Re: help for all over

[Guest guest]

I would be interested too, count me in, how can I help?. DianneMatt Juszczak wrote: I'm in the IT sector and I'd be glad to start a website for a non profit. Also, I own my own company which is a web design/hosting company and I will glady host the site for free as well.I would be very interested in starting a 501c3 to help raise awareness about this. I would be very interested in serving on the board of it, actually.> Hi Marsha,>> I

am still interested in the idea of forming an association (not for profit). Has that idea died?>> With an association and online (web) presence, it would be even easier to put forth information and links.>> Judy>> anthro_pop <Oregon7aol> wrote:> I am stopping by to read over the recent posts and clean up the site> a bit tonight......closing a few old polls and getting rid of a> couple, too.>> I was wanting to pass along that at this point, I have heard from> audiologists and 4S sufferers from just about every part of the USA> and Canada.>> I am thinking of compiling a list of helpful professionals from the> various regions, to use as a pass-along list for people who need help> and further guidance or treatment.>> What would be the best way to approach this idea, who do you

think> should be included on this list, and do all of you know helpful> clinics or medical providers or therapists, etc. who should be on> this list?>> Dr. Marsha >> Welcome new members! We are approaching 700 members at this time!>>>>>>> ---------------------------------> Never miss a thing. Make Yahoo your homepage.>> !DSPAM:47bede4d263995209328925!>

[Guest guest]

No it is a great idea and needs to happen.

I again want to add that I changed the name slightly some time ago to

SELECTIVE SOUND SENSITIVITY SYNDROME

This was due to the fact so many said it was not only soft soounds.

Let's do it.

Marsha

[Guest guest]

I wouldn't be much help with the points below, but Matt, if you want any help

with a website, let me know - I'm a web designer. Perhaps you have it covered,

but if not, I'm happy to help.

Kate

-----------

To: Soundsensitivity

Subject: Re: Re: help for all over

Marsha, etc.:

If we're going to form a 501c3, we're going to need to assign tasks to

people:

1) Thinking of a name for the organization

2) Filing the appropriate non-profit paperwork

3) Developing a .org for the organization

4) Creating a board of members not directly involved that will serve as

" auditors " .

After that, we would want to of course have a " business plan " of sorts for

what we plan to do with the non profit:

1) Fundraising

2) Awareness

etc.