returning to the list

[Guest guest]

Hi !!!!

It is so great to hear from you. I'm glad no one is giving up on you, but

mostly glad you haven't given up. You keep going girl...with your

determination you will see some gains.

Did you have another surgery, or are you referring to the first one you had

last year (or was it this year?)

I'm okay...still hanging in there at least. Things got worse (again) after

my last surgery in January. I was thinking about going to Miami for a

repeat untethering, but after listing the pros and cons, I decided (and my

physiatrist) that the way this nsg is doing the surgery is still in the

early stages and I'm in no shape to be a guinea pig.

However, my nsg did call me last week and when I told him what was going on

(the decline...where, what, etc) he said I shouldn't wait more than

three-four months to get into the operating room again. Ugh...I don't think

I'm going to follow his advice though. Three untetherings in five years is

enough for me right now (plus a major CSF leak repair.)

I'd like to wait and keep track of where the pain is, what sets it off,

where the decline is, if it's getting worse, etc. before jumping into it

again.

Christmas is almost here (ikes!) and I've been very busy shopping on the

Internet and through catalogs. I did end up at the mall a few times, but

with list in hand, I was in and out in a couple of hours. It's been much

easier on me this year with shopping through mail.

What else is new with you? Are you working from home still? What rehab are

you doing???

It's really so good to hear from you....a great Christmas present!

Kathy

returning to the list

> Hi,

>

> I'm not new here, but I've been gone so long I'm sure that most of

> the members here don't know me. I was on this list about 3

> years ago up until last summer, I think, when I had to leave

> because I was having difficulties reading and writing. I've really

> been working on the problem and I miss you guys so I'd like to

> come back.

>

> This 4 hour surgery, 2 weeks off work, and 2 months until I'm

> back to normal (ha ha) has turned into quite the experience and

> so I might have a lot to share with others who are just learning

> about their condition.

>

> I've dropped by from time to time to read the messages but it's

> been hard to keep up, so I'm anxious to hear how everyone is

> doing. Kathy, Sue Mc, have you gone in for surgery again?

>

> As for myself, I am still in Rehab, and have had little to no

> progress in anything we have been working on, but no one has

> given up on me and I'm seeing a new neuro in the new year.

>

> My notes may be short for a while, it takes me a long time to write

> them, but I'll do my best to answer any questions and contribute

> as much as I can.

>

> Take care all

>

>

>

>