new member - son had analplasty oct 2005 trying to get off miralax

[Guest guest]

Hi everyone,

We have had a long and poopy history with our son who is now 5 years

old. With the benefit of hind-sight I see how all of his symptoms

from birth were letting us know what the problem was, however, his

anolrectal malformation went undiagnosed until he was 3 years old.

Once correctly diagnosed he had a successful analplasty. Follow-up

treatment of dilatation was barbaric.

He is now 5 years old, 20 months from the surgery, and I want to take

advantage of the summer holidays to wean him from miralax. He stayed

on miralax after the surgery because he needed to have pain-free

pooping. He was starting to withhold his poops due to a

pain-association. (Imagine trying to pass a BM through a tiny, tiny,

opening.) Also, keeping him on miralax has allowed him to have a

regular bm pattern, attend school without soiling incidents and

frankly give us all a much needed break from the painful cycle that we

had named poop-a-palooza. Since his surgery he has become a much much

healthier child.

I am concerned about his long-term use of the drug, he has had

problems with constant itching, and I'm worried about kidney problems.

I'm taking him in to his doctor to get a kind of baseline health

check (test for kidney issues) and then I want to start weaning him

from the drug. I am fearful that the actual opeing that his anus

allows is just not going to let him poop normally. His surgeon felt

that he would be fine but I'm not sure.

I am hoping that this group with have some helpful advice on weaning

from miralax and controlling constipation. I'm also wondering if

anyone has had similar experience with analplasty.

Thanks,

Nathalie

[Guest guest]

Nathalie - Can't help you on the analplasty, but I'm totally with you on the Poop-a-palooza. We have the same thing here!

new member - son had analplasty oct 2005 trying to get off miralax

Hi everyone,We have had a long and poopy history with our son who is now 5 yearsold. With the benefit of hind-sight I see how all of his symptomsfrom birth were letting us know what the problem was, however, hisanolrectal malformation went undiagnosed until he was 3 years old. Once correctly diagnosed he had a successful analplasty. Follow-uptreatment of dilatation was barbaric. He is now 5 years old, 20 months from the surgery, and I want to takeadvantage of the summer holidays to wean him from miralax. He stayedon miralax after the surgery because he needed to have pain-freepooping. He was starting to withhold his poops due to apain-association. (Imagine trying to pass a BM through a tiny, tiny,opening.) Also, keeping him on miralax has allowed him to have aregular bm pattern, attend school without soiling incidents andfrankly give us all a much needed break from the painful cycle that wehad named poop-a-palooza. Since his surgery he has become a much muchhealthier child.I am concerned about his long-term use of the drug, he has hadproblems with constant itching, and I'm worried about kidney problems.I'm taking him in to his doctor to get a kind of baseline healthcheck (test for kidney issues) and then I want to start weaning himfrom the drug. I am fearful that the actual opeing that his anusallows is just not going to let him poop normally. His surgeon feltthat he would be fine but I'm not sure.I am hoping that this group with have some helpful advice on weaningfrom miralax and controlling constipation. I'm also wondering ifanyone has had similar experience with analplasty.Thanks,Nathalie