Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 -----Original Message----- >You are, as I believe you know, completely justified >in your fury at the respite care center. Thanks >goodness Hannah didn't have a seizure as a result of >the mistake with her formula. It is so upsetting when >others are careless with our children, when we as >parents have worked so hard to develop feedings, >therapies, or other measures to help them. I know it >will be a relief, in many ways, to have Hannah back in >your care. And hubby, too. Oh Meg, the seizures did come. Two tonic clonics at 9.30pm and 11.30 pm after the wrong feed at lunchtime. The thing which upsets me is that one of them resulted in a cyanose reaction and, you know what?, the staff never called me, not even the next morning. I had specially asked them to inform me if there were any adverse reactions. Dont they think seizures that turn a kid blue are adverse events??? I am so cross and disappointed, and there are feelings inside me that I can't even identify, desperate feelings of not being able to trust them again, and yet knowing that I will have to at some point as I cant keep going without the breaks they give us. Cant live with them and cant live without them. And I am so sad for Hannah having to endure all this because of somebody's stupidity. I have not forgotten the pawpaw info. Stay tuned! Regards - (happiest mum in the world to have both her husband and child home and safe) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.