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How many of your children with PMG receive OT, PT, Speech therapy? I am an OT

with a child who has PMG on my caseload. From a therapist perspective I am

looking for any suggestions, comments etc. on treatment ideas, or anything that

you see that has assisted you in the developoment of your child. Any

suggestions are welcome anything from crawling to reaching to babbling. I use

whatever technique that works or try, at least once, what has worked for others.

Sincerely-

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Dear ,

Our grandson, , has just entered a home run by an orginazation called

" Special Care " . We are hoping it will be short term and that he will be able

to come home soon. He is now being assesed to determine the types of

therapy he will receive; respiratory, ot and pt. His diagnosis is

polymicrogyria unless Dr. Dobyn's at the University of Chicago determines

otherwise. If you would like, I will try to get the names and phone numbers

of the therapists who will be working with . There are six children

in this home and one of them has Liss and I am not certain of the rest but

believe they have neurological disorders. I also believe the same

therapists work with all of these children. If you are interested, please

contact me. Mylo

>

>Reply-To: polymicrogyriaegroups

>To: <polymicrogyriaegroups>

>Subject: Therapy

>Date: Wed, 20 Sep 2000 17:37:05 -0500

>

>How many of your children with PMG receive OT, PT, Speech therapy? I am an

>OT with a child who has PMG on my caseload. From a therapist perspective I

>am looking for any suggestions, comments etc. on treatment ideas, or

>anything that you see that has assisted you in the developoment of your

>child. Any suggestions are welcome anything from crawling to reaching to

>babbling. I use whatever technique that works or try, at least once, what

>has worked for others. Sincerely-

>

>

>

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,

My son receives ST,OT,PT, and Vision Therapy 2x a week 30 minute sessions.

He also receives all these in preschool.................so he gets alot of

therapy.

I do not know of anything special his therpaist do for him............he has

alot more dx's than

PMG. It took a long time to get where he is at today but all the therapy is

paying off.

He is doing exceptionally well all things considered.

His OT is at Trident Sports Medicine .

Donna Delzer(mom to Trevor,4 1/2 yrs. P-ACC,polymicrogyria,BPNH,seizures,

mild hydrocheylus and dandy walker variant(shunted

7/99),hypopitituritisum,stress hormone deficiency,global developmental

delays,Optic nerve hypoplasia,cortical visual impairment,severe language

disorder,sensory issues,feeding issues,peanut allergies)

Summerville,SC

jdelzer@...

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My 21 mos old daughter Olivia gets PT, OT, Speech and Sign. OT was

here biggest challenge. The success came from finding one thing

Olivia really enjoyed. She liked shinny beaded necklaces and putting

juice tops into slits of coffee cans, odd but it was the only thing

she would use her left hand for. Now her OT is using the swing and

she is reacting positively in many ways to this. Olivia also liked

playing with pudding in her high chair or shaving cream.

--- >

>

>

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Before Teddy started school we had 1 hr/wk PT, 1 hr/every other week OT, 1

hr/every other week Speech. The speech & OT seemed to work mainly on

teaching him to self-feed. We worked a lot on stimulating the mouth prior

to eating. I found a vibrating toothbrush did a good job and was easy to

wash. I also use a pencil grip on his spoons so they wouldn't slip when

slimy with food. Also I can throw the spoon in the dishwasher, grip and

all!

I wish my OT or speech person had mentioned Dycem!. I recently bought some

Rubbermaid brand and it makes it easier for his food dish to not slide

around, and he can put his coloring book on it and it doesn't slid around as

much either. I used to have to tape paper to the table so he could color on

it.

Kim & Teddy Raub

Therapy

>

> How many of your children with PMG receive OT, PT, Speech therapy? I am

an OT with a child who has PMG on my caseload. From a therapist perspective

I am looking for any suggestions, comments etc. on treatment ideas, or

anything that you see that has assisted you in the developoment of your

child. Any suggestions are welcome anything from crawling to reaching to

babbling. I use whatever technique that works or try, at least once, what

has worked for others. Sincerely-

>

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The generic version of Dycem is from Rubbermaid called Grip Liner. It's a

sheet of mesh stuff that holds things down and it's washable, it's made to

line drawers so the silverware doesn't move back and forth when you open and

close the drawer.... but us special needs parents have found other uses for

it!

Kim

RE: Therapy

>

> Kim-

>

> What is Dycem?

>

> Christie, mom to Sam (9yrs old, BPP)

>

>

>

>

>

>

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