Re: new members please post...

[Guest guest]

Hello to the group.

New member here. My child experiences cerebral palsy and a muscle spasm disorder called dystonia. In general his motility used to be pretty good, but the more his muscles spasm, the more trouble he's had going to the bathroom. Also most of the medications/treatments for his neuromuscular disorder cause constipation and/or retention as a side effect, which makes matters more complicated. (his base tone gets too low from meds, but he still has hard spasms over that.) His gi and urologist have proposed botox, but we've done tons of the stuff elsewhere in his body, and aren't too excited about going back to it, especially not for this use.

Mostly we find that meds complicate things so much for him - finding the balance with them makes us a little nuts. The more we can stick to naturally - the better. It's just a challenge keeping up with all the natural supplements in addition to other meds, therapy, on and on... (I also want to do rounds of probiotics between rounds of antibiotics.)

But the supplements are also so important to make life as easy for our guy as we can.

sharry, aidan's mom

new members please post...

Hi to all our new members... I know from some of you joining, you typed that your kids have disabilities and you are interested in knowing more about the adverse reactions, and there are also some of you who wrote that your kids (not necessarily with disabilities) were recently put on miralax and you are seeing behavioral changes. I'd like to extend the invitation to post-- by posting, it helps us all understand more about what is going on in some kids when they have this adverse behavioral/physical reaction to miralax. And perhaps some of our members can share their experiences to help you, too!Welcome to the board!W

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