Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Jeni, you'll need to start the preliminaries yourself in the filing. Then talk to your neurologists & Dylan's pediatrician & solicit their help in the matter. Then contact a lawyer. They've changed the laws concerning children & you may have to try several lawyers to find one. Our problem with Cody was, the Neuro would tell us no hope, no prayer & then write the most glowing report to Social Security. Then neglected to tell us there was a charge for the reports to be released & cause me to have to fill out 14 page forms 5 times. What a jerk he is & an incompetent staff to boot. That's the reason to get everyone on the same page. I've filed 6 months after Cody was born & I'm waiting for enough money in back pay to build up to intice a lawyer to fight hard to get it for him. Although Cody is doing well, it would still make a difference in the quality of his life down the road. I hope this helps. Please keep me informed of your efforts in the fight. God Bless, Cody Colton Age 5 Medication: Dialantin Perventricular Bipartial Nodular Heterophia & Polymicrogyria Location: Strawberry Plains, Tennessee Father: K. Mother: Toni R. Siblings: none Only grandchild on both sides. Weight: 60lbs. Height: 3' 9 " Favorite Things: Spending time with his Papaws, Blues Clues, watching the animals on the farm, & giving all of Daddy's kisses to his Momma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 We talked to our ped. and he suggested that we file and the Neuro said also to file but we are scared that it will all be in vain because really it doesn't look that bad from the outside. I did file the first bunch of paperwork where they ask for all DR's and therapist and our personal observations but that was over a month ago and we haven't heard anything. thank you God bless Jeni mommy to Dylan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Hi I belive what you want to sign ip for is SSI it diffrent that SSD... SSI is a type of fedrel welfare my kids were on it for quite a while but now we have too many assets to qualify :-( .....I belive the amount of monthly cash grant is somewhere around $650.00 a month...you would call the social security toll free number to fill out a application over the phone..... if you qualify it will start from the day you call.... so it's very important not to put it off ................................CALL MONDAY....................here in Oregon if you recive SSI you automaticly get medical benifits through the state....everybody should apply for this.... is not as bad off as some of the kids here and he qaulified.... so I am just about positive you can get it.... LaDawn Mom to 16yrs pachygyria & partial complex seizures >My husband and I were told by friends that we should seek out social >security >disability for our son Dylan _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Hi Me again What kind of insurance does your hubby have????.....My kids have preexisting conditions and I think we may of had to wait on the insurance to cover them (like a waiting period or something ).....we have been through a few diffrent insurances none has denied the kids...So I am just wondering how they can do this.... LaDawn mom to 16 yrs pachygyria & partial complex seizures >husbands insurance wont cover a preexisting condition and since he was born >with this and has Medicaid for the first year (almost gone) they wont cover >him. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Hi I don't know what happen to the other letter I just typed maybe it will show up but if not I wanted to make sure you got this info... What you want to sign up for is SSI not SSD....SSI is fedrel welfare for low income diabled people....It is a monthly cash grant..... here in Oregon its about $650.00a month...also in Oregon if you get that you automaticly get a state medical card...I don't know how this works in other states...you need to call the social security 800 number and you can apply right over the phone....it is retroactive(from the day you call) so you want to call right away....MONDAY... is not as bad off as some of the kids here so everybody should call its well worth it....(About 10yrs ago they had a notice up in our local office that stated that they had turned down some kids with some kid of dissabilty and had since changed the laws and all those people would not only get it now but i belive they were going to get some back pay I am not positive about that cause its been so long ago but for some reason that is what has stuck in my mind all these years) So even if you don't think you qualify ...Apply....Apply....Apply... LaDawn mom to 16yrs pachygyria & partial complex seizures we should seek out social security >disability for our son Dylan he has pmg and hemi-paresis no seizures yet _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Hello Jeni Just thought I'd let you know that we get SSI for Olivia, It took about 9 months from the time we applied. All of her doctors had to forward copies of her records, it did not cost us anything but it was frustrating, however it was worth it to us because we're a one income family. My husband is a police officer and needless to say he doesn't make nearly enough to cover the expencies that come up when you have a child with disabilites. My feeling is this is money Olivia is entitled to to help better her way of life and to help her develope to the best of her ability. It is a huge help to us because our insurance did not cover any of her PT, OT, Audiological services etc, because PMG is a developmental disability, and by getting SSI she automatically receives Medicaid which covers all of her medical needs. Just thought I'd let yu know that to our family it is worth the hassle of applying. Good luck mom to Olivia 26 months, PMG, left hemi paresis, severe hearing loss,etc. but.. crawls , cruises, takes steps and does her best to keep up with her big sister > My husband and I were told by friends that we should seek out social security > disability for our son Dylan he has pmg and hemi-paresis no seizures yet and > the only current problem is a delay in his motor skills. Left side mainly he > is 11 months old and does not put himself to a sitting position and crawled > once a few feet but not since and p.t. says not to hold our breath on his > walking so I was wondering if anyone else has gone this route and what is the > possible outcome. My mother-in-law is on disability and says it is almost > impossible. But we aren't very financially sound and it sure would help. > Mainly for insurance that comes with social security disability because my > husbands insurance wont cover a preexisting condition and since he was born > with this and has Medicaid for the first year (almost gone) they wont cover > him. Now to top it off some technicality in Medicaid reared it's head after > 11 months and they haven't and wont pay for any of his care so we just got > all of the bills for various tests and routine care. Any info on forms of > financial assistance that you may know of would be a God send. > Really worried Jeni mommy to Dylan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 Re: Social Security? > > Hi > I belive what you want to sign ip for is SSI it diffrent that SSD... SSI is > a type of fedrel welfare my kids were on it for quite a while but now we > have too many assets to qualify :-( .....I belive the amount of monthly cash > grant is somewhere around $650.00 a month...you would call the social > security toll free number to fill out a application over the phone..... if > you qualify it will start from the day you call.... so it's very important > not to put it off ................................CALL > MONDAY....................here in Oregon if you recive SSI you automaticly > get medical benifits through the state....everybody should apply for > this.... is not as bad off as some of the kids here and he > qaulified.... so I am just about positive you can get it.... > LaDawn > Mom to 16yrs pachygyria & partial complex seizures > > > >My husband and I were told by friends that we should seek out social > >security > >disability for our son Dylan > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 a Did they say why they denied ph.... LaDawn http://docs.yahoo.com/info/terms/ > > Ladawn, my name isa, and I live in Maine. Ihave a son, who has PMG, >and sezirures.I'm still new to this but I'm not sure I, understand with >some >of the kids that have PMG, have bilateral this and that. I was just told >that my son has PMG with sezirures. Maybe I should ask Dr.Dobyins Seems he >has looked at his MRI films. Well anyway, about the SSI, my boyfriend is >the >only income this household, and when I called, they told me that did >not qualifry,sorry about the spelling ,if there is anything mispelled.a >mommy to ph(1year) > > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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