Guest guest Posted November 26, 2006 Report Share Posted November 26, 2006 or Yvette or anyone, What brand of juice has fiber in it that you use? Thanks, Farhin > > > > > > > > > > Hi Jeanie, > > Yes, unfortunately she did take Miralax for a few years. She could not go > with out it. Now the Juice + Fibre has worked wonders plus her pureed prunes > & oatmeal for breakfast. > > I wish I would have known about the juice sooner. > > When my dd is in the auditorium at school & the children are singing or > yelling she keeps her fingers in her ears, but if she is playing with > certain toys she will put them against her ear. It seems that it is only > certain noises that she is very sensitive to. > > I think that we're going to try a listening program to try & address this. > > Please feel free to let me know off list if you know of anything that has > helped your dd. > > My email addy is yvette.yta@... > > > > Thanks, > > Yvette > > > > > > > > > > > > Dear Yvette, I've read some of your posts and I was wondering if your child > took miralax,because of the sensitivity to loud noises and sounds. I believe > they were sensitized. The game Perfection would be a nightmare for the poor > girl. My dd still complains about the loud classroom. > > > Jeanie > > Yvette wrote: > > > > > > > Hi Amy, > > > I forgot to mention that my dd speaks very well. She has been talking since > she was 18 months with a large vocabulary but she did have articulation > issues. She knew & could say that alphabet & all the colors at 18 months > too. > > > It seems that she can not understand conceptual questions & answer these > questions. For instance if you ask her why she doesn't like school she does > not answer the question or she responds with the wrong answer like " Yes " > because it seems that she does not understand what you are asking her. > > > So the Child Study Team labels this as " Expressive & Cognitive Language > Delays. " > > > Thanks again, > > > Yvette > > > > > > > > > > > > Re: Juice with Fibre > > > > > > > > > > > Have you had her tested by a speech and language pathologist? Could she > have Apraxia? My son has verbal apraxia. Have you looked at the group > http://health.groups.yahoo.com/group/childrensapraxianet/ . It may be worth > joining and seeing if your daughter sounds like she could be apraxic. > > > > > > > > Also, please don't dismiss her issues right away as cognitive. Many kids > with apraxia appear to have cognitive issues but when they are receiving the > appropriate treatment it becomes apparent the issue is a speech and > language disorder and not cognitive. > > > > > > > > I would also suggest looking into Auditory processing issues. My son has > this as well and we're working on them. > > > > > > > > By the way, he's made great progress but it's taken a long time too. > Definitely not an easy fix. > > > > > > > > Many professionals (SLP, OT, etc.) in our public school system refuse to > acknowledge apraxia as a diagnosis, so my suggestion would be if at all > possible have her tested by a private therapist. > > > > > > > > > Amy > > > > > > > > Juice with Fibre > > > > > > > > > I started my dd back on the juice with fibre (fiber) product that > comes in the juice boxes. Each box has 10 grams of fiber (acacia gum > fiber). Anyway, it definitely helps her stools stay more normal > looking. I'm hoping to get her to drink enough of that per day, along > with other liquid like water, to see if it will help her become > regular. But it definitely hasn't been " pellets " since we've started > this again, which is nice. > > I also was able to teach her to swallow small size capsules, and so I > put the oxypowder into those, and then she can swallow them > individually, in water mixed with a little lemon, like the bottle > says. One capsule of oxypowder fits into three small capsules. > > I'll post again on how she is doing in the near future. > > W > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 Thank You Yvette! I am working on it........................Yvette wrote: Hi Jeanie, Is there any recourse for the families that want to let the makers & distributors of Miralax know that we are not going to allow the sickening of our children any more? We had the right to full disclosure of the possible side effects if given to children. My dd was on that poison for 4+ years at adult dosage & now shows signs of Autism (high functioning but still symptoms). I am sure that Miralax was a factor in her condition. She is 7 years old & has some delays & has to receive Speech Therapy/Feeding Therapy & Occupational Therapy. I am grateful to you for all of your hard work & research on Miralax. If you & other moms on this board want to try & find some sort of legal recourse I would like to help. Yvette Dear Kass, I am very touched by your story and I realize some people have incurable diseases that need medication to control. These are understandable. Treating children for constipation with a toxic chemical that shouldn't be touched to the skin, breathed, flushed down the toilet or in our sewer systems, declared a carcinogen in the state of CA, is combustible, and people have died from, is, in my eyes, an outrage. Zelnorn's article stated "A" death..................many have died from Miralax. I'm simply stating.............Just like the fda responds................It needs more research. I never would have used this had I known I was an experiment and I'm sure that a lot of other people would like to know that as well vs. being told a sales pitch to make a sale. My point is this.................................................. The manufacturer is prescribing this to children against their own labeling instructions and The doctor's are prescribing this to children against the manufacturer's label instructions And the doctor's aren't using a pediatric dose Why do you think this is? Feel free to call Braintree Labs................They'll even tell you not to give to children. There's a reason for it. Sorry if I offended you, you are in a very bad situation, Some children don't need a medication so violent and now their simple constipation problem, that may have been overcome, is now going to affect them for the rest of their lives. We can't hear the testimony from the children that have already died from this...........let them speak........ for this very catastrophic situation. Jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 im new to the boards and im wondering what the statistics are on miralax? any medication including advil can cause death..are these rare instances or where is info about how bad miralax is.. and please dont yell at me..im just trying to find out info. What about miralax is so bad? Whar are natural remedies for constiaption that have worked for your children?Yvette wrote: Hi Jeanie, Is there any recourse for the families that want to let the makers & distributors of Miralax know that we are not going to allow the sickening of our children any more? We had the right to full disclosure of the possible side effects if given to children. My dd was on that poison for 4+ years at adult dosage & now shows signs of Autism (high functioning but still symptoms). I am sure that Miralax was a factor in her condition. She is 7 years old & has some delays & has to receive Speech Therapy/Feeding Therapy & Occupational Therapy. I am grateful to you for all of your hard work & research on Miralax. If you & other moms on this board want to try & find some sort of legal recourse I would like to help. Yvette Dear Kass, I am very touched by your story and I realize some people have incurable diseases that need medication to control. These are understandable. Treating children for constipation with a toxic chemical that shouldn't be touched to the skin, breathed, flushed down the toilet or in our sewer systems, declared a carcinogen in the state of CA, is combustible, and people have died from, is, in my eyes, an outrage. Zelnorn's article stated "A" death..................many have died from Miralax. I'm simply stating.............Just like the fda responds................It needs more research. I never would have used this had I known I was an experiment and I'm sure that a lot of other people would like to know that as well vs. being told a sales pitch to make a sale. My point is this.................................................. The manufacturer is prescribing this to children against their own labeling instructions and The doctor's are prescribing this to children against the manufacturer's label instructions And the doctor's aren't using a pediatric dose Why do you think this is? Feel free to call Braintree Labs................They'll even tell you not to give to children. There's a reason for it. Sorry if I offended you, you are in a very bad situation, Some children don't need a medication so violent and now their simple constipation problem, that may have been overcome, is now going to affect them for the rest of their lives. We can't hear the testimony from the children that have already died from this...........let them speak........ for this very catastrophic situation. Jeanie Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 You address me like.................and want me to respond to..............you!!!!!!!!!! Pam Glass wrote: im new to the boards and im wondering what the statistics are on miralax? any medication including advil can cause death..are these rare instances or where is info about how bad miralax is.. and please dont yell at me..im just trying to find out info. What about miralax is so bad? Whar are natural remedies for constiaption that have worked for your children?Yvette <y.andersoncomcast (DOT) net> wrote: Hi Jeanie, Is there any recourse for the families that want to let the makers & distributors of Miralax know that we are not going to allow the sickening of our children any more? We had the right to full disclosure of the possible side effects if given to children. My dd was on that poison for 4+ years at adult dosage & now shows signs of Autism (high functioning but still symptoms). I am sure that Miralax was a factor in her condition. She is 7 years old & has some delays & has to receive Speech Therapy/Feeding Therapy & Occupational Therapy. I am grateful to you for all of your hard work & research on Miralax. If you & other moms on this board want to try & find some sort of legal recourse I would like to help. Yvette Dear Kass, I am very touched by your story and I realize some people have incurable diseases that need medication to control. These are understandable. Treating children for constipation with a toxic chemical that shouldn't be touched to the skin, breathed, flushed down the toilet or in our sewer systems, declared a carcinogen in the state of CA, is combustible, and people have died from, is, in my eyes, an outrage. Zelnorn's article stated "A" death..................many have died from Miralax. I'm simply stating.............Just like the fda responds................It needs more research. I never would have used this had I known I was an experiment and I'm sure that a lot of other people would like to know that as well vs. being told a sales pitch to make a sale. My point is this.................................................. The manufacturer is prescribing this to children against their own labeling instructions and The doctor's are prescribing this to children against the manufacturer's label instructions And the doctor's aren't using a pediatric dose Why do you think this is? Feel free to call Braintree Labs................They'll even tell you not to give to children. There's a reason for it. Sorry if I offended you, you are in a very bad situation, Some children don't need a medication so violent and now their simple constipation problem, that may have been overcome, is now going to affect them for the rest of their lives. We can't hear the testimony from the children that have already died from this...........let them speak........ for this very catastrophic situation. Jeanie Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 Hi Pam,I'm not sure what Jeanie is talking about below...it seems like her post may have gotten sent before she was done with it? Anyway, if you search the archives you can find lots of anecdotal stories about Miralax. Personally I don't know what the statistics are, but Jeanie probably does. For me, I didn't need statistics because we had negative personal experiences with Miralax...and that was enough for me to pull my DD off it. Whether or not it's affecting large percentages of children, it certainly was affecting her... Re: natural alternatives. Yes, there are many possibilities. Some people on this list have had good results with Natural Calm magnesium, probiotics, omega-3 containing oils. Our doctor (who is also a chiropractor) tells me that probiotics and omega-3 oils will help the vast majority of children with constipation. If you check the archives you'll find all kinds of ideas, including homeopathy, chiropractic adjustments (at one point my DD was pooping once a week the day after her chiropractic adjustment), supplements of various kinds, acupuncture or acupressure, herbal laxatives like senna (which our doctor also recommends), mineral oil, the new prebiotic plum juice, soluble fiber supplements (some kids really do well with the juice boxes that have fiber added--maybe someone can chime in to remind me what these are called). The thing is, the solution for each kid depends on the source of the problem. Some kids have poor diets and need more fiber. For them, adding fiber helps. Many kids, though, have perfectly wonderful diets and still have this problem, and for them, finding a solution is much trickier. It will help if you can find a good holistic doctor (a chiropractor, osteopath or naturopath might be a good start) who can review medical history and make some suggestions based on your particular situation. Good luck!Bonnie You address me like.................and want me to respond to..............you!!!!!!!!!! Pam Glass wrote: im new to the boards and im wondering what the statistics are on miralax? any medication including advil can cause death..are these rare instances or where is info about how bad miralax is.. and please dont yell at me..im just trying to find out info. What about miralax is so bad? Whar are natural remedies for constiaption that have worked for your children? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 oy... i wasnt specifically addressing you..i was writing in general..forgive me for not knowing how to use message boards properly... I said please dont yell at me because I have found that on all of the message boards I read people take offense easily to questions asked that may have been asked previously. So I apologize. All I am trying to do is get information.Jeanie Ward wrote: You address me like.................and want me to respond to..............you!!!!!!!!!! Pam Glass <ttravelpam> wrote: im new to the boards and im wondering what the statistics are on miralax? any medication including advil can cause death..are these rare instances or where is info about how bad miralax is.. and please dont yell at me..im just trying to find out info. What about miralax is so bad? Whar are natural remedies for constiaption that have worked for your children?Yvette <y.andersoncomcast (DOT) net> wrote: Hi Jeanie, Is there any recourse for the families that want to let the makers & distributors of Miralax know that we are not going to allow the sickening of our children any more? We had the right to full disclosure of the possible side effects if given to children. My dd was on that poison for 4+ years at adult dosage & now shows signs of Autism (high functioning but still symptoms). I am sure that Miralax was a factor in her condition. She is 7 years old & has some delays & has to receive Speech Therapy/Feeding Therapy & Occupational Therapy. I am grateful to you for all of your hard work & research on Miralax. If you & other moms on this board want to try & find some sort of legal recourse I would like to help. Yvette Dear Kass, I am very touched by your story and I realize some people have incurable diseases that need medication to control. These are understandable. Treating children for constipation with a toxic chemical that shouldn't be touched to the skin, breathed, flushed down the toilet or in our sewer systems, declared a carcinogen in the state of CA, is combustible, and people have died from, is, in my eyes, an outrage. Zelnorn's article stated "A" death..................many have died from Miralax. I'm simply stating.............Just like the fda responds................It needs more research. I never would have used this had I known I was an experiment and I'm sure that a lot of other people would like to know that as well vs. being told a sales pitch to make a sale. My point is this.................................................. The manufacturer is prescribing this to children against their own labeling instructions and The doctor's are prescribing this to children against the manufacturer's label instructions And the doctor's aren't using a pediatric dose Why do you think this is? Feel free to call Braintree Labs................They'll even tell you not to give to children. There's a reason for it. Sorry if I offended you, you are in a very bad situation, Some children don't need a medication so violent and now their simple constipation problem, that may have been overcome, is now going to affect them for the rest of their lives. We can't hear the testimony from the children that have already died from this...........let them speak........ for this very catastrophic situation. Jeanie Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Get your own web address. Have a HUGE year through Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Yvette, If you would like to address your story: I would be more than happy to send it with all my research to the FDA please address the letter to: the FDA, it takes alot of time and effort to petition them. You can easily look it up under www.fda.gov if you wanted to petition them, if more than one person petitions them it's even more effective. Look it up and check out all the things you need to petition them and let me know if you just want to include your letter or petition them yourself. You can also have me include it and you could state you are petitioning them as well. It just means..................You are asking them to take a look at this and they, by law, have to investigate, when petitioned. Thank you for sharing, it's people like you that can make a difference! Jeanie Yvette wrote: Hi Jeanie, Is there any recourse for the families that want to let the makers & distributors of Miralax know that we are not going to allow the sickening of our children any more? We had the right to full disclosure of the possible side effects if given to children. My dd was on that poison for 4+ years at adult dosage & now shows signs of Autism (high functioning but still symptoms). I am sure that Miralax was a factor in her condition. She is 7 years old & has some delays & has to receive Speech Therapy/Feeding Therapy & Occupational Therapy. I am grateful to you for all of your hard work & research on Miralax. If you & other moms on this board want to try & find some sort of legal recourse I would like to help. Yvette Dear Kass, I am very touched by your story and I realize some people have incurable diseases that need medication to control. These are understandable. Treating children for constipation with a toxic chemical that shouldn't be touched to the skin, breathed, flushed down the toilet or in our sewer systems, declared a carcinogen in the state of CA, is combustible, and people have died from, is, in my eyes, an outrage. Zelnorn's article stated "A" death..................many have died from Miralax. I'm simply stating.............Just like the fda responds................It needs more research. I never would have used this had I known I was an experiment and I'm sure that a lot of other people would like to know that as well vs. being told a sales pitch to make a sale. My point is this.................................................. The manufacturer is prescribing this to children against their own labeling instructions and The doctor's are prescribing this to children against the manufacturer's label instructions And the doctor's aren't using a pediatric dose Why do you think this is? Feel free to call Braintree Labs................They'll even tell you not to give to children. There's a reason for it. Sorry if I offended you, you are in a very bad situation, Some children don't need a medication so violent and now their simple constipation problem, that may have been overcome, is now going to affect them for the rest of their lives. We can't hear the testimony from the children that have already died from this...........let them speak........ for this very catastrophic situation. Jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Hi Jeanie, I would like to get involved & help out. IF it’s ok I won’t be able to do much until after June 1st since we have been embroiled in a very heated battle with our school district & the Due Process Hearings are scheduled for May 24th & June 1st. We are in the final stages & I should know the outcome after June 1st. I assume the judge will make his ruling on the second day of the hearing. As soon as the dust settles & I know what the future holds for my dd I will post to you. Thanks again for all of your hard work. Yvette Yvette, If you would like to address your story: I would be more than happy to send it with all my research to the FDA please address the letter to: the FDA, it takes alot of time and effort to petition them. You can easily look it up under www.fda.gov if you wanted to petition them, if more than one person petitions them it's even more effective. Look it up and check out all the things you need to petition them and let me know if you just want to include your letter or petition them yourself. You can also have me include it and you could state you are petitioning them as well. It just means..................You are asking them to take a look at this and they, by law, have to investigate, when petitioned. Thank you for sharing, it's people like you that can make a difference! Jeanie Yvette <y.andersoncomcast (DOT) net> wrote: Hi Jeanie, Is there any recourse for the families that want to let the makers & distributors of Miralax know that we are not going to allow the sickening of our children any more? We had the right to full disclosure of the possible side effects if given to children. My dd was on that poison for 4+ years at adult dosage & now shows signs of Autism (high functioning but still symptoms). I am sure that Miralax was a factor in her condition. She is 7 years old & has some delays & has to receive Speech Therapy/Feeding Therapy & Occupational Therapy. I am grateful to you for all of your hard work & research on Miralax. If you & other moms on this board want to try & find some sort of legal recourse I would like to help. Yvette Dear Kass, I am very touched by your story and I realize some people have incurable diseases that need medication to control. These are understandable. Treating children for constipation with a toxic chemical that shouldn't be touched to the skin, breathed, flushed down the toilet or in our sewer systems, declared a carcinogen in the state of CA, is combustible, and people have died from, is, in my eyes, an outrage. Zelnorn's article stated " A " death..................many have died from Miralax. I'm simply stating.............Just like the fda responds................It needs more research. I never would have used this had I known I was an experiment and I'm sure that a lot of other people would like to know that as well vs. being told a sales pitch to make a sale. My point is this.................................................. The manufacturer is prescribing this to children against their own labeling instructions and The doctor's are prescribing this to children against the manufacturer's label instructions And the doctor's aren't using a pediatric dose Why do you think this is? Feel free to call Braintree Labs................They'll even tell you not to give to children. There's a reason for it. Sorry if I offended you, you are in a very bad situation, Some children don't need a medication so violent and now their simple constipation problem, that may have been overcome, is now going to affect them for the rest of their lives. We can't hear the testimony from the children that have already died from this...........let them speak........ for this very catastrophic situation. Jeanie Quote Link to comment Share on other sites More sharing options...
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