Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 Good morning everyone~ I'm relatively new to this list. My name is Marsh and I live in Halifax, Nova Scotia with my husband, Coady, and sons Trey (9) and (4-PMG). was originally (mis)diagnosed with lissencephaly/pachygyria shortly before his 2nd birthday. I sent 's MRIs to Dr. Dobyns back in September, and he came back with a diagnosis of PMG with most of the affected area in the parietal lobe. The only outward signs of 's condition is a lack of fine motor abilities in his left side, most notably in his left hand. He is able to grasp with his left hand, but sometimes has trouble letting go. He can move fingers independently at times if he looks at the hand and makes a *large* effort. He calls this his 'silly hand.' also had a sometimes-problem with getting choked up on fluids. Something clicked in my head several months ago when I was watching drink through a straw- he wasn't choking. It seems the head-slightly-down position gives him the extra time he needs to coordinate the swallow. Now drinks mostly through a straw and choking hasn't been a problem. started full-time preschool at the beginning of November, and boy does he love it! He is seen at the school by a PT/OT team twice a week, and by a speech therapist once a month. His favorite thing to do right now is fight with his older brother and say, " you want a piece of me?! " I hope everyone on the list had a warm, loving and peaceful holiday, and my best wishes to you all for the new year. Marsh Quote Link to comment Share on other sites More sharing options...
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