Dr. Frim

[Guest guest]

Hi

I didn't know Dr. Frim was also a nsg for tethered cords. I know I've heard

his name mentioned multiple times for Chiari...I think I even saw him on a

show once for it.

Anyway...I would DEFINITELY get your operative notes and any other notes

from your nsg's office. Also, call Frim's office and ask what " he " wants

you to bring.

I too am seeking two other nsg's opinions because of continued decline.

They've both asked for operative notes (pre and post) from my nsg's office.

They also want any test results (you are bringing those) and MRI's. So, if

you grab up your nsg's file on you, you should be all set. Oh...would he

want any information on why you had the pump placed, how it's doing as far

as controlling the spasticity? Maybe if you have any results showing where

the spasticity is coming from (end of the cord, high up, etc.)

Also, what I wrote up for both nsg's that will be reviewing my case (one in

person and the other by teleconference), is pain areas, what type of pain

and what positions cause me undue pain (as in leaning over the sink to wash

dishes or pots...for some reason that slight bend in my back kills me.)

This " may " be able to help them figure out where your pain is coming from.

I also included when pain started, whether it's getting worse, etc. I kept

this to a very short paragraph or two (hard to do.) I didn't want to bog

them down with in-depth descriptions, but wanted them to get the gist of the

problems I'm having.

Good luck and PLEASE let us know what he says.

Kathy

Dr. Frim

> Hello everyone,

>

> I have an appointment with Dr. Frim in Chicago on Jan. 10. I'm

> planning on taking all of my MRI's and EMG and evoked response test

> results with me. I'm wondering if there is any other information I

> should take? Should I ask my current nsg for any of his

> notes/records on my case?

>

> I'm feeling just a little stressed about this trip (I live in Indy),

> because I'm still recovering from my baclofen pump surgery on Dec. 12.

> So any and all comments and recommendations would be greatly

> appreciated.

>

> THe reason for the appt. with Dr. Frim is that I'm unhappy with the

> continued decline I've experienced since my detethering in June. I

> started becoming spastic in August, and had progressed to the point

> where walking was extremely difficult (hence the pump). I've also

> had numbness spread up from my feet to where both of my thighs are

> pretty much numb now. My nsg and neuro here in Indy just shake their

> heads and shrug-they don't have a clue.

>

> Many thanks,

>

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