Re: Hope and patience

[Guest guest]

Beautiful! If you don't mind I am going to save this and use some of it in s scrapbook if I can figure out a good way to that is! I got some puzzle piece die cuts from someone a while back and another cut from her saying Autism Awareness and above the first A is a puzzle piece? Any idea for a layout of this with some of the poem and then all I mentioned?Stacie BAurora ILSent via BlackBerry by AT&TDate: Thu, 25 Sep 2008 17:21:48 -0000To: <AutismBehaviorProblems >Subject: Hope and patience Hi,I would like to share my daughters story. She will be 21 soon and grew up with low functioning autism. She lost speech,communication and eye contact leaving babyhood. She had poor muscle tone was a late toe walker. She developed gastric-intestinal problems,bowel movement problems. She was termed failure to thrive. She was selectively mute and Dr.s thought she was deaf. She had strange postures,rocking and hand flapping along with other stimming behaviors. She had regression and behavior problems, she was a runner. She had an operation to correct her vision. Her eyes would look a differant direction from a brain signal reversal. She had two operations to help her hearing. One allowed for some room for vibration in the bone because the nerve didnt respond to sound in the normal way. Hearing aids would not help this nerve problem. She had her adenoids removed to help alleviate pushing nasal tones. By 11 I was told she was menatlly R and I should start learning to prepare for life with my daughter in adulthood or placement in a assisted adult home/living center. Autism was never a word used by Dr.s in the 80s. I learned of this when she was 11{90s}. I didnt carry much meaning for me then. By 12 she developed chronic juvinelle rheumatic arthritis. She had lots of other tests for all things in blood work for autism,genetics ect. One Dr. even surmised her father and I had been distant cousins/relatives wich could cause autism. By 7th grade I began homeschooling her. The elementary years were good. She was in a special class of 3-5 for handicap students after kindergarten by 4th grade she was in some mainstream class time. Junior high was mainstream/special ed. She couldnt cope and had an aide. Following this change to junior high she went through a hibernation period agin and regressed. During her formative years her older siblings grew up and left home. Her other sibs and father moved out. All of them had a very hard time with the screaming,lack of speech and social problems autism brings to life. They could only cope with moments and windows of calm. It was a strain on our family life. Everyone moved on to quiter places. She and I had all the time in the world. I began to be her 1 on 1 mentor. She and I learned life skills together. She taught me safety in all the parents biggest fear ways. She taught me patience beyond patience and she taught me how to persist against the odds. She is almost 21. Has language,shops can cook and learned to drive. She got her license yesterday! She has a boyfriend. They share a small duplex close to home{me} and work. She got a job painting houses and a new cell phone. Is a cake designers dream making a beautiful " elmo " cake for my grandaughter. Her bedroom at my house is still the same, used when ever she feels the need for any of the comforts of home. She still has her certain personal behaviors but shes adjusted. Autism takes hope and patience,lots of patience. I can only say from experience you are your childs student. Then learning does happen. If you learn their ways they will learn yours. Its slower then life demands in this approach. It doesnt cure autism. It allows autism. Best wishes, Tishanne

[Guest guest]

Thank you so much for sharing your story with us. It gives me hope for my son he is going to be 6 on October 1st.

Lesley

Subject: Hope and patienceTo: AutismBehaviorProblems Received: Thursday, 25 September, 2008, 1:21 PM

Hi,I would like to share my daughters story. She will be 21 soon and grew up with low functioning autism. She lost speech,communicatio n and eye contact leaving babyhood. She had poor muscle tone was a late toe walker. She developed gastric-intestinal problems,bowel movement problems. She was termed failure to thrive. She was selectively mute and Dr.s thought she was deaf. She had strange postures,rocking and hand flapping along with other stimming behaviors. She had regression and behavior problems, she was a runner. She had an operation to correct her vision. Her eyes would look a differant direction from a brain signal reversal. She had two operations to help her hearing. One allowed for some room for vibration in the bone because the nerve didnt respond to sound in the normal way. Hearing aids would not help this nerve problem. She had her adenoids removed to help alleviate pushing nasal tones.

By 11 I was told she was menatlly R and I should start learning to prepare for life with my daughter in adulthood or placement in a assisted adult home/living center. Autism was never a word used by Dr.s in the 80s. I learned of this when she was 11{90s}. I didnt carry much meaning for me then. By 12 she developed chronic juvinelle rheumatic arthritis. She had lots of other tests for all things in blood work for autism,genetics ect. One Dr. even surmised her father and I had been distant cousins/relatives wich could cause autism. By 7th grade I began homeschooling her. The elementary years were good. She was in a special class of 3-5 for handicap students after kindergarten by 4th grade she was in some mainstream class time. Junior high was mainstream/special ed. She couldnt cope and had an aide. Following this change to junior high she went through a hibernation period agin and regressed. During her

formative years her older siblings grew up and left home. Her other sibs and father moved out. All of them had a very hard time with the screaming,lack of speech and social problems autism brings to life. They could only cope with moments and windows of calm. It was a strain on our family life. Everyone moved on to quiter places. She and I had all the time in the world. I began to be her 1 on 1 mentor. She and I learned life skills together. She taught me safety in all the parents biggest fear ways. She taught me patience beyond patience and she taught me how to persist against the odds. She is almost 21. Has language,shops can cook and learned to drive. She got her license yesterday! She has a boyfriend. They share a small duplex close to home{me} and work. She got a job painting houses and a new cell phone. Is a cake designers dream making a beautiful "elmo" cake for my grandaughter. Her bedroom

at my house is still the same, used when ever she feels the need for any of the comforts of home. She still has her certain personal behaviors but shes adjusted. Autism takes hope and patience,lots of patience. I can only say from experience you are your childs student. Then learning does happen. If you learn their ways they will learn yours. Its slower then life demands in this approach. It doesnt cure autism. It allows autism.Best wishes,Tishanne

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[Guest guest]

Thank you Tishanne. This gives me so much hope for my little man.

She is blessed to have you,

e

Hope and patience

..

[Guest guest]

That's a good idea Stacie...

J

Re: Hope and patience

..

[Guest guest]

Hi Stacie,I think you have a wonderful idea. You are so kind and

creative. Feel free to use as little or as much of our story in your

sons scrapbook you'd like. Im sure wich ever design you chose will

reflect your " from the heart approach " . Maybe your daughter{s} will

have a good layout idea. I cant think of one. Daughters are so good

at decorating binders and myspace pages. Thank you so much for giving

your care and concern and for being so understanding.

Best wishes,

Tishanne

-- In AutismBehaviorProblems , " stacie "

wrote:

>

> Beautiful! If you don't mind I am going to save this and use some

of it in s scrapbook if I can figure out a good way to that is!

I got some puzzle piece die cuts from someone a while back and

another cut from her saying Autism Awareness and above the first A is

a puzzle piece? Any idea for a layout of this with some of the poem

and then all I mentioned?

> Stacie B

> Aurora IL

> Sent via BlackBerry by AT & T

>

> Hope and patience

>

>

> Hi,I would like to share my daughters story. She will be 21 soon

and

> grew up with low functioning autism. She lost speech,communication

> and eye contact leaving babyhood. She had poor muscle tone was a

late

> toe walker. She developed gastric-intestinal problems,bowel

movement

> problems. She was termed failure to thrive. She was selectively

mute

> and Dr.s thought she was deaf. She had strange postures,rocking and

> hand flapping along with other stimming behaviors. She had

regression

> and behavior problems, she was a runner. She had an operation to

> correct her vision. Her eyes would look a differant direction from

a

> brain signal reversal. She had two operations to help her hearing.

> One allowed for some room for vibration in the bone because the

nerve

> didnt respond to sound in the normal way. Hearing aids would not

help

> this nerve problem. She had her adenoids removed to help alleviate

> pushing nasal tones. By 11 I was told she was menatlly R and I

should

> start learning to prepare for life with my daughter in adulthood or

> placement in a assisted adult home/living center. Autism was never

a

> word used by Dr.s in the 80s. I learned of this when she was

11{90s}.

> I didnt carry much meaning for me then. By 12 she developed chronic

> juvinelle rheumatic arthritis. She had lots of other tests for all

> things in blood work for autism,genetics ect. One Dr. even surmised

> her father and I had been distant cousins/relatives wich could

cause

> autism. By 7th grade I began homeschooling her. The elementary

years

> were good. She was in a special class of 3-5 for handicap students

> after kindergarten by 4th grade she was in some mainstream class

> time. Junior high was mainstream/special ed. She couldnt cope and

had

> an aide. Following this change to junior high she went through a

> hibernation period agin and regressed. During her formative years

her

> older siblings grew up and left home. Her other sibs and father

moved

> out. All of them had a very hard time with the screaming,lack of

> speech and social problems autism brings to life. They could only

> cope with moments and windows of calm. It was a strain on our

family

> life. Everyone moved on to quiter places. She and I had all the

time

> in the world. I began to be her 1 on 1 mentor. She and I learned

life

> skills together. She taught me safety in all the parents biggest

fear

> ways. She taught me patience beyond patience and she taught me how

to

> persist against the odds. She is almost 21. Has language,shops can

> cook and learned to drive. She got her license yesterday! She has a

> boyfriend. They share a small duplex close to home{me} and work.

She

> got a job painting houses and a new cell phone. Is a cake designers

> dream making a beautiful " elmo " cake for my grandaughter. Her

bedroom

> at my house is still the same, used when ever she feels the need

for

> any of the comforts of home. She still has her certain personal

> behaviors but shes adjusted. Autism takes hope and patience,lots of

> patience. I can only say from experience you are your childs

student.

> Then learning does happen. If you learn their ways they will learn

> yours. Its slower then life demands in this approach. It doesnt

cure

> autism. It allows autism.

> Best wishes,

> Tishanne

>

[Guest guest]

Thanks!StacieSent via BlackBerry by AT&TDate: Thu, 25 Sep 2008 20:07:05 -0700 (PDT)To: <AutismBehaviorProblems >Subject: Re: Hope and patience That's a good idea Stacie... J Re: Hope and patience.

[Guest guest]

You are so welcome tishanne! And thanks for your compliments! When I am finished with it I will send it to the group!Stacie BAurora ILSent via BlackBerry by AT&TDate: Fri, 26 Sep 2008 06:27:38 -0000To: <AutismBehaviorProblems >Subject: Re: Hope and patience Hi Stacie,I think you have a wonderful idea. You are so kind and creative. Feel free to use as little or as much of our story in your sons scrapbook you'd like. Im sure wich ever design you chose will reflect your " from the heart approach " . Maybe your daughter{s} will have a good layout idea. I cant think of one. Daughters are so good at decorating binders and myspace pages. Thank you so much for giving your care and concern and for being so understanding. Best wishes, Tishanne -- In AutismBehaviorProblems , " stacie " wrote: > > Beautiful! If you don't mind I am going to save this and use some of it in s scrapbook if I can figure out a good way to that is! I got some puzzle piece die cuts from someone a while back and another cut from her saying Autism Awareness and above the first A is a puzzle piece? Any idea for a layout of this with some of the poem and then all I mentioned? > Stacie B > Aurora IL > Sent via BlackBerry by AT & T > > Hope and patience > > > Hi,I would like to share my daughters story. She will be 21 soon and > grew up with low functioning autism. She lost speech,communication > and eye contact leaving babyhood. She had poor muscle tone was a late > toe walker. She developed gastric-intestinal problems,bowel movement > problems. She was termed failure to thrive. She was selectively mute > and Dr.s thought she was deaf. She had strange postures,rocking and > hand flapping along with other stimming behaviors. She had regression > and behavior problems, she was a runner. She had an operation to > correct her vision. Her eyes would look a differant direction from a > brain signal reversal. She had two operations to help her hearing. > One allowed for some room for vibration in the bone because the nerve > didnt respond to sound in the normal way. Hearing aids would not help > this nerve problem. She had her adenoids removed to help alleviate > pushing nasal tones. By 11 I was told she was menatlly R and I should > start learning to prepare for life with my daughter in adulthood or > placement in a assisted adult home/living center. Autism was never a > word used by Dr.s in the 80s. I learned of this when she was 11{90s}. > I didnt carry much meaning for me then. By 12 she developed chronic > juvinelle rheumatic arthritis. She had lots of other tests for all > things in blood work for autism,genetics ect. One Dr. even surmised > her father and I had been distant cousins/relatives wich could cause > autism. By 7th grade I began homeschooling her. The elementary years > were good. She was in a special class of 3-5 for handicap students > after kindergarten by 4th grade she was in some mainstream class > time. Junior high was mainstream/special ed. She couldnt cope and had > an aide. Following this change to junior high she went through a > hibernation period agin and regressed. During her formative years her > older siblings grew up and left home. Her other sibs and father moved > out. All of them had a very hard time with the screaming,lack of > speech and social problems autism brings to life. They could only > cope with moments and windows of calm. It was a strain on our family > life. Everyone moved on to quiter places. She and I had all the time > in the world. I began to be her 1 on 1 mentor. She and I learned life > skills together. She taught me safety in all the parents biggest fear > ways. She taught me patience beyond patience and she taught me how to > persist against the odds. She is almost 21. Has language,shops can > cook and learned to drive. She got her license yesterday! She has a > boyfriend. They share a small duplex close to home{me} and work. She > got a job painting houses and a new cell phone. Is a cake designers > dream making a beautiful " elmo " cake for my grandaughter. Her bedroom > at my house is still the same, used when ever she feels the need for > any of the comforts of home. She still has her certain personal > behaviors but shes adjusted. Autism takes hope and patience,lots of > patience. I can only say from experience you are your childs student. > Then learning does happen. If you learn their ways they will learn > yours. Its slower then life demands in this approach. It doesnt cure > autism. It allows autism. > Best wishes, > Tishanne >