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Re: Dr. AD from Washington

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What's going on with the child? He may be getting worse because he

is not able to eliminate and toxins are building up. I would take it

easy, remove supplements and add back supportive ones first and see

what he does. I know this can be difficult. If we can find out why

he is a non responder it would be helpful. If you can I suggest

getting an ionic footbath treatment and see how he responds, do

breathing oxygen, lymphatic drainage, color therapy, etc. Can you

give him any liver support herbs, ie silymarin? There is a whole food

supplement called A-F BetaFood ( tablets can be ground up) that helps

to thin the bile from the gallbladder ( also stresses the liver! ),

homeopathic liver drainage, raw juices, ie carrot, beet ( peel beet,

start with only 1/4 slow!! ), greens - all help the liver. Does he

have an oxalate problem? Another huge issue that seems to be ignored

are the kidneys. I have reviewed several children's labs - all

showing lowered kidney function and protien issues which are not

taken seriously medically until the BUN, CREAT, NH3 are all very out

of range!

The problem with these children and DAN / YASKO protocols - we can't

do one size fits all here, no one child is going to react the same.

While there have been ideal responders I have seen very few of these

myself.

What do you plan to do with the Cold Laser?

Good Luck!!

>

> I think we have run our course with DAN. My son continues to get

> worse and now his liver is in trouble. I have a phone consult

coming

> up with Dr. AD from Washington and am wondering if this doctor is

> going to just be another DAN with a route protocol and once it

doesn't

> work that's the end for my child. We have been fired by many of

the

> best DAN doctors since they don't know what to do with my child

when

> he doesn't respond accordingly to their few protocols. Since we

are

> from out of state I would really like some feedback about this

> doctor's success working with severly autistic kids from long

> distance. Any success at recovery or do we really have to be seen

in-

> person on a regular basis to get anywhere? I am willing to

> temporarily relocate if this is what it takes. For success would I

> have to work with Dr. E at the same time with cold laser? As I do

not

> want to be controversial here I would be happy to recieve comments

on

> my personal e-mail. Thank you so much.

>

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We've been trying to heal the worst, leakiest gut our DAN has ever

seen. I've asked repeatedly about milk thistle but our doc said it

would upset his stomach, so we didn't use it...and now his lvier is

in trouble. I feel like we're on a sinking ship. All those other

treatments you mentioned are new to me and I would like some

guidance on them. Do you know if Dr. AD does this? I feel so

lost. And he is just not growing physically or mentally.

-- In

BorreliaMultipleInfectionsAndAutism , " prshaw56 "

wrote:

>

> What's going on with the child? He may be getting worse because

he

> is not able to eliminate and toxins are building up. I would take

it

> easy, remove supplements and add back supportive ones first and

see

> what he does. I know this can be difficult. If we can find out

why

> he is a non responder it would be helpful. If you can I suggest

> getting an ionic footbath treatment and see how he responds, do

> breathing oxygen, lymphatic drainage, color therapy, etc. Can you

> give him any liver support herbs, ie silymarin? There is a whole

food

> supplement called A-F BetaFood ( tablets can be ground up) that

helps

> to thin the bile from the gallbladder ( also stresses the

liver! ),

> homeopathic liver drainage, raw juices, ie carrot, beet ( peel

beet,

> start with only 1/4 slow!! ), greens - all help the liver. Does he

> have an oxalate problem? Another huge issue that seems to be

ignored

> are the kidneys. I have reviewed several children's labs - all

> showing lowered kidney function and protien issues which are not

> taken seriously medically until the BUN, CREAT, NH3 are all very

out

> of range!

>

> The problem with these children and DAN / YASKO protocols - we

can't

> do one size fits all here, no one child is going to react the

same.

> While there have been ideal responders I have seen very few of

these

> myself.

>

> What do you plan to do with the Cold Laser?

>

> Good Luck!!

>

>

> >

> > I think we have run our course with DAN. My son continues to

get

> > worse and now his liver is in trouble. I have a phone consult

> coming

> > up with Dr. AD from Washington and am wondering if this doctor

is

> > going to just be another DAN with a route protocol and once it

> doesn't

> > work that's the end for my child. We have been fired by many of

> the

> > best DAN doctors since they don't know what to do with my child

> when

> > he doesn't respond accordingly to their few protocols. Since we

> are

> > from out of state I would really like some feedback about this

> > doctor's success working with severly autistic kids from long

> > distance. Any success at recovery or do we really have to be

seen

> in-

> > person on a regular basis to get anywhere? I am willing to

> > temporarily relocate if this is what it takes. For success

would I

> > have to work with Dr. E at the same time with cold laser? As I

do

> not

> > want to be controversial here I would be happy to recieve

comments

> on

> > my personal e-mail. Thank you so much.

> >

>

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Has your son tested positive for babesia? A friend just pointed out

to me that my son's gut problems went away shortly after I started

him on mepron for babesia.

Caryn

> > >

> > > I think we have run our course with DAN. My son continues to

> get

> > > worse and now his liver is in trouble. I have a phone consult

> > coming

> > > up with Dr. AD from Washington and am wondering if this doctor

> is

> > > going to just be another DAN with a route protocol and once it

> > doesn't

> > > work that's the end for my child. We have been fired by many

of

> > the

> > > best DAN doctors since they don't know what to do with my child

> > when

> > > he doesn't respond accordingly to their few protocols. Since

we

> > are

> > > from out of state I would really like some feedback about this

> > > doctor's success working with severly autistic kids from long

> > > distance. Any success at recovery or do we really have to be

> seen

> > in-

> > > person on a regular basis to get anywhere? I am willing to

> > > temporarily relocate if this is what it takes. For success

> would I

> > > have to work with Dr. E at the same time with cold laser? As I

> do

> > not

> > > want to be controversial here I would be happy to recieve

> comments

> > on

> > > my personal e-mail. Thank you so much.

> > >

> >

>

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Caryn-- What is mepron? Is it an antibiotic? How did you determine

your son had babesia? We were trying to draw out the Lyme per Dr.

AD with samento with no reactions at all, then we ran a test (not

ordered by AD, it was unrelated) and as a side note it says he's

resistant to samento! So now I don't know how to figure out if he

has Lyme or not! How long does it usually take to get the Western

Blot test back? Not that it will be accurate now....

> > > >

> > > > I think we have run our course with DAN. My son continues

to

> > get

> > > > worse and now his liver is in trouble. I have a phone

consult

> > > coming

> > > > up with Dr. AD from Washington and am wondering if this

doctor

> > is

> > > > going to just be another DAN with a route protocol and once

it

> > > doesn't

> > > > work that's the end for my child. We have been fired by

many

> of

> > > the

> > > > best DAN doctors since they don't know what to do with my

child

> > > when

> > > > he doesn't respond accordingly to their few protocols.

Since

> we

> > > are

> > > > from out of state I would really like some feedback about

this

> > > > doctor's success working with severly autistic kids from

long

> > > > distance. Any success at recovery or do we really have to

be

> > seen

> > > in-

> > > > person on a regular basis to get anywhere? I am willing to

> > > > temporarily relocate if this is what it takes. For success

> > would I

> > > > have to work with Dr. E at the same time with cold laser?

As I

> > do

> > > not

> > > > want to be controversial here I would be happy to recieve

> > comments

> > > on

> > > > my personal e-mail. Thank you so much.

> > > >

> > >

> >

>

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I first of all want to say THANK YOU to both and to Dr Shaw, I

very much appreciate both of your posts!! , your post touched

me beyond words!! I so appreciate your posts Dr Shaw!!!!

,

I felt I need to further elaborate on your initial post. DA is DAN!

trained but is not signed up as a DAN! doctor because she does not

adhear to a DAN! protocol...she goes beyond a standard DAN! doctor.

Early on I did not understand this, I do now. Also early on I felt

comfort in knowing she was DAN! trained so I knew I did not have to

explain things to her at every turn. On the contrary she understands

much more, beyond metals, Lyme, viruses and bacteria.....what I have

appreciated so much is she understands all of them and that our

children are individuals with toxin loads, each affected and

responding differently. With the ART your child will not be put on

a " protocol " , his individual stresses will be addressed on an

individual basis with the knowledge of a doctor that is highly

regarded in high level think-tanks.

In regards to cold laser and DE, you do not have to see them both.

Having seen much with both doctors, I personally think that seeing

either DA or DK for their ASD expertise and DE does put you on a

fast track. I do not know one ASD child that could not benefit from

Quantum Neurology rehab. I do not recommend moving here, I think

that is extreme for your child and the circumstances. I believe at

one point you had mentioned you have extended family in the area. If

you could stay with them then I think a 2 week vacation here would

be appropriate. I'd start by setting up an initial appointment with

Dr A and seeing her in person. Then if possible see Dr E for

QN....maybe even LED detox if possible. I would end this time of

rehab/detox with another appt w/DA just before you go home as things

can need to be adjusted with the progress from the laser. Then go to

phone consults long distance from home.

I know many, even a couple from our WA group that have had to move

out of state that do this very successfully. I know Dr AD won't give

up on you. I know several non-speaking kids that now speak and kids

in wheel-chairs that now walk...one even dances, she doesn't give up

if you the parents follow-through and don't give up.

Knowledgeable doctors have been Very Important to us, so don't take

what I'm about to say wrong. I still find that the kids that do the

best overall have parents with strong intuitions, research, stay

consistent and connected with high level groups like our WA group or

this one.

One quick ? for you, have you already done consults with Dr A for

the samento? I'm a little confused and thought the original e-mail

was regarding a 1st phone consult...it appears you are a current

patient then?

I was wondering if DA has changed a policy that she had in the past

to see a patient in office for the 1st visit unless another dr is

working with you taking on the responsibility of your care (like an

ART doctor local to you, it's then considered a consult to the

doctor). After her 1st visit she then moved to phone consults...just

wondering as I have not checked recently to see if this policy

changed.

Wishing you all the best in this time of decision.

Rita

> > > > >

> > > > > I think we have run our course with DAN. My son continues

> to

> > > get

> > > > > worse and now his liver is in trouble. I have a phone

> consult

> > > > coming

> > > > > up with Dr. AD from Washington and am wondering if this

> doctor

> > > is

> > > > > going to just be another DAN with a route protocol and

once

> it

> > > > doesn't

> > > > > work that's the end for my child. We have been fired by

> many

> > of

> > > > the

> > > > > best DAN doctors since they don't know what to do with my

> child

> > > > when

> > > > > he doesn't respond accordingly to their few protocols.

> Since

> > we

> > > > are

> > > > > from out of state I would really like some feedback about

> this

> > > > > doctor's success working with severly autistic kids from

> long

> > > > > distance. Any success at recovery or do we really have to

> be

> > > seen

> > > > in-

> > > > > person on a regular basis to get anywhere? I am willing

to

> > > > > temporarily relocate if this is what it takes. For

success

> > > would I

> > > > > have to work with Dr. E at the same time with cold laser?

> As I

> > > do

> > > > not

> > > > > want to be controversial here I would be happy to recieve

> > > comments

> > > > on

> > > > > my personal e-mail. Thank you so much.

> > > > >

> > > >

> > >

> >

>

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Hi ..

As you know we see DA, and I believe I have answered question from

your via e=mails in the pass.

When did you see DA? Since you just started to asking questions about

moving here to see her...

I don't see how she could of gotten you on just 1 supplement, and not

run certain test as you stated in email...a bit confused..(as she

would be your best person to get the right provoked lyme test done

then a typical doc in your area)..or are you reviewing her

presentation where she suggest many different things she uses with

different children *FYI she does ART per patient to see what works

with them * via the files?.

Now, if your thinking about seeing DA...and want to know the length

of time you should be here...well.....I don't know your child and

their needs...so this could be discussed via a pre phone consultation

she does with clients who want to be become a patient......maybe

seeing DE while your here as well(she also does a pre phone

consultation for Q & A). DA does laser work herself which she is

learning a lot from DC - She is trying to get him to spend a whole

week with her at her office to teach her more (exciting)

I believe she is about 2 months out for new patients right now ( so

if your planning right now would be a good time to make an

appointment if you haven't been here yet)

There are a couple different families on our WA group who are out of

state clients an do very well with her via phone work. I do believe

they fly in at least 1x a year to see her in person.

I was just in her office today, and asked if she did first time

consultation without seeing them in person and her answer was NO, its

against the law.

Lorina

> > > > >

> > > > > I think we have run our course with DAN. My son continues

> to

> > > get

> > > > > worse and now his liver is in trouble. I have a phone

> consult

> > > > coming

> > > > > up with Dr. AD from Washington and am wondering if this

> doctor

> > > is

> > > > > going to just be another DAN with a route protocol and once

> it

> > > > doesn't

> > > > > work that's the end for my child. We have been fired by

> many

> > of

> > > > the

> > > > > best DAN doctors since they don't know what to do with my

> child

> > > > when

> > > > > he doesn't respond accordingly to their few protocols.

> Since

> > we

> > > > are

> > > > > from out of state I would really like some feedback about

> this

> > > > > doctor's success working with severly autistic kids from

> long

> > > > > distance. Any success at recovery or do we really have to

> be

> > > seen

> > > > in-

> > > > > person on a regular basis to get anywhere? I am willing to

> > > > > temporarily relocate if this is what it takes. For success

> > > would I

> > > > > have to work with Dr. E at the same time with cold laser?

> As I

> > > do

> > > > not

> > > > > want to be controversial here I would be happy to recieve

> > > comments

> > > > on

> > > > > my personal e-mail. Thank you so much.

> > > > >

> > > >

> > >

> >

>

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