Re: Brain Inflammation

[Guest guest]

Well, one thing for sure that I have learn it is gearing up for the next

Legislation session. Definitely having to " agitate " here with: End Insurance

Discrimination Now!

Several doctors are being reported unanimously throughout Texas because of the

biomedical approach even when doc's are providing the conventional medical

treatment and billing with the proper code.

When some of the health insurance find out that there are individuals with

autism being treated, HELLO, denied. This is what is going on throughout Texas

not just one city.

My son's health insurance through my hubby's employer have actually been pretty

good with us for now, have assigned a case manager where she has actually been

good getting an ear full. : ) Yes, it is educating and all worth it.

There are several of my son's circle of medical professionals who do think out

of the box have to be extremely caution on not losing their license.

Some parents have seek help for their child and reported to CPS, yes this

happens.

This is another challenge and HATE this, just very frustrating and ashamed of

some of the behind the scenes of what I have heard & witness along this journey.

My son's health is deteriorating once again and regression is showing up once

again. So I have not been a happy camper lately. Busy with doctor's appointment

within the conventional route here so this will stir and trigger me off here

when I have enough to tackle where needed.

Yesterday was such one of those days once again with that feeling of beginning

all over.

You are so right Nagla that the neurologist who several of my friends have

approached when they brought this up to them in regards to brain inflammation

when even given some of the research information IF they are willing to listen

with take it or leave it approach will then recommend guess what type of

testing? The good old Spinal Tab.

Well, just got back from Target with my son who is feeling pretty lethargic but

manage to mosey on with me to purchase whatever we felt like throwing in the

cart.

Then got in our van and he wanted to listen to Lennon's CD and he just gave

me a huge smile as we listen to " Imagine " .

Last week my son had his RPM therapy at the HALO center and BOY gotta really

LOVE Soma, she just amazes me, gives me that HOPE when even while he regress

here pushing her, shoving her,etc., she still gets him to answer the lesson she

applies at the time and he gets it right.

Towards the end he actually begun expressing out loud, this is a person who is

non-verbal, always with " NO " word but boy did Soma manage to work with him.

Then as we were ready to walk out the door, he reaches over to Soma and to touch

her hands, must be his way of thanking her and apologizing.

To me sharing this was also venting out and I will not give up even when I am on

this rollercoaster mode with dealing with the medical arena.

Don't mind me as my mind spins off with such my mode going on.

Really appreciate it when y'all share when I know everyone has so much on their

plate and manage to find ways to work around where needed. Gets me right back on

track.

Irma

>

> Irma,

> Most conventional neurologists do not think out of the box and don't know how

to test for brain inflamation markers (not even sure they agree that inflamation

in the brain exists).

> Unfortunately doing biomedical treatment while using medicaid or even

insurance doctors is very difficult, almost impossible.

> This is why I've done most of the research for my son myself, I only see a DAN

doctor when I need lab work done or a prescription for something compounded (I

can usually find an alternative over the counter, they work slower but they also

cause less side effects for my son.)

>

> Lee Silsby compounding Pharmacy makes a new product called Enhansa (curcumin

that is easily absorbed)

> http://www.leesilsby.com/

> Curcumin capsules can also be bought over the counter in any health food

store.

> This can be an alternative to Spironolactone, or used along with it to help

deal with inflamation.

> Nagla