Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 Although I have no concrete evidence, I think the new trend that schools have been told by their lawyers is not to allow any children with autism into their special ed programs so that they don't have to worry about the huge influx of autistic kids coming in financially burdening them. Fox 26 Houston did a story about grandparents who had custody of their grandson. In the report you could obviously tell he was autistic. All they were asking for was help with reading, and the school district, Conroe ISD, just outright denied their request. Based on things the lawyers have already taught the school districts here in Texas, I wouldn't put this idea past their tactics. I'm sorry that you are having a hard time. You might want to hire an advocate. Hilda the school thought that they would do the tests that they wanted to do on my son. they had a meeting and called it a staffing so that they could get away with not having me there for the meeting. all they sent me was a stack of papers saying that they wanted to test my son for a whole bunch of stuff all they wanted was my signature. i did not give it to them as i already had appointments set up for these exact same tests else where at no cost to me or the school system. now that they have the results i feel as though i am getting the run around with school system. my son was in the SpEd system when he was 3 and they ARDed him OUT against my better judgment and now he is back knocking at the SpEd door and they appear to be doing what they can to keep from having to open that door to let him in. the diagnostition, the assistant principl, and the school counselor along with a few other school officials have already seen the report.> > > Subject: texas special ed system> To: Texas-Autism-Advocacy > Date: Wednesday, April 22, 2009, 4:26 PM> > > > > > > > > i am the single mom of a 7 year old son that was recently diagnosed as having high functioning autism (not aspergers). my next question is the s.p.ed. system in texas. i think i want to scream. how do i get the school to call an ARD? what is the difference between an ARD and a 504 update/STAFFING. what are my rights as a parent? help!!!!! i am very overwhelmed and still proccessing the diagnosis. on top of all that we are going through an SSI review, and an MDCP review. aaarrrgggghhh! !!!!> Big savings on Dell XPS Laptops and Desktops! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 I understand how you feel. My son is 7 years old and was diagnosed Autism/ADHD. You should speak to your son's school diagnostician about your concerns regarding your son. The school would then began a series of test. Depending on the results, the school will then call a ARD Meeting to discuss any and all services they can provide to your child. My son currently receives speech and occupational therapy as well as help with reading. Like you I applied for SSI and got it. Hang in there!!!! Subject: texas special ed systemTo: Texas-Autism-Advocacy Date: Wednesday, April 22, 2009, 4:26 PM i am the single mom of a 7 year old son that was recently diagnosed as having high functioning autism (not aspergers). my next question is the s.p.ed. system in texas. i think i want to scream. how do i get the school to call an ARD? what is the difference between an ARD and a 504 update/STAFFING. what are my rights as a parent? help!!!!! i am very overwhelmed and still proccessing the diagnosis. on top of all that we are going through an SSI review, and an MDCP review. aaarrrgggghhh! !!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 A very big secret that cost my son a year of therapy is to make your request in writing not a standard typed letter just write it out and sign it. I found this out by accident I had been verbally asking for pragmatic testing for about a year, everyone was very polite until one day I was speaking with the diagnostician and had set down a stack of papers on the top was a rough listing of the tests I had wanted my son to have. I laughed when the diagnostician asked what they were, I said that this was my formal written request for his testing, the diagnostician told me to sign it and took it from me and made the phone calls and arranged every test while I stood there. I could have screamed, but if this tip helps some other family. Maybe its worth it. JoyceSent from my BlackBerry® smartphone with Nextel Direct ConnectFrom: kahalia smith Date: Wed, 22 Apr 2009 15:15:50 -0700 (PDT)To: <Texas-Autism-Advocacy >Subject: Re: texas special ed system I understand how you feel. My son is 7 years old and was diagnosed Autism/ADHD. You should speak to your son's school diagnostician about your concerns regarding your son. The school would then began a series of test. Depending on the results, the school will then call a ARD Meeting to discuss any and all services they can provide to your child. My son currently receives speech and occupational therapy as well as help with reading. Like you I applied for SSI and got it. Hang in there!!!!From: nancylinguist <nancylinguist>Subject: texas special ed systemTo: Texas-Autism-Advocacy Date: Wednesday, April 22, 2009, 4:26 PMi am the single mom of a 7 year old son that was recently diagnosed as having high functioning autism (not aspergers). my next question is the s.p.ed. system in texas. i think i want to scream. how do i get the school to call an ARD? what is the difference between an ARD and a 504 update/STAFFING. what are my rights as a parent? help!!!!! i am very overwhelmed and still proccessing the diagnosis. on top of all that we are going through an SSI review, and an MDCP review. aaarrrgggghhh! !!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 the school thought that they would do the tests that they wanted to do on my son. they had a meeting and called it a staffing so that they could get away with not having me there for the meeting. all they sent me was a stack of papers saying that they wanted to test my son for a whole bunch of stuff all they wanted was my signature. i did not give it to them as i already had appointments set up for these exact same tests else where at no cost to me or the school system. now that they have the results i feel as though i am getting the run around with school system. my son was in the SpEd system when he was 3 and they ARDed him OUT against my better judgment and now he is back knocking at the SpEd door and they appear to be doing what they can to keep from having to open that door to let him in. the diagnostition, the assistant principl, and the school counselor along with a few other school officials have already seen the report. > > > Subject: texas special ed system > To: Texas-Autism-Advocacy > Date: Wednesday, April 22, 2009, 4:26 PM > > > > > > > > > i am the single mom of a 7 year old son that was recently diagnosed as having high functioning autism (not aspergers). my next question is the s.p.ed. system in texas. i think i want to scream. how do i get the school to call an ARD? what is the difference between an ARD and a 504 update/STAFFING. what are my rights as a parent? help!!!!! i am very overwhelmed and still proccessing the diagnosis. on top of all that we are going through an SSI review, and an MDCP review. aaarrrgggghhh! !!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2009 Report Share Posted April 23, 2009 > > A very big secret that cost my son a year of therapy is to make your request in writing not a standard typed letter just write it out and sign it. I found this out by accident I had been verbally asking for pragmatic testing for about a year, everyone was very polite until one day I was speaking with the diagnostician and had set down a stack of papers on the top was a rough listing of the tests I had wanted my son to have. I laughed when the diagnostician asked what they were, I said that this was my formal written request for his testing, the diagnostician told me to sign it and took it from me and made the phone calls and arranged every test while I stood there. I could have screamed, but if this tip helps some other family. Maybe its worth it. I just want to add that this is not a piece of advice to ignore because this exact same thing happened to me. For us, it was TWO YEARS. A lawyer friend finally tipped me off that I had to make my requests IN WRITING. It was amazing. The minute I gave them my written request for a " full and individual " evaluation, they dropped all the game playing and did it. Of course, then they commenced with other game playing. Like " let's pretend he doesn't have autism... " But that would be another post. It seems every step of the way is another game to figure out. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2009 Report Share Posted April 23, 2009 > > the school thought that they would do the tests that they wanted to do on my son. they had a meeting and called it a staffing so that they could get away with not having me there for the meeting. all they sent me was a stack of papers saying that they wanted to test my son for a whole bunch of stuff all they wanted was my signature. i did not give it to them as i already had appointments set up for these exact same tests else where at no cost to me or the school system. now that they have the results i feel as though i am getting the run around with school system. my son was in the SpEd system when he was 3 and they ARDed him OUT against my better judgment and now he is back knocking at the SpEd door and they appear to be doing what they can to keep from having to open that door to let him in. the diagnostition, the assistant principl, and the school counselor along with a few other school officials have already seen the report. Hi . Your situation is somewhat similar to ours in at least some ways. We had most of our own evaluating done ourselves (everything from educational testing, autism testing, speech, OT), and have been in the process of bringing it back to the school for some time. It has been an ongoing process. Some information that may help you organize your thoughts... The school has to do their own evaluation. Sounds like that is happening, so that is not a problem in and of itself. What it sounds like you may not be aware of is that you need to request in writing that you want your evaluations considered as input to the ARD. They don't have to automatically do that just because you handed them the reports. You need to make a list of the evaluations and request each one explicitly be considered as input. There is also some kind of deadline, just a few days before the ARD, that they have to have receipt of them. You may well be getting the run around. We certainly did. The key for us was finding out what the official protocol is and following it to a " T " . When our school is getting dippy and not making sense, it has helped me to call the school district SPED office and discuss what is going on, find out what the protocol is supposed to be, etc. They generally speak " English " better for some reason. They also call the school administrators at that school and discuss the concerns. It is good to network and get to know people too. And I have also discovered the secret of making things concrete to the point where they can't deny it. Make sure you are ready with specific examples and documentation. We also had to have the patience to let them have some space and time to see things for themselves, especially since all the evaluations were coming from us. As you well know, autism is complex, and it will take them some time to absorb everything and do their own experiments with what works and what doesn't. They may accept the evaluation results but not agree with the recommendations. Just make sure you keep pushing them. The initiative may well have to come from you. They may drop the ball if you don't hang right with them, which is natural if they don't even want to be playing the game. I'm sure an advocate might be helpful. We have been able to do without one. Although I have talked with attorneys and advocates on these lists, sometimes extensively, so I don't really feel like I have gone without. It is worth it to spend a little time on the TEA and IDEA websites and get to know what the laws actually are. Hope this helps. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 The correct terminology is a full and individual evaluation (FIE). School districts have the responsibility under the Child Find provision of the Individual's with Disabilities Education Act (IDEA)to locate all children within their boundaries with disabilities and to assess in all areas of suspected disabilities. The catch is that you must provide written consent for the district to assess. By the way, if they say that you must use their forms that is bunk. There is no magic in their paper work. You should send this to your building principal as soon as possible and be certain to obtain a receipt of delivery. By the way, I recommend that everyone on this list serve sign up with the web site " READNOTIFY.COM. " By utilizing this service, you will be notified when someone reads an email that you send them and they will not know that they are being tracked. The cost is $36 a year. To utilize the service, simply add the extension .silent.readnotify.com after the normal email address. IT IS IMPERATIVE THAT YOU PUT IN .SILENT.READNOTIFY.COM AS WE DO NOT WANT THE SCHOOL DISTRICTS TO GET WISE TO THIS PROGRAM. For the benefit of the group I will upload a new file to the list serve providing you a format for requesting an assessment. Louis H. Geigerman President National ARD/IEP Advocates http://www.narda.org louis@... > > > > > > From: nancylinguist <nancylinguist@> > > > Subject: texas special ed system > > > To: Texas-Autism-Advocacy > > > Date: Wednesday, April 22, 2009, 4:26 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > i am the single mom of a 7 year old son that was recently diagnosed as having high functioning autism (not aspergers). my next question is the s.p.ed. system in texas. i think i want to scream. how do i get the school to call an ARD? what is the difference between an ARD and a 504 update/STAFFING. what are my rights as a parent? help!!!!! i am very overwhelmed and still proccessing the diagnosis. on top of all that we are going through an SSI review, and an MDCP review. aaarrrgggghhh! !!!! > > > > > > Quote Link to comment Share on other sites More sharing options...
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