am new here

[Guest guest]

hi my name is gia

have acm 1 with a muduallary kink lyme disease and rsd

i take a huge amount of pain meds and am sick and

tired of going to a new doc and not only explaining

what acm is but why i take all these pain meds am sick

of that sidways glance and feel like telling doc to do

there homework there the ones making a 100 grand a yr

not me i make a woppin 390 from social security this

is my problem have had decompression surgery in 98

then my brain began to sag so had to have a cranial

plasty in which when i informed my parents they said

where going to aruba cant you rescedual yes ill tell

my brain to put it on hold 4 you well ended up doing

it anyway and it rained a tropical rainstorm when they

went see god does work his magic when needed problem

is am thinking of making that 2hr drive to see dr.b am

having new symptoms and you know maybe this time it

will work my family including hubby say your really

thinking of letting them cut your skull open 4 the

third time your really asking for trouble i come from

a wonderfully loving family untill i got sick the

point is i cannot stay on this amount of pain meds for

ever sonner or later its gonna effect me double edge

sword these diseases am looking for any advice i can

get am sick and tired of living with head pain every

single waking minute of the day worrying about will i

have enough pain meds 2 last the month ive got to

something and they have made huge progress since 1999

this could be the ticket

thank you much for reading this long

drawn out letter and never using capitals i can barely

do this

god bless AND THANK YOU ALL AGIAN GIA