Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 WOW! Thanks Marsha! Jane Reply-To: Soundsensitivity Date: Wed, 15 Feb 2006 18:49:19 -0000 To: Soundsensitivity Subject: Drug Therapy Alert I have just heard from a patient in Colorado who was able to try a new drug that literally ironed out her auditory processing problems (hyperacusis, sound sensitivity) within ten days. Here is the name of the drug: You can ask your MD for a presciption and try it, then report back here with any results, pos or neg, and we can do a little in-house study. My Patient obtained this from a NEUROLOGIST: " .............She had treated hyperacusis before, successfully. She first tried a medication with the least side effects (I can look it up, but I think Tizanidine). That made no difference. So we tried Imipramine 25 mg., which had no effect, then 50 mg and bingo! within two weeks the hyperacusis was gone. Vanished. Unbelievable. Wonderful. And hasn't come back at all. I stayed on that dosage for months, then have tapered off till I stopped today. Hope this is closure for you too, and possibly helpful for others. Thanks for your help. " So the name is IMIPRAMINE.....ok, here we go, who will be willing to call up their MD, make an appt., take in this name and try it? Marsha , MS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Wow, Marsha--that's incredible!! So exciting. Did it work for SSSS or just regular hyperacusis? Also, do you think it would be okay for children like my daughter, ? Side note: I'm not sure if you got my email about getting a medical report on 's diagnosis faxed to a new pediatrician, etc. I know you're very, very busy. Thanks for all your help. Kathy Howe -- In Soundsensitivity , " anthro_pop " wrote: > > I have just heard from a patient in Colorado who was able to try a > new drug that literally ironed out her auditory processing problems > (hyperacusis, sound sensitivity) within ten days. > > Here is the name of the drug: You can ask your MD for a presciption > and try it, then report back here with any results, pos or neg, and > we can do a little in-house study. > > > My Patient obtained this from a NEUROLOGIST: > > " .............She had treated hyperacusis before, successfully. She > first tried a medication with the least side effects (I can look it > up, but I think Tizanidine). That made no difference. > > So we tried Imipramine 25 mg., which had no effect, then 50 mg and > bingo! within two weeks the hyperacusis was gone. Vanished. > Unbelievable. Wonderful. > > And hasn't come > back at all. I stayed on that dosage for months, then have tapered > off till I stopped today. Hope this is closure for you too, and > possibly helpful for others. Thanks for your help. " > > So the name is IMIPRAMINE.....ok, here we go, who will be willing to > call up their MD, make an appt., take in this name and try it? > > Marsha , MS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Psychotropics are dangerous--this is all I know. I avoid them like the plague and government officials. Jane Parks-McKay wrote: Re: Re: Drug Therapy Alert I looked this drug up in my Rite-Aid pharmacy book and of course, they group this drug along with a lot of other things but many, many side effects to this drug and anything else it may be associated with. I would definitely look into this drug or any really, into a ton of detail before trying it myself... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Aspirin can kill you, too. This is the first medication that a reliable source has reported that appears to work directly on hyperacusis. Side effects are to be considered, yes, but some of you might be interested in talking this over with your local physicians, and then reporting back on how it worked. MJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 I'm less worried about being killed than being neurologically, and hence psychologically, mentally, and/or emotionally, altered. That's what I mean by dangerous. Asprin just stops your heart if you take too much, or something like that. anthro_pop wrote: Aspirin can kill you, too. This is the first medication that a reliable source has reported that appears to work directly on hyperacusis. Side effects are to be considered, yes, but some of you might be interested in talking this over with your local physicians, and then reporting back on how it worked. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 what are psychotripics? Jane Reply-To: Soundsensitivity Date: Thu, 16 Feb 2006 06:40:50 -0000 To: Soundsensitivity Subject: Re: Drug Therapy Alert I only take pscyhotropics for recreation..never therapy. I will not budge an inch on this one. I'm just set in my ways like that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 and Jane! In all likelihood hyperacusis is the result of brain chemistry or electricl problems! Either transmitter problems or rate-strength- regulator issues. Chemicals can be very helpful for humans beings, in the form of coffee, chocolate, perfumes, salty ocean spray, and beeswax candles! There are many forms of medications that save lives and prolong them, too, including insulin. Please do not villify or adjectify! the possibility that a slight adjustment to the brain processes may result in the cure for hyperacusis, including SSS. (Your reactions, please, are welcome, and should be summed in a few emails, I think, rather than a bazillion one liner emails that have all that previous stuff still hanging underneath.....just my two cents) ANd you all KNOW I am not a big advocate for over or indiscriminate drugging practices.....however, this drug is one that HAS worked for a very nice respectable patient of mine, and so I have the chance to share that here, with everyone! Marsha , M.S., FAAA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Thanks Marsha! I don't know about everyone else, but my daughter's SSSS is so life diminishing and horrible that I am VERY interested in the drug. I am concerned because I know that psychotropics have caused suicidal thoughts and actions in children and teenagers. This scares me to death! However, the patient that Marsha is speaking of only had to take it for a few months and then wean herself off, and she says that her sensitivity is totally gone!! Can a psychotropic cause that much damage in just a few months? I understand that some of you were on it for years,etc. Maybe some people deal with their SSSS better than others, but if it's anything like my 9 year old's, I would do it in a heart beat. I just think it might be worth a try. Marsha--did your patient have SSSS? Plus, I know she just barely got off of it. Will she keep us updated to let us know if it stays gone? PS Did you get my emails? I really want to get Becca into the new doctor soon. Thanks, Kathy Howe > > and Jane! > > In all likelihood hyperacusis is the result of brain chemistry or > electricl problems! Either transmitter problems or rate-strength- > regulator issues. > > Chemicals can be very helpful for humans beings, in the form of > coffee, chocolate, perfumes, salty ocean spray, and beeswax candles! > There are many forms of medications that save lives and prolong them, > too, including insulin. > > Please do not villify or adjectify! the possibility that a slight > adjustment to the brain processes may result in the cure for > hyperacusis, including SSS. > > (Your reactions, please, are welcome, and should be summed in a few > emails, I think, rather than a bazillion one liner emails that have > all that previous stuff still hanging underneath.....just my two > cents) > > ANd you all KNOW I am not a big advocate for over or indiscriminate > drugging practices.....however, this drug is one that HAS worked for > a very nice respectable patient of mine, and so I have the chance to > share that here, with everyone! > > > Marsha , M.S., FAAA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 > Marsha--did your patient have SSSS? Plus, I know she just barely > got off of it. Will she keep us updated to let us know if it stays > gone? Yes I think it was a combination of regular hyperacusis and SSS. Yes, she will keep me updated. Her recovery happened, BTW, in a very short time period and now she is no longer on the med, even. > > PS Did you get my emails? I really want to get Becca into the new > doctor soon. > > Thanks, > Kathy Howe Yes I have rec'd them, there are legal probs with sending observations about a person I have not personally seen in the clinic, but I can write a private letter to the MD, if you send me his name and address/fax please. MJ> > > > > > > and Jane! > > > > In all likelihood hyperacusis is the result of brain chemistry or > > electricl problems! Either transmitter problems or rate-strength- > > regulator issues. > > > > Chemicals can be very helpful for humans beings, in the form of > > coffee, chocolate, perfumes, salty ocean spray, and beeswax > candles! > > There are many forms of medications that save lives and prolong > them, > > too, including insulin. > > > > Please do not villify or adjectify! the possibility that a slight > > adjustment to the brain processes may result in the cure for > > hyperacusis, including SSS. > > > > (Your reactions, please, are welcome, and should be summed in a > few > > emails, I think, rather than a bazillion one liner emails that > have > > all that previous stuff still hanging underneath.....just my two > > cents) > > > > ANd you all KNOW I am not a big advocate for over or > indiscriminate > > drugging practices.....however, this drug is one that HAS worked > for > > a very nice respectable patient of mine, and so I have the chance > to > > share that here, with everyone! > > > > > > Marsha , M.S., FAAA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Hi Marsha: I don't know if you received my email the other day apologizing for the emails coming from me with all that hanging-on stuff but I have a new system here and if I delete as I was with the old system, the entire email goes into cyberspace, never to be seen again. So really, I am not doing that on purpose, just doing all I can. On the other, well, everyone is different and every case is different. I would probably not personally be a candidate for drugs as I am VERY sensitive to drugs. My only goal was really to bring up the importance, as you had stated, as well, to run this by a Doctor and discuss this in great detail. I was shocked to find out so many side effects when I read up on it and wouldn't personally take it but everyone is different. Sorry for the confusion and I apologize for the need to have to write us on top of everything else you are doing. Do tell us more about this cause thing for Hyperacusis when you get a chance, I had never heard of these causes. Thanks Marsha. Jane Reply-To: Soundsensitivity Date: Thu, 16 Feb 2006 21:16:46 -0000 To: Soundsensitivity Subject: Re: Drug Therapy Alert and Jane! In all likelihood hyperacusis is the result of brain chemistry or electricl problems! Either transmitter problems or rate-strength- regulator issues. Chemicals can be very helpful for humans beings, in the form of coffee, chocolate, perfumes, salty ocean spray, and beeswax candles! There are many forms of medications that save lives and prolong them, too, including insulin. Please do not villify or adjectify! the possibility that a slight adjustment to the brain processes may result in the cure for hyperacusis, including SSS. (Your reactions, please, are welcome, and should be summed in a few emails, I think, rather than a bazillion one liner emails that have all that previous stuff still hanging underneath.....just my two cents) ANd you all KNOW I am not a big advocate for over or indiscriminate drugging practices.....however, this drug is one that HAS worked for a very nice respectable patient of mine, and so I have the chance to share that here, with everyone! Marsha , M.S., FAAA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 anthro_pop wrote: and Jane! In all likelihood hyperacusis is the result of brain chemistry or electricl problems! Either transmitter problems or rate-strength- regulator issues. Yes, I understand. But in my thinking, if you're going to play with pyschotropics, it's best done with both eyes open. Chemicals can be very helpful for humans beings, in the form of coffee, chocolate, perfumes, salty ocean spray, and beeswax candles! There are many forms of medications that save lives and prolong them, too, including insulin. Everything you've named here has been part of human history to the point of being an aspect of our overall evolution. The stuff developed and sold by the pharmaceutical industry is not at all part of our evolutionary development, is often manipulated at an atomic-molecular level to create new compounds not previously found on earth, and is tested on only very tiny fraction of the population under controled circumstance. These people are also selected for testing based on very strict guidelines, so they don't represent the general populace at all. Please do not villify or adjectify! the possibility that a slight adjustment to the brain processes may result in the cure for hyperacusis, including SSS. Adjusting the brain's process is a tricky thing. There are often wildly unexpected side-effects that go with the effort. But, as in the case of Kathy's daughter, if quality of life has dimminished to the point where nearly anything is better than the current state, then the unpredictability of psychotropics I suppose may be worth the risk. I haven't said that no-one should ever touch the stuff, just that people should be aware of the potentials--go in with their eyes open. It's like having gangrene in the leg... do you let it kill you or do you cut off the leg? Sometimes psychotropics (cutting off the leg) is necessary in order to survive, but I think of this as the very last resort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Aspirin--eat food or destroy stomach. It's a blood thinner--which might affect inner ear pressure and sensitivity to vibrations. > > Aspirin can kill you, too. > > This is the first medication that a reliable source has reported that > appears to work directly on hyperacusis. > > Side effects are to be considered, yes, but some of you might be > interested in talking this over with your local physicians, and then > reporting back on how it worked. > > MJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Yes, , there are many people on this list who are absolutely frantic to find some relief. So I am asking you, when something comes along, let's give it a fair reception in this land where all the doors have been nailed shut, previously. I agree with much of what you say, but again, if you are that one person in a hundred that is cured, or significantly improved, then good for you! Whatever it is. Marsha J. Quote Link to comment Share on other sites More sharing options...
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