Need advice- Dr Bolognese??

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Some questions

Some time ago I an email requesting help in finding a Dr in

Australia.A suggestion was made to see Dr Stoodley. So I saw him

recently.The examination was carried out by a female colleague with

everything done while I was either sitting in the chair or doing heel

toe in a very small area.( there was no examination table)Dr Stoodley

came to see me for about 10 mins.He refused to be drawn into any

conversation about my upper body problems and said I just needed to

decide when my " leg " pain was bad enough to have surgery.

Problem is my whole body is in pain,(my upper thoracic,cervical and

arms are as bad as my legs) and I feel so sick all the time with

chronic sore throats.There was no mention of checking for Chiari

though he did say that my tether was very obvious on the scan.I also

explained to him about the hormonal trouble I'd had over the last ten

years.He ordered some evoked potentials test which I am to have done

next week.I suffer a great deal of stress to travel as we are over 6

hrs from any major facility.His colleague refused me any option of

going to any other hospital for these tests while I was there in

Sydney so it is now another trip with more expense. (The first trip

alone put us out of pocket $1300(AUS)

I would have liked for him to show me the MRI's and explain it to me

and also discuss whether I need to be checked for Chiari( I have most

of the symptoms on the list).Am I going about things the wrong

way?Should I email Dr Stoodley and ask him about Chiari?He said that

he only does about 2 TC a year.Is that a normal amount of TC's that a

surgeon would do a year?Is that enough experience in this type of

surgery?I really need some directon as my symptoms have increased

rather dramatically over the last 12 months.Dr Stoodley said that my

symptoms shouldn't be getting worse but they have.Does TC cause the

extreeme pain in the upper body??

Please don't get me wrong,I don't mean to put Dr Stoodley down I just

need to know how to go about getting him to listen.He is a lovely Dr

but i just found it difficult to try and explain over ten years of

symptoms and history in 10 mins.Do they not understand how hard it is

to both physically and financially get to tests and appointments?It

just seems like we are all in the " too hard basket " sometimes.Sorry

for venting,but really feel like giving up.We have no kind of support

in my small country town and no-one just no-one understands what this

pain is like.

What should I do? Can anyone help??