AAAagghhh! Mom in Mass needs some encouraging words!

[Guest guest]

Update here, and looking for those lovely " things WILL ge better "

messages!

My 9yo daughter diagnosed w/OCD/TS on january 10th, after 4 days of

basically a breakdown with 2 ER visists and enough Ativan to kill a

horse.

Has been on Zyprexa and Luvox for 3 weeks now. We have tapered the

Zyprexa down to bedtime only, and she is doing Risperdal twice a

day. Luvox at bedtime. After some lackluster sessions with a CBT,

we met a new one yesterday. She seemed to " click " with Maddie.

There was a good deal of talking, some laughing, some anxiety

present, but generally good I thought.

Maddie and Dad have been making goals every day around how long she

will stay at school. She has done up to two hours. Then she'll have

anxiety. They try to work through it at school, and don't leave

until she is calm. The next goal is to work through it and then

return to class.

So yesterday after this session, I was feeling more hopeful than I've

felt in weeks. Then last night we have a meltdown. Her OCD is

around obsessions and reassurance. Well, she got a sore throat. Was

fine all night until her throat started hurting. Within about 20

minutes she was ballistic about going to the ER, because she couldn't

swallow, and her tonsils were all lumpy. No fever, or anything. She

was putting on her shoes and coat to head out the door. Along came

Mom and Dad tag team.

Dad very firmly told her we were NOT going to have another night of 6

hours in the ER (that's where we spent most of her initial crisis).

He assured her that we wouldn't let anything happen to her, but that

we were not going to let OCD make us spend the night in the ER. She

of course was SOOO upset. " Why don't you want to help me?? " "

In the end, she was calmed down (more Zyprexa and some Benadryl)

enough to go to bed (where I believe she was able to swallow all

night). Don't know what today is bringin, as I am working and

haven't heard the update.

In some small way, as horrible as it was, I told her she did great,

because we DIDN'T end up in the ER. That's a victory, right?

I know long term she will learn how to deal with this with some

anticipated ups and downs. But right now I can't imagine she'll be

able to get back to 4th grade and being a kid.

Please help a newbie out.

Mom in Mass.

[Guest guest]

>

> So yesterday after this session, I was feeling more hopeful than I've

> felt in weeks.  Then last night we have a meltdown.  Her OCD is

> around obsessions and reassurance.  Well, she got a sore throat.  Was

> fine all night until her throat started hurting.  Within about 20

> minutes she was ballistic about going to the ER, because she couldn't

> swallow, and her tonsils were all lumpy.  No fever, or anything.  She

> was putting on her shoes and coat to head out the door.  Along came

> Mom and Dad tag team.

>

> Dad very firmly told her we were NOT going to have another night of 6

> hours in the ER (that's where we spent most of her initial crisis). 

> He assured her that we wouldn't let anything happen to her, but that

> we were not going to let OCD make us spend the night in the ER.  She

> of course was SOOO upset.  " Why don't you want to help me?? " "

>

>

I just finally got the book " Blink, Blink, Clop, Clop, Why We Do Things

We Can't Stop " and read it with my son who is 7. Although we've been

doing a lot of cognitive stuff with him, and he has a good

understanding of OCD, he really liked the book. He found it humorous,

but also reassuring because the animal characters in the book really

pegged some of his issues. I would guess it would also be appropriate

for much older kids.

If you can find it, I think it might be worthwhile to read with your

daughter.

Jeanne

jwestpha@...

NBCT - Exceptional Needs (2000)

[Guest guest]

Hey! It sounds like you guys did great, remember one step forward, 2 back....but

you will get there! We have taken this class through Kaiser - the doc seperates

the ocd, it has become " Mr. Boo " and we have had great success getting our son

to seperate Mr Boo from reality. If you want more info, let me know. Jen

Jeanne wrote:>

> So yesterday after this session, I was feeling more hopeful than I've

> felt in weeks. Then last night we have a meltdown. Her OCD is

> around obsessions and reassurance. Well, she got a sore throat. Was

> fine all night until her throat started hurting. Within about 20

> minutes she was ballistic about going to the ER, because she couldn't

> swallow, and her tonsils were all lumpy. No fever, or anything. She

> was putting on her shoes and coat to head out the door. Along came

> Mom and Dad tag team.

>

> Dad very firmly told her we were NOT going to have another night of 6

> hours in the ER (that's where we spent most of her initial crisis).

> He assured her that we wouldn't let anything happen to her, but that

> we were not going to let OCD make us spend the night in the ER. She

> of course was SOOO upset. " Why don't you want to help me?? " "

>

>

I just finally got the book " Blink, Blink, Clop, Clop, Why We Do Things

We Can't Stop " and read it with my son who is 7. Although we've been

doing a lot of cognitive stuff with him, and he has a good

understanding of OCD, he really liked the book. He found it humorous,

but also reassuring because the animal characters in the book really

pegged some of his issues. I would guess it would also be appropriate

for much older kids.

If you can find it, I think it might be worthwhile to read with your

daughter.

Jeanne

jwestpha@...

NBCT - Exceptional Needs (2000)