Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hi You're the third person I've talked with (think it's three...it may be more), that has an immediate family member with tethered cord. " They " say it's not hereditary, but I'm beginning to wonder... Do you know about the study at..umm...can't think of the name of the hospital that's doing the study on tethered cord...can anyone help me? Anyway, I'm positive, if the study is still going on, that they would be very interested in hearing from you. Kathy New Member > > > > Hi everyone! > > > > My name is , I'm the mother to a beautiful little baby girl, who > has > > just been diagnosed 3 days ago with Spina Bifida Occulta.. It's been a > long > > 3 days.. My mom also has the same.. My baby's Spinal Cord is Tethered, > and > > we look to operate soon. I have been having trouble finding a good > > Neurosurgeon (Pediatric) who specializes in tethered Cord.. Willing to > > travel anywhere.. but hopefully find someone in the Northeast.. we > actually > > reside in New York.. > > > > I'm 26 years old, and my baby girl is 4 months old. I also have a 7 > year > > old son. Hope to meet you all soon! > > > > JenNY > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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