heart and drop attacks

[Guest guest]

So glad you wrote this.

I would like to add. When they thought I was having drop attacks it was

actually severe heart arrythmia NOT related to chiari and I almost died.

I usually send a warning to not " assume " all things are chiari.

Kathy

decompressed 04

detethered 06

fusion 07

Hi Robin and All

I'm posting this to the group to see if my understanding of drop

attacks is correct or not.

I'm wondering if the docs ever did a holter monitor or anything with

your daughter's heart?? I don't want to scare you, but high heart

rates and problems with drops in bp can happen with chiari. And what

makes me thinks this, is that can also be an affect pn the autonomic

nervous system from chiari which controls how the blood vessels

constrict and dilate. It could be that she's not constricting like

she should when she's hot and her BP might be falling. Next time it

happens, either you or her teacher check her pulse and see if it's

fast or not. It could be normal rate and she could still be dropping

her blood pressure.

Does she have any warning before she passes out?? My understanding is

that a drop attack is not going " out " but simply falling and losing

control of your legs and body. I had them frequently before my

decompression, but I didn't lose consciousness. just throwing ideas

out there for you. The heat used to send my heart racing and make me

feel like I was going to pass out. Better now, but I have learned to

stay really well hydrated.

Also, if it's happening in school and she does have a feeling it's

coming, maybe she could keep one of those cold packs with her that

gets cold when you crack it. I used to put ice on the back of my neck

and it would settle me down when the heat made me feel like I was

going to go out.

best of luck to you and blessings to your daughter

>

> This is so very odd because my daughter gets very overheated and

this is

> when she ends up having a drop attack (mostly occurs in school). I

keep my heat

> very low at home and my house cool at all times for her. She, too,

gets red

> all over. Now this has me wondering b/c from day one since last

year i've

> told the neurologist that her drop attacks are triggered by heat.

They kept

> saying she has epilepsy BUT now that's all up in the air and in

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