Re: Newbie with some questions

[Guest guest]

I too am overwhelmed at all the information now available to me after joining

the group only a week ago. Good information I may add.

Although I recently joined the group online, my son Evan, who is 3.5 has been a

patient of Dr. Goldbergs for six months.

On our initial visit Dr. G had indicated that he felt very optimistic for Evan

and he told my husband and I that we should see a much brighter little boy in

six months.

Our first visit was in June, and I remember thinking, what a great Christmas

present it would be to see progress and we proceeded to follow Dr. G's care for

Evan.

It was a bit frustrating at first finding a way that Evan would take the meds,

but once we got a system down, and he was taking the medications consistantly,

we started to see progress around 10 weeks. The progress was slow, but we were

going in the right direction and we continued. Christmas came and went, and

although I had hoped to hear my son talk again (He used to be very verbal until

15 months old) I can say he is much brighter, his receptive language has

improved 75% from where we were six months ago.

I can honestly say that we are extremely happy with Evan's progress and we are

looking forward to our next visit with Dr. G this summer.

Mindy

Newbie with some questions

Hello everyone!

I'm simply overwhelmed at the information from the site!

It looks like it's time to learn a whole new set of terms, phrases,

drugs, contacts, numbers, web sites and so on. It seems that

once you find out your child has been diagnosed, the learning

curve goes way up with familiarizing yourself with all the terms,

conditions and treatments. Oh well, information is power in

helping our kid's future.

I recently read an article discussing the promise and results

from some of the new patients that Dr. Goldberg has seen

utilising the protocol. It truly is amazing!

I'm seriously considering visiting his clinic with my 4.5 year old

son. He has a mild form of PDD-NOS and does have the speech

and social delays which are consistent with many of the children

in the Spectrum. What truly seemed alarming was where I read

many of these children have the ubiquitous ear infections, colds,

dark circles, chest congestion. etc. It does seem evident that an

immunity disorder could be the culprit. And the theory that the

brain in turn is not receiving enough blood in the lobes which

control speech, socializing,etc. does make sense.

I've had the pleasure of speaking with a few of the couples who

have seen results immediately using the protocol. However it

would be of great interest to hear of any direct or anecdotal

stories from families whose children have done particularily well

as per the testimonials on the web site. Negative stories

are welcome too.

Thanks!!!

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the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

[Guest guest]

Thanks for your story on your son. As a newbie too it helps to hear

from others. I feel compelled to log into this message board several

times a day to see what's new and just to stay on top of things,

because you never know what may pertain to you and your child.

To whoader, who is thinking of seeing Dr. G....the one thing my

husband and I found so compelling about is the scientific

basis....no one else had truly medically examined our child to see if

he had a medical illness. How do we know he doesn't have a brain

tumor? Or any one of a number of other things?? Having all of the

lab work done confirmed that things were not right in his body.

Good luck!

> I too am overwhelmed at all the information now available to me

after joining the group only a week ago. Good information I may

add.

> Although I recently joined the group online, my son Evan, who is

3.5 has been a patient of Dr. Goldbergs for six months.

> On our initial visit Dr. G had indicated that he felt very

optimistic for Evan and he told my husband and I that we should see a

much brighter little boy in six months.

> Our first visit was in June, and I remember thinking, what a great

Christmas present it would be to see progress and we proceeded to

follow Dr. G's care for Evan.

> It was a bit frustrating at first finding a way that Evan would

take the meds, but once we got a system down, and he was taking the

medications consistantly, we started to see progress around 10

weeks. The progress was slow, but we were going in the right

direction and we continued. Christmas came and went, and although I

had hoped to hear my son talk again (He used to be very verbal until

15 months old) I can say he is much brighter, his receptive language

has improved 75% from where we were six months ago.

> I can honestly say that we are extremely happy with Evan's progress

and we are looking forward to our next visit with Dr. G this summer.

>

> Mindy

>

[Guest guest]

Lori and group;

Hello Lori and welcome. I would suggest to you to see a

rheumatologist, we call them rheumys, I read that also that the

pain would be on both sides of our bodies. The twin factor I think

it's called. If it's the knees than it's both kness. If it's the

hands than it would be both for rheumatiod arthritis.

I can't understand why your doctor didnt reccomend you to a

rheumatolosgist. It's best to start treatment right away for to

keep it from progressing. Some insurance require a your doctor

reccomendation to your rheumy. Than ask your doctor to do this. I

am sure he would be happy to do this for you. I hope I have helped

some. I hope you feel better also. God bless and take care.

gentle hugs

Clora

*****************************************************

>

> Hello all,

> I have been lurking for a little while and you all seem to be very

> knowledgable so I want to introduce myself and ask some questions.

> I have not been formally diagnosed with RA but I suspect I may

have

> it. A few months ago I had a physical and brought up my aching

ankles

> and extreme fatigue. My dr did blood work and we found out I am

pretty

> severly anemic. She told me to take iron and repeat labs in a

> month. The anemia is improving.

> She also did a rheumatic factor and said it was slightly

positive.

> She did not give me the actual number. She also was not sure if the

> anemia could be causing the positive rheumatoid factor.

> My first question is...If I had a positive rheumatoid factor test,

> does that mean I have RA? I have read several places that you do

not

> need to have a positive RF to have RA, but I can't find out if you

> have a positive RF then do you definatley have RA.

> My other question involves the achiness and pain. I have read

that

> it usually will show up on both sides of the body. For example both

> hands, both knees. Is this always true? I seem to have more pains

in

> my one knee and the opposite shoulder. I was hoping this doesn't

mean

> that I will eventually have these pains in my other knee and

> shoulder. I do have pains in both ankles, especially in the

> morning or after sitting for a while. The more I read about RA the

> more I suspect it might be what is causing my pain. I have had on

> and off pain for several years in different parts of my body that I

> thought was just normal.

>

> Thanks in advance for any information you can give.

>

> Lori

>