update

[Guest guest]

How are you doing now V?

W

>

> sooooooooo my doctor admitted me into the hospital for my impaction

> after e tried to dis impact me int he office and it lead to nowhere

> excet me crying and bcoming very sore from pain.

>

[Guest guest]

Jeanie -

I haven't been able to find the children's dose... I tried looking it up on the net but have been unsuccessful. I'm so glad that I can finally start weaning her off of this stuff.

Re: update

Did you ever look up the chilrens dose, there is one but for some reason none of the doctors seem to care to take the time to look. Nice.CHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote:

Good news. The doctor appt. went really well and the doctor was actually very nice and helpful. He said she's leaking because there's unformed loose stool from all the miralax and that she can start to come off of it. He first said that she could come off of it cold turkey which we had tried a while back and she had immediately gotten constipated again and could not go until we finally gave her an enema. So, he suggested cutting back to 3/4 of the max dose, then 1/2, and then 1/4 and finally stopping. My husband and I are so happy that we can take her off of this stuff. I'm going to keep giving her the probiotic and danactives. Should I buy her the "calm" with magnesium? I just don't want her to get stopped up again and I don't want her to have to go back on the miralax. I'm also going to make a batch of those brownies for her while we're weanning her off of this stuff. She's not big on sweets but she will eat brownies. As always thanks everyone for the advice! __,_._,

___

[Guest guest]

I googled it, then confirmed it with mayo clinic, so if you go to mayo clinic you can find it. It's like so many km per body weight per hour. I had a pharmacist and a chemist figure it out at 30- lbs. It's about 3 grams which means they aare gibing children 9 times the dose.CHRISTOPHER LOY wrote: Jeanie - I haven't been able to find the children's dose... I tried looking it up on the net but have

been unsuccessful. I'm so glad that I can finally start weaning her off of this stuff. Re: update Did you ever look up the chilrens dose, there is one but for some reason

none of the doctors seem to care to take the time to look. Nice.CHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote: Good news. The doctor appt. went really well and the doctor was actually very nice and helpful. He said she's leaking because there's unformed loose stool from all the miralax and that she can start to come off of it. He first said that she could come off of it cold turkey which we had tried a while back and she had immediately gotten constipated again and could not go until we finally gave her an enema. So, he suggested

cutting back to 3/4 of the max dose, then 1/2, and then 1/4 and finally stopping. My husband and I are so happy that we can take her off of this stuff. I'm going to keep giving her the probiotic and danactives. Should I buy her the "calm" with magnesium? I just don't want her to get stopped up again and I don't want her to have to go back on the miralax. I'm also going to make a batch of those brownies for her while we're weanning her off of this stuff. She's not big on sweets but she will eat brownies. As always thanks everyone for the advice! __,_._, ___

[Guest guest]

Devin,

I am so glad to see you back. I know it has been a hard road for you lately,

but you are not alone. We are here for you to lean on.

Terri

Join the Chiari Message Board

at www.devinsdiary.com or

at www.chiarichamps.proboards77.com

Let's make September

" Chiari Awareness Month "

Across the nation

UPDATE

Hi everyone, I just wanted to stop in and say hello. I have been very

sick, lately. I have a lump on the left side of my neck, and yes, you

guessed what it is. Things have been scary. It has been an emotional

rollercoaster for my family between medical expenses including

prescriptions and xrays/catscan etcetc. I am frustrated with feeling

poorly. It is hard when I have a hard time with my right side

paralyzation, added to Chiari syptoms and now a neck issue when trying

to raise two 8 year olds. I am lucky that from many different areas of

the Chiari Network I have made wonderful friends to talk to, get love

and support from and that truly care to check on me. We all need that

right? Just wanted to update and say hello! I hope this post finds you

all happy, healthy and positive.

Love to all,

Devin

www.devinsdiary. com

[Guest guest]

First I want to start by saying THANK YOU!!! to all of you who responde

to my " what does this mean " post. You answer and kind words truely

meant alot to me.

Well Carli still has a headache but its managable with Advil. She was

seen last week here in Vegas by Dr Duke, very nice man who really

takes the time to go over EVERYTHING with both patient and parents.

The following day I received a call from Dr Batzdorf with UCLA and they

are both in agreence;

since Carli is not showing multiple Chiari problems(just the headache)

they suggested re-doing the MRI in 6 months to see if anything has

changed

of course if there are any changes or the headache becomes worse then

they want her seen immediately

she's relieved they do not want to do surgery at this time, but a

little bummed about the things she will not be able to participate in

(high impact sports, roller coasters, bumper cars) but is extremely

happy she is still allowed to boogie board, sooooo we're taking the

family to La Jolla!!!!

You all have been so wonderful, informative, and supportive, from the

bottom of my heart I thank you!!!