New member: My niece may have

[Guest guest]

I have been digesting as much info as possible from this list. It's

more than I can handle at once, so I'm posting in an effort to help

narrow my search here.

Two years ago, I wrote a freelance article for a Gannett newspaper

about the " new " form of autism. At that time, it was most often

referred to as " autistic spectrum disorder. "

I now have a 26-month-old niece who demonstrates most of the

diagnostic criteria. Her pediatricians and pediatric neurologists

have repeatedly reassured her parents that she is " not autistic, " but

they have NEVER indicated that anything like an autistic spectrum

disorder or neuroimmune dysfunction syndrome exists.

This child's mother, my sister-in-law, has recently requested the new

patient packet for securing an appointment with Dr. Goldberg.

My question, and I apologize for my long-windedness, is: Does anyone

on this list have an INFANT that developed normally for the first

four or five months then proceeded to exhibit developmental delay,

hypotonia, and other symptoms of ? I have read the 88 pages of

Dr. Goldberg's latest presentation, and he indicates that he is

seeing some children demonstrating this syndrome in INFANCY. My

niece is now demonstrating some very disturbing self-distructive

behavior, and we are seeking some answers FAST.

If anyone has this particular scenario with their child, would you

please email me at twedts@...? Or at

fanmail@.... Thank you so very much. We are desperate

for information ASAP!

Grateful for this message board and the Web site!!

~~