RE: LP NEED INPUT PLEASE BEFORE MONDAY srry long

[Guest guest]

Becca,

I don't want to alarm you........ & Group, tell me if I'm wrong but

you should never move from a flat position for at the least - 1hr

after an LP! Just my opinion.....but I don't think I'd allow them to

do the LP under those circumstances. Maybe you could talk with your

doctor regarding your concerns in the morning & see if it could be

scheduled in a hospital situation. Everytime I have had mine done

they did it with x-raying the site first to have an accurate

placement.

>

> HI all,

>

> I have posted yesterday about having an LP by my Neurologist...

> This will be done in his office in an exam room and i was told i

could

> leave 15 minutes after he finished. The PA told me that they would

> take like 4 viles of fluid and sent off for all kinds of test witch

> include but not limited to:a bacterial/fungal infection test, MS,

> Lupus, and many others cant remember exactly. They will also do a

> opening and closing pressure. Not to worry about laying flat just

no

> lifting and take it easy. and have plenty of fluids and caffeine

for

> three days. day before day of and day after..

>

> OK here lies my fear:

> I have a clear nasal drainage that i have

been

> told by multiple Dr's was just sinuses. that i would have horrid

head

> aches and not be able to live with them if it was csf leak.. until

i

> saw the ENT Specialist and he said no sinus probs it had to be

> something else???? hummm

> I have never been checked for a syrinx in my

> lower spin... was told it was to rare and or didn't happen...i

cant

> remember what i was told exactly...

> I talked to TCI about it and they said its

a

> good test to have done that the info would be helpful. at the time

i

> didnt now to ask them what how or who was best to do this????

> should i postpone this being done or just

make

> sure to ask all the right questions and make sure i fill comfy

with my

> neurologist doing this.. I do trust my dr in the fact that he knows

> what he is doing in the most part but he is not really thinking

chiari

> now and is looking else were for my problems, but am afraid that

> something could/would go wrong.

>

> I really need you guys point of view and experience on this. what

do i

> need to ask and make sure to now before i do this.. I am very

uneasy

> about this for the most part just because i don't go to TCI till

the

> end of august, and do not want and/or cant imagine feeling any

worse

> than i do now.how i would make it till then if i did? I am on norco

> 10-2325mg (basically loratab) for pain and that's all they will

give

> me until it doesn't work anymore and now it just takes the edge

off,

> but can not get them to up it. please let me now what u think and

i am

> sorry if this is scattered for i'm not quite my self tonight. THANK

> YOU ALL SOOOO MUCH I DO NEED YOUR HELP.

> BEST WISHES

> BECCA

> acm1 12-15mm

> decompressed 4-06

> c1 and partial c2 laminectomy

> lots of symptoms/pain

>

[Guest guest]

Becca,

I have had LPs done in the past, before I knew of my ACM1 dx. I would be

concerned about the neurologist performing this procedure in his/her office.

On my last LP, and after about 12 pricks with the four-inch needle, the

procedure was performed under a fluoroscope. If your neurologist has

difficulty extracting fluid, I doubt that he/she will be equipped with a

fluoroscope to guide the extraction.

In a more direct response to your inquiry, I can tell you that the hospital

had me lie flat for at least one hour after each LP. I was told that my

failure to remain flat would very likely result in a MAJOR headache. A

quick of the Resident's Pocketbook, reveals the following information and

precautions about LP procedures and mobilization:

Complications:

Relatively common

1) Post LP headache (rates vary from 1-70%, probably <5% for persistent

troublesome headache, " low pressure headache " i.e. headache increases when

upright and diminishes when supine, occasionally associated with nausea,

vomiting and tinnitus, onset within 1-3 days and usually lasts <5d)

2) Post LP back pain (<1/3 of patients, due to local soft tissue trauma)

Post-LP mobilization and dural puncture headache

- A period of bed rest along with supplementary fluids has traditionally

been recommended post-LP to decrease the risk of post-dural puncture

headache

I hope that this helps you.

Dallas

ACM1 - 8mm herniation

Dx 1994

Symptomatic/No Surgery

From:

[mailto: ] On Behalf Of rjbry4

Sent: Saturday, June 02, 2007 11:56 PM

To:

Subject: LP NEED INPUT PLEASE BEFORE MONDAY

srry long

HI all,

I have posted yesterday about having an LP by my Neurologist...

This will be done in his office in an exam room and i was told i could

leave 15 minutes after he finished. The PA told me that they would

take like 4 viles of fluid and sent off for all kinds of test witch

include but not limited to:a bacterial/fungal infection test, MS,

Lupus, and many others cant remember exactly. They will also do a

opening and closing pressure. Not to worry about laying flat just no

lifting and take it easy. and have plenty of fluids and caffeine for

three days. day before day of and day after..

OK here lies my fear:

I have a clear nasal drainage that i have been

told by multiple Dr's was just sinuses. that i would have horrid head

aches and not be able to live with them if it was csf leak.. until i

saw the ENT Specialist and he said no sinus probs it had to be

something else???? hummm

I have never been checked for a syrinx in my

lower spin... was told it was to rare and or didn't happen...i cant

remember what i was told exactly...

I talked to TCI about it and they said its a

good test to have done that the info would be helpful. at the time i

didnt now to ask them what how or who was best to do this????

should i postpone this being done or just make

sure to ask all the right questions and make sure i fill comfy with my

neurologist doing this.. I do trust my dr in the fact that he knows

what he is doing in the most part but he is not really thinking chiari

now and is looking else were for my problems, but am afraid that

something could/would go wrong.

I really need you guys point of view and experience on this. what do i

need to ask and make sure to now before i do this.. I am very uneasy

about this for the most part just because i don't go to TCI till the

end of august, and do not want and/or cant imagine feeling any worse

than i do now.how i would make it till then if i did? I am on norco

10-2325mg (basically loratab) for pain and that's all they will give

me until it doesn't work anymore and now it just takes the edge off,

but can not get them to up it. please let me now what u think and i am

sorry if this is scattered for i'm not quite my self tonight. THANK

YOU ALL SOOOO MUCH I DO NEED YOUR HELP.

BEST WISHES

BECCA

acm1 12-15mm

decompressed 4-06

c1 and partial c2 laminectomy

lots of symptoms/pain