Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Hi guys, I leave tuesday for the NIH study on EDS. I was just curious if anyone on this list had gone and if so if you have any advice for me while there. Anywhere from travel advice to my problems related to EDS were validated. I have this huge fear of you dont have EDS, when it has impacted my life so very much. I've been on the wiating list for 3 years now so things just dont seem real. I'm traveling alone so I'm scared about going alone to a strange place. I travel to NY alone a lot. IT's a strange place with some strange people, and some strange italian neurosurgeons (just kidding) but at least I'm used to the strangeness. Quote Link to comment Share on other sites More sharing options...
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