Re: Strains of bacteria in your children's guts

[Guest guest]

Unfortunately all of my sons tests were 5 months or more after he was off of miralax. I think it's possible that the stuff remains in the body, however. I think it was that said her daughter had detectable sludge in the kidneys? My son has been left with some acidosis as a thank you gift from miralax (I also blame the DTaP vaccine) -- in addition to delayed speech, some sensory issues and a lower IQ. (grrr).

Anyway, here are the items that were out of wack - 5 months after he had had his last dose of miralax. These are grouped like Great Plains groups -- but areas overlap

Organic Acid Profile - http://www.greatplainslaboratory.com/test1comp2.html

Yeast/Fungal -

3-oxyglutaric ref range 0-0.5 1.36

Tartaric ref range 0-16 22.33

Arbinose ref range 0-47 84.62

Oxalic (acid) ref range 0-37 79.37

Krebs Cycle

Succinic ref range 0-20 25.50

Fatty Acid Metabolites

Acetoacetic ref range 0-10 30.82

Suberic ref range 0-2 3.01

Amino Acid Metabolites (all were low normal except)

3-indoleacetic ref range 0-10 11.03

(There were a few more that were little off, but they were vitamin indicators and others that I know were due to supplements)

His copper level was high year ago -- have been giving zinc and B6 for many months now to bring that in balance – last blood test showed everything in normal range. BTW – Zinc and B6 are essential for getting rid of oxalates and I think they are depleted by PEG, but I don't know exactly why.

My son's caseomorphin levels were very high – he started on GFCF the day I got the test results! Normal ration is less than .95, his result was 4.47 !

Stool culture didn't indicate any dysbiotic flora – his beneficial flora reading were good

Bifidobacter 3+E coli 4+Lactobacillus 3+

Imbalance

Bacillus sp 1+

Gamma strep 3+ (this is not the same as the strep virus)

These tests were all a year ago. The more recent blood tests have shown cellular level inflammation, elevated 1,25 vit D and other markers. My son still has cloudy urine with visible cellular depris at times – and this is a year and a half after miralax!

I hope this helps some people!

>> I wonder if all of you who have had stool tests performed could just> quickly post what strains of bacteria were identified in your> children's stools. If we could compile a list of those strains found> in the GI tracts of the children who seemed to have adverse reactions> to Miralax, that might be helpful.> > Also, it might be informative to know how long your child would go> between bowel movements while on Miralax/Golytely/other PEG compounds.> > What was the dosage (amount and frequency) of Miralax you were giving?> > Lastly, if you had any lab work (blood, maybe urine?) done to check for > metabolic acidosis, osmol gap, etc., while your child was taking> Miralax or related products? [Anyone happen to test for ethylene> glycol in the blood while on Miralax?? - that would be ideal and> provide proof positive of PEG breakdown (unless your child had also> ingested antifreeze.)]> > best,> >

[Guest guest]

We had a stool test done, but I think it was just to check for parasites (came back negative, though I've since read that stool tests don't always detect all kinds of parasites). I'd like to ask our pediatrician to do a stool test for bacteria...but is there a specific test that I should ask for? Thanks!

Bonnie

I wonder if all of you who have had stool tests performed could just

quickly post what strains of bacteria were identified in your

children's stools. If we could compile a list of those strains found

in the GI tracts of the children who seemed to have adverse reactions

to Miralax, that might be helpful.

Also, it might be informative to know how long your child would go

between bowel movements while on Miralax/Golytely/other PEG compounds.

What was the dosage (amount and frequency) of Miralax you were giving?

Lastly, if you had any lab work (blood, maybe urine?) done to check for

metabolic acidosis, osmol gap, etc., while your child was taking

Miralax or related products? [Anyone happen to test for ethylene

glycol in the blood while on Miralax?? - that would be ideal and

provide proof positive of PEG breakdown (unless your child had also

ingested antifreeze.)]

best,

[Guest guest]

Hi Bonnie,

Our doctor gave us a kit from Geneva labs - which I think is the new

name of Great Smokies Labs.

(http://www.gdx.net/home/assessments/cdsa/appguide/)

I think Great Plains Labs probably also does a comprehensive stool

test. (http://www.greatplainslaboratory.com/stool.html)

I think for either you need some type of practitioner's signature on

the requisition. Here's an excerpt from Great Plains Labs' site:

****

" Do I have to have a physician's approval to get testing performed at

The Great Plains Laboratory?

A physician's approval is necessary if you are a resident of the

United States, and recommended but not obligatory for residents of

other countries. In the United States, a medical practitioner who is

licensed to order testing in your state must approve the test order.

Regulations vary from state to state so an approved medical

practitioner could be a medical doctor (M.D.), osteopath (D.O.), nurse

practitioner, chiropractor (D.C.), naturopath (N.D.) or nutritionist. "

*****

Also, I have no idea what the difference(s) may be between using

Geneva's versus GPL's stool test...?? Just know which one our doctor

gave us. I imagine there are other labs that do similar tests as

well, these are just the two of which I'm aware.

> I wonder if all of you who have had stool tests

performed could just

> quickly post what strains of bacteria were identified in your

> children's stools. If we could compile a list of those strains found

> in the GI tracts of the children who seemed to have adverse reactions

> to Miralax, that might be helpful.

>

> Also, it might be informative to know how long your child would go

> between bowel movements while on Miralax/Golytely/other PEG compounds.

>

> What was the dosage (amount and frequency) of Miralax you were giving?

>

> Lastly, if you had any lab work (blood, maybe urine?) done to check for

> metabolic acidosis, osmol gap, etc., while your child was taking

> Miralax or related products? [Anyone happen to test for ethylene

> glycol in the blood while on Miralax?? - that would be ideal and

> provide proof positive of PEG breakdown (unless your child had also

> ingested antifreeze.)]

>

> best,

>

>

[Guest guest]

Thanks, . Looking at how expensive these are I realize that I need to go back to our HMO doctor and advocate for him to order this test...I'm hoping that this is something an ordinary lab can do! We'll see. I hate to go to our HMO because the doctors there are so utterly clueless. But, on the other hand, I did convince our doctor there to send my DD for an evaluation for sensory processing disorder, even though he had never heard of it (and now, as a result, she's getting occupational therapy every week)...maybe I can talk him into this too...

Bonnie

Hi Bonnie,

Our doctor gave us a kit from Geneva labs - which I think is the new

name of Great Smokies Labs.

(http://www.gdx.net/home/assessments/cdsa/appguide/)

I think Great Plains Labs probably also does a comprehensive stool

test. (http://www.greatplainslaboratory.com/stool.html)

I think for either you need some type of practitioner's signature on

the requisition. Here's an excerpt from Great Plains Labs' site:

****

" Do I have to have a physician's approval to get testing performed at

The Great Plains Laboratory?

A physician's approval is necessary if you are a resident of the

United States, and recommended but not obligatory for residents of

other countries. In the United States, a medical practitioner who is

licensed to order testing in your state must approve the test order.

Regulations vary from state to state so an approved medical

practitioner could be a medical doctor (M.D.), osteopath (D.O.), nurse

practitioner, chiropractor (D.C.), naturopath (N.D.) or nutritionist. "

*****

Also, I have no idea what the difference(s) may be between using

Geneva's versus GPL's stool test...?? Just know which one our doctor

gave us. I imagine there are other labs that do similar tests as

well, these are just the two of which I'm aware.

> I wonder if all of you who have had stool tests

performed could just

> quickly post what strains of bacteria were identified in your

> children's stools. If we could compile a list of those strains found

> in the GI tracts of the children who seemed to have adverse reactions

> to Miralax, that might be helpful.

>

> Also, it might be informative to know how long your child would go

> between bowel movements while on Miralax/Golytely/other PEG compounds.

>

> What was the dosage (amount and frequency) of Miralax you were giving?

>

> Lastly, if you had any lab work (blood, maybe urine?) done to check for

> metabolic acidosis, osmol gap, etc., while your child was taking

> Miralax or related products? [Anyone happen to test for ethylene

> glycol in the blood while on Miralax?? - that would be ideal and

> provide proof positive of PEG breakdown (unless your child had also

> ingested antifreeze.)]

>

> best,

>

>

[Guest guest]

They are expensive - we have PPO insurance so we have a little

flexibility. Somehow, though, it costs more to have the PPO and we

seem to keep paying more out of pocket anyway. ugh.

Good luck with the HMO doctors. Surely there are other labs that run

this kind of testing and work with HMOs!??

> > > I wonder if all of you who have had stool tests

> > performed could just

> > > quickly post what strains of bacteria were identified in your

> > > children's stools. If we could compile a list of those strains found

> > > in the GI tracts of the children who seemed to have adverse

reactions

> > > to Miralax, that might be helpful.

> > >

> > > Also, it might be informative to know how long your child would go

> > > between bowel movements while on Miralax/Golytely/other PEG

compounds.

> > >

> > > What was the dosage (amount and frequency) of Miralax you were

giving?

> > >

> > > Lastly, if you had any lab work (blood, maybe urine?) done to

check for

> > > metabolic acidosis, osmol gap, etc., while your child was taking

> > > Miralax or related products? [Anyone happen to test for ethylene

> > > glycol in the blood while on Miralax?? - that would be ideal and

> > > provide proof positive of PEG breakdown (unless your child had also

> > > ingested antifreeze.)]

> > >

> > > best,

> > >

> > >

> >

> >

> >

>

[Guest guest]

I know, I go back and forth about whether we ought to switch to a PPO. I would like the flexibility, and it would save us money when we go to alternative practitioners...but, our HMO pays for 100% of anything it deems should be covered. For example, we didn't have to pay the hospital anything when my DDs were born, and my 4-year-old's occupational therapy is 100% covered...but, on the other hand, I seem to spend an appalling amount of money on chiropractors and supplements...oh well. Bonnie

They are expensive - we have PPO insurance so we have a little

flexibility. Somehow, though, it costs more to have the PPO and we

seem to keep paying more out of pocket anyway. ugh.

Good luck with the HMO doctors. Surely there are other labs that run

this kind of testing and work with HMOs!??

> > > I wonder if all of you who have had stool tests

> > performed could just

> > > quickly post what strains of bacteria were identified in your

> > > children's stools. If we could compile a list of those strains found

> > > in the GI tracts of the children who seemed to have adverse

reactions

> > > to Miralax, that might be helpful.

> > >

> > > Also, it might be informative to know how long your child would go

> > > between bowel movements while on Miralax/Golytely/other PEG

compounds.

> > >

> > > What was the dosage (amount and frequency) of Miralax you were

giving?

> > >

> > > Lastly, if you had any lab work (blood, maybe urine?) done to

check for

> > > metabolic acidosis, osmol gap, etc., while your child was taking

> > > Miralax or related products? [Anyone happen to test for ethylene

> > > glycol in the blood while on Miralax?? - that would be ideal and

> > > provide proof positive of PEG breakdown (unless your child had also

> > > ingested antifreeze.)]

> > >

> > > best,

> > >

> > >

> >

> >

> >

>