Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 Pepi, I have to do a trial run to make sure I get the canning process as far as the jar right. After that I can touch base with you. I am going to try it tonight with one jar to see if it works. Anne- MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 I'll be with you about it in a few days. The ones with different flours are the harder ones to get just right. Toodles, Sal > Pepi, I have to do a trial run to make sure I get the canning process as far > as the jar right. > After that I can touch base with you. I am going to try it tonight with one > jar to see if it works. > > Anne- MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 > Pepi, I have to do a trial run to make sure I get the canning process as far > as the jar right. > After that I can touch base with you. I am going to try it tonight with one > jar to see if it works. > > Anne- MD Anne, Pepi, and Francine; I just wanted to say your doing an incredible job. Wejm upi are ready, if you give me permission to post, I'll take it to all I come in contact with, and send it to all in my address book. I've forgotten the name of the person who's doing the " Birthday Donation " for the funds, but I have sent this suggestion out as well. Lastly, another in our community has recently set up a website for giving information, and has click throughs that will also provide dollars for defense. I'll paste the URL below. Please take a moment to go to the sight. Some banners will provide $$ only if you buy something (and she is donating all the proceeds to the defense funds). Others (such as the ABOUT banner) pay just for clicking through. Please take the time to do it; a full click through will provide a donation with no purchase! Francine is also looking for volunteers to do the Avon fundraising, and I see that on this board, Kim S. responded. I think it will probably be a day or so until more responses come, as I posted it very late last night. I think all of you are doing an excellent job, and I will continue to give this information to everyone I can. When the chocolate/salsa/cheesecake fundraising is ready, just say the word. Here's the webpage mentioned above: http://lymedisease.50megs.com/index.html Thanks again for all you hard work, dedication, and enthusiam. Sincerely, Regina neurochem1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2001 Report Share Posted March 8, 2001 Anne, Where is that salsa???:) There is a LD Support meeting tonight at Highland Presby. Church at 7:30!!! Are you interested? PS If you come I will share some of Pepi's Chocolates w/ you:} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2001 Report Share Posted March 8, 2001 Ok, I'm jealous. I will be getting my delivery soon, and your note made me remember it. BTY: All those doing things for fundraising; the HLDF has hit another lull this week. We need to keep posting and getting the message out there. With so much going on in our own lives, with Lobby Day, the HLDF has slowed this past week. Thanks for bringing up the topic, . It is critical to get this message out there and to keep it going. Enjoy the chocolate! Sincerely, Regina neurochem1@... > Anne, > > Where is that salsa???:) > > There is a LD Support meeting tonight at Highland Presby. Church at 7:30!!! > Are you interested? > > > > PS If you come I will share some of Pepi's Chocolates w/ you:} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Hi, Theresa, a fashion show sounds like a really wonderful ***and very fun*** idea. I hope the event is a huge success : ) ... I wish you the very best as well, in helping to organize the cook-off contest or barbeque. Aloha, Georgina Mr. Larson, we are doing a fundraiser here in Florida for children with JRA. We are having a fashion show and the children with JRA are in the show. It is a wonderful fundraising effort. Just an FYI Theresa in West Palm Beach >last hear our local university had a smoke out arthritis bbq.It was >a big success.Unfortunately that day was really cold and we decided not to >go,afraid of what it would do to ,he was still very early in his >treatment.Hope all goes well. Becki and 3systemic > >john wood wrote: > > I remember someone here said that a school in there area hosted a cookoff > > competition of some sort. > > I would like any information on hosting this tipe of event the sororities > > and fraternities here are interested in doing a fundraiser for the > > arthritis foundation. > > Thanks Wood Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 I am new to this web site and list. I used to complain about giving , systemic JRA, diagnosed at 3 now 5, methotrexate because for the first couple of months it wasn't helping and here I was giving her this shot for nothing or so I thought. Now, I will not complain thanks to the information you sent me and I am sure 's rheumy is going to be happy receiving this information. thankyou, theresa west palm beach florida >From: "Georgina" >Reply- > >Subject: Re: fundraisers >Date: Tue, 9 Apr 2002 11:49:05 -1000 > >Hi, > >Theresa, a fashion show sounds like a really wonderful ***and very fun*** idea. I hope the event is a huge success : ) ... I wish you the very best as well, in helping to organize the cook-off contest or barbeque. > >Aloha, >Georgina > Mr. Larson, we are doing a fundraiser here in Florida for children with JRA. We are having a fashion show and the children with JRA are in the show. It is a wonderful fundraising effort. Just an FYI > Theresa in West Palm Beach > > >last hear our local university had a smoke out arthritis bbq.It was > >a big success.Unfortunately that day was really cold and we decided not to > >go,afraid of what it would do to ,he was still very early in his > >treatment.Hope all goes well. Becki and 3systemic > > > >john wood wrote: > > > I remember someone here said that a school in there area hosted a cookoff > > > competition of some sort. > > > I would like any information on hosting this tipe of event the sororities > > > and fraternities here are interested in doing a fundraiser for the > > > arthritis foundation. > > > Thanks Wood Join the world’s largest e-mail service with MSN Hotmail. Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Hi Theresa, I'm glad some of the information posted here has been helpful for you. Even more so, I'm happy to hear that 's medications have started helping her arthritis : ) Aloha, Georgina ----- Original Message ----- From: Theresa Kuhn I am new to this web site and list. I used to complain about giving , systemic JRA, diagnosed at 3 now 5, methotrexate because for the first couple of months it wasn't helping and here I was giving her this shot for nothing or so I thought. Now, I will not complain thanks to the information you sent me and I am sure 's rheumy is going to be happy receiving this information. thankyou, theresa west palm beach florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2002 Report Share Posted October 15, 2002 Has there ever been a major fundraiser put together simultaneously across the country? A 5 K run, bowlathon...There are so many parents in different parts of the country....We can't just sit around and wait for these immunemodulators. At the very least, everyone out there needs to send mass mailings to their friends and families and ask everyone to make a pre-April 15th donation. What can we do? Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2002 Report Share Posted October 15, 2002 If anyone wants a copy of the mailer that we send out for our chapter please email me directly and I will mail it to you. Kathy -NNY Quote Link to comment Share on other sites More sharing options...
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