Re: Off Miralax - how we did it - and oxalate connection!

[Guest guest]

I do think the oxalates are an issue for the " bad responders " to

miralax in that my daughter has never been on miralax (her brother

was the one who had reacted badly to it). But a while ago, I eerily

saw her display some of the jekyl and hyde type of behavior that I

had witnessed with Ethan while he was on miralax. For her, I

believe it was she was overloaded with high oxalate type of foods or

something highly phenolic... she wasn't passing her bm's and I was

putting more and more prunes and more juice into her and the more

days that went by she became mean and acting very strange. Not like

a kid having a bad day, I'm talking like a real personality change,

a real dis-connect.

W

>

>

> A quick intro -- my 4 year old son was on Miralax for about 15

months.

> Constipation since 2 months old - healthy diet including flax,

prunes,

> fruit fibers for years - but still constipated. After a prolapsed

> rectum, he went on miralax. It worked -- and it was easy -- but I

knew

> it was not the solution. FINALLY I found out that magnesium and

vitamin

> C works. IT DOES. Over a week long period of time I upped his

mag and

> vit c and decreased the miralax - working up to 1000 mg each of

> magnesium and vit c. I kept his calcium at 250-500mg -- a normal

> dosage. (Now I know I should have used calcium citrate and upped

it too

> - but that info wasn't available. I didn't know about oxy-powder

at the

> time either).

> Now -- 3 months later we are down to 300-500 mg of magnesium --

which is

> a normal amount that we should all get! A little high for his 40

lb

> body, but just fine. Other items added over the 3 months --

Omegas - 2

> ProEFA and 2 EPAxtra, Vitamin E inc gamma d, digestive enzymes, and

> other vitamins - I think we'll stick with Kirkman Thera Response.

I had

> given him probiotics for years - but just Jarrow and other HFS

ones. I

> think I should have used bigger guns -- if I had to do it over

again --

> I think I'd try VSL3.

> Improvements in speech, mood, stooling morning and night, almost

potty

> trained, etc. (He is off the spectrum, expressive speech delayed)

> But -- at the DAN conference this weekend I heard Owens

speak, and

> I had an lightening moment! One of the signs of an oxalate dump is

> sandy, black or white spec poop. OMG -- the first 2 weeks after

getting

> off Miralax his were so sandy (crystals) -- 10 wipes minumums!

Now they

> are fine. So, I am definitely going to try the low oxalate diet

for

> awhile on him -- my guess is that Miralax left him with some

issues.

> Signed -- a mom who's learning all the time!

>

[Guest guest]

That's my guess. It makes more sense to me the more I read. Miralax

must convert to oxalate and if you have a leaky gut it get's

absorbed. Hopefully will chime in with a more educated answer.

> >

> >

> > A quick intro -- my 4 year old son was on Miralax for about 15

> months.

> > Constipation since 2 months old - healthy diet including flax,

> prunes,

> > fruit fibers for years - but still constipated. After a prolapsed

> > rectum, he went on miralax. It worked -- and it was easy -- but

I

> knew

> > it was not the solution. FINALLY I found out that magnesium and

> vitamin

> > C works. IT DOES. Over a week long period of time I upped his

> mag and

> > vit c and decreased the miralax - working up to 1000 mg each of

> > magnesium and vit c. I kept his calcium at 250-500mg -- a normal

> > dosage. (Now I know I should have used calcium citrate and upped

> it too

> > - but that info wasn't available. I didn't know about oxy-powder

> at the

> > time either).

> > Now -- 3 months later we are down to 300-500 mg of magnesium --

> which is

> > a normal amount that we should all get! A little high for his 40

> lb

> > body, but just fine. Other items added over the 3 months --

> Omegas - 2

> > ProEFA and 2 EPAxtra, Vitamin E inc gamma d, digestive enzymes,

and

> > other vitamins - I think we'll stick with Kirkman Thera

Response.

> I had

> > given him probiotics for years - but just Jarrow and other HFS

> ones. I

> > think I should have used bigger guns -- if I had to do it over

> again --

> > I think I'd try VSL3.

> > Improvements in speech, mood, stooling morning and night, almost

> potty

> > trained, etc. (He is off the spectrum, expressive speech delayed)

> > But -- at the DAN conference this weekend I heard Owens

> speak, and

> > I had an lightening moment! One of the signs of an oxalate dump

is

> > sandy, black or white spec poop. OMG -- the first 2 weeks after

> getting

> > off Miralax his were so sandy (crystals) -- 10 wipes minumums!

> Now they

> > are fine. So, I am definitely going to try the low oxalate diet

> for

> > awhile on him -- my guess is that Miralax left him with some

> issues.

> > Signed -- a mom who's learning all the time!

> >

>