Thanks for the Articles & Everyone else for this group and its info

[Guest guest]

,

I wanted to thank you again for all of those articles. I suspected that my son

's twin()might be tethered as well and it turns out he is! Your

articles gave me the confidence and the education I needed to trust my instincts

and fight for an MRI ASAP for my son. I was afraid of coming off as a paranoid

mother and ruining my reputation with 's doctors. It was a hard

decision. I didn't want to jeopardize the doctor's opinions of me for 's

sake and yet I didn't want to wait so long that I was sure was tethered

and thus increase his chances of permanent damage. I think I found a great

balance. THANKS to everyone else for this list and the info you share. It has

made a

difference in my son's life - see my other note.

Thanks again,

Pendergraft (mom to , TCS, syrinx, and , fatty filum,

syrinx)

[Guest guest]

Are these articles available on the internet? We are just starting to deal with tethered cord with arachnoiditis and would love to see them if you would pass them on.

Faith

-----Original Message-----From: Pendergraft Sent: Wednesday, April 18, 2001 10:06 PMTo: tetheredspinalcord Subject: Thanks for the Articles & Everyone else for this group and its info,I wanted to thank you again for all of those articles. I suspected that my son 's twin()might be tethered as well and it turns out he is! Your articles gave me the confidence and the education I needed to trust my instincts and fight for an MRI ASAP for my son. I was afraid of coming off as a paranoid mother and ruining my reputation with 's doctors. It was a hard decision. I didn't want to jeopardize the doctor's opinions of me for 's sake and yet I didn't want to wait so long that I was sure was tethered and thus increase his chances of permanent damage. I think I found a great balance. THANKS to everyone else for this list and the info you share. It has made adifference in my son's life - see my other note.Thanks again, Pendergraft (mom to , TCS, syrinx, and , fatty filum, syrinx)

[Guest guest]

Faith,

mailed them to folks who were interested. It was a tremendous sacrifice

of time and love to make all those copies and mail them. Perhaps she will send

them to you as well? She had a list of every article she had and then we picked

the ones that applied to our situation and asked her to mail them.

> Faith Webb wrote:

>

> Are these articles available on the internet? We are just starting to deal

with tethered cord with arachnoiditis and would love to see them if you would

pass them on.

>