Guest guest Posted June 24, 2007 Report Share Posted June 24, 2007 In preparation of sending everything to TCI, I have gotten all Tasha's medical records. The surgeon had not said anything to us about finding any unusual findings, but a couple are noted in the operative report. 1) " Interestingly, the C1 lamina was quite abnormal. There was a bifid C1. There was a bifida with a defect at C1. It was a very cartilaginous C1 until we came laterally when it was very compressive. " Okay, if I understand correctly from what I have researched this means that she has spina bifida occulta. But, it is simply affects one vertebrae and should not be any big deal; the research I have read says that the occult form is the mildest form and will many times go undiagnosed. In researching spina bifida, I have not seen anything regarding cartilaginousness or compressiveness of vertabrae. Is there anything I should be aware of here? 2) " The bone [speaking of the bone where the craniectomy was performed] was quite abnormal in the posterior fossa. In fact, the rim of the foramen magnum was almost horizontal and compressing the craniovertebral junction in a very significant way. " This finding I have not been able to find anything on the Internet. Could this have anything to do with her ongoing problems? Finally, her final MRI noted cerebellar matter settling. I have wondered if this was in any way related to cerebellar slump. The operative report shows that the craniectomy was made 3cm wide and 2cm high. Does this sound like a usual size? Would it be too large and might contribute to settling or slump? Sorry for the length. I am just trying to figure all this out. Plus, I have family going, " What does that mean?...Let me know when you find out. " Thank you in advance for anyone who might be able to provide us some insight into this. --------------------------------- Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
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