. When I took him off I retested his OATs and metabolic profiles and he looked much better. He's just been on his diet and some vitamins ever since and he's doing wonderfully. I would keep my child on Valtrex for a while, especially if you keep seeing gains. I stopped after 9 months because he seemed to have platued for about a month. Once we stopped his plateu ended and with the test results that came back after he was off everything we decided to stop and see what would happen. He's been off Valtrex and antifungals for about a year now. His tongue is still clear and he keeps improving. On the other side of things I have heard of parents who stopped Valtrex a month after the regressive stage and the child went slowly backwards thereafter. In the early days of my learning I had a child at our school that went though. It was heartbreaking. It was a young family and mom decided the child was " cured " and probably never had autism and then in a couple short months she lost eye contact and speech AGAIN. It broke my heart. The family ended up leaving the school and I've never heard from them. It was a case of denial and guilt mixed on the parents side, a doctor with no experience with Valtrex or autism, and me not having enough data and knowledge to convince them to stick with it. That family was the first family with autism I started " coaching " after my son started improving on Valtrex. I didn't suggest they should stop. The mom just couldn't deal with the diet, the therapy, and the stigma. They didn't want to believe their non verbal 3 year old girl with no eye contact had autism. Of course since this was her decision, a part of me was curious if the gains (which included speech and eye contact in just 5 weeks) would stick... and they did for a few weeks and then she just started falling apart --ultimately right back to where she was --and the family didn't want to do anything about it and I couldn't reach them based on their feelings and my experience and abilities at the time. It was an ugly time for me (and probably for that family as well). It was about 2 years ago I think. I lost a lot of sleep from that one. I'm sharing this with you so you can have a perspective on when is a good time to stop. It's a question on everyone's mind. Ultimately, at this point there is no set answer and it's logical to think it's different with each child. My feeling is to stay on for as long as you see gains. It takes time for the body to handle the pathogens and to detox enough to normalize itself and we need to give the body support for as long as it needs to catch up. Yes, we don't like our children using crutches, but there is a reason for crutches.. they help the body heal. In this case, I would air on the side of leaving your child on Valtrex until you feel confident your child no longer needs it and if you remove it and if you see losses, I would get right back on. - Stan > > > > > > how does one know if the child will tolerate folinic or not? is > it > > > purely trial and see or are there some data or reports or polls > > > available as to the type of child blood or otherwise? do most > start > > > with no folinic first and then wait to see results and then if > not > > > enough positives try the spray with folinic? > thanks so much stan for answering both of my questions. i am mostly > worried for regression with my 9 yr old as he is so HF and most > issues have been behind us for 5 years. though i now believe this > may be the one thing for him to try since we have not done any > biomed other than diet for 5 yrs. can you tell me if after > regression periods do most return to current levels and then > improve? b/c this is happenning after this cold sore event,he is > mostly back now and how long do most stay on valtrex? are there any > doing it without mb12? as im not sure he needs that unless they > somehow work together. sorry to be so questionable as i am really > stuck with knowing what to do, it's not like we are still searching > because he truely is a great kid in all ways functioning at or > slightly below grade level and is a social butterfly. this just > happened to catch my eye while going forth with treated our other > son. i just dont want to not do more for him if i can on one hand > and on the other i would absolutely be mortified if i contributed to > a down grade or loss of functioning in his life. i know you beleive > in this treatment, could you go in my shoes and tell me your opinion > and course of action with these circumstances? or have you known of > similiar childrens results on the protocal? i would truely > appreciate it thanks so much! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 Yes, typically we see the regression end and then gains. A good portion of people see a some type of small gain mixed in with the regressions. I noticed that with my son. It's what helped me to stay on course. My son was not a responder to MB12 shots and I hadn't even thought of making the spray back then, so to answer your question - many people do just fine on Valtrex without MB12. I don't feel it's a requirement and we haven't had many people do both yet. I'm interested in seeing if it helps with the process but I'm not sure if it will. I just happen to like both therapies for different reasons, that's why the group works on both therapies. My son regressed for about 20 days and began improving thereafter. I kept him on Valtrex and Diflucan for for 9 months. When I took him off I retested his OATs and metabolic profiles and he looked much better. He's just been on his diet and some vitamins ever since and he's doing wonderfully. I would keep my child on Valtrex for a while, especially if you keep seeing gains. I stopped after 9 months because he seemed to have platued for about a month. Once we stopped his plateu ended and with the test results that came back after he was off everything we decided to stop and see what would happen. He's been off Valtrex and antifungals for about a year now. His tongue is still clear and he keeps improving. On the other side of things I have heard of parents who stopped Valtrex a month after the regressive stage and the child went slowly backwards thereafter. In the early days of my learning I had a child at our school that went though. It was heartbreaking. It was a young family and mom decided the child was " cured " and probably never had autism and then in a couple short months she lost eye contact and speech AGAIN. It broke my heart. The family ended up leaving the school and I've never heard from them. It was a case of denial and guilt mixed on the parents side, a doctor with no experience with Valtrex or autism, and me not having enough data and knowledge to convince them to stick with it. That family was the first family with autism I started " coaching " after my son started improving on Valtrex. I didn't suggest they should stop. The mom just couldn't deal with the diet, the therapy, and the stigma. They didn't want to believe their non verbal 3 year old girl with no eye contact had autism. Of course since this was her decision, a part of me was curious if the gains (which included speech and eye contact in just 5 weeks) would stick... and they did for a few weeks and then she just started falling apart --ultimately right back to where she was --and the family didn't want to do anything about it and I couldn't reach them based on their feelings and my experience and abilities at the time. It was an ugly time for me (and probably for that family as well). It was about 2 years ago I think. I lost a lot of sleep from that one. I'm sharing this with you so you can have a perspective on when is a good time to stop. It's a question on everyone's mind. Ultimately, at this point there is no set answer and it's logical to think it's different with each child. My feeling is to stay on for as long as you see gains. It takes time for the body to handle the pathogens and to detox enough to normalize itself and we need to give the body support for as long as it needs to catch up. Yes, we don't like our children using crutches, but there is a reason for crutches.. they help the body heal. In this case, I would air on the side of leaving your child on Valtrex until you feel confident your child no longer needs it and if you remove it and if you see losses, I would get right back on. - Stan > > > > > > how does one know if the child will tolerate folinic or not? is > it > > > purely trial and see or are there some data or reports or polls > > > available as to the type of child blood or otherwise? do most > start > > > with no folinic first and then wait to see results and then if > not > > > enough positives try the spray with folinic? > thanks so much stan for answering both of my questions. i am mostly > worried for regression with my 9 yr old as he is so HF and most > issues have been behind us for 5 years. though i now believe this > may be the one thing for him to try since we have not done any > biomed other than diet for 5 yrs. can you tell me if after > regression periods do most return to current levels and then > improve? b/c this is happenning after this cold sore event,he is > mostly back now and how long do most stay on valtrex? are there any > doing it without mb12? as im not sure he needs that unless they > somehow work together. sorry to be so questionable as i am really > stuck with knowing what to do, it's not like we are still searching > because he truely is a great kid in all ways functioning at or > slightly below grade level and is a social butterfly. this just > happened to catch my eye while going forth with treated our other > son. i just dont want to not do more for him if i can on one hand > and on the other i would absolutely be mortified if i contributed to > a down grade or loss of functioning in his life. i know you beleive > in this treatment, could you go in my shoes and tell me your opinion > and course of action with these circumstances? or have you known of > similiar childrens results on the protocal? i would truely > appreciate it thanks so much! > > > > > > Quote Link to comment Share on other sites More sharing options...
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