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Re: swollem tonsils

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If you can, I@d have a strep titres test done. We traced Tom's first

sustained self injurious behaviour back to summer 2005 when he had a

terrible throat infection. NOw he has suspected PANDAS. So - if you

think it's suspect, ask for a blood test. The worst that can happen is

that you're wrong and waste an NHS blood test. Tom's titres for step

were 1360 against a reference of 170, with no external symptoms at

all. So - a very sick boy but attacking himself instead of fighting

off infection. If your gut feeling is that something is not right, go

and tell your doctor that with confidence, even if you say you'd like

the strep test to put your mind at rest. And don't settle for the

throat swap. Tom's titres are 1360, his throat swap is low to medium

levels of strep. You'd need both tests to be sure.

Steph x

>

> Hi all, haven't posted for ages,but am here almost every day! Just a

> question, if anyone could share their views, Id be grateful. My

> autistic boy aged 8 now, has swollen tonsils for a while now. He

> doesn't complain of pain or sore throat, but sometimes when I'm lying

> in bed with him, reading or talking, when he swallows it sounds like a

> gurgling, sluicing sound, as if it's an effort to swallow the saliva -

> you can hear the swallow, if you know what I mean. the doctor said the

> tonsils were enlarged, but not to worry lot's of children have this etc.

> I'm just wondering if I should have him swabbed as I want to use

> threelac with him, and have read that this would not be advised in the

> case of strep? it would make him worse? could there be strep? and if

> you were me, would you look further into this? The doctor seemed quite

> unconcerned, but she's just the locum Gp and doesnt know his

> history....thanks for any ideas, C

>

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